SLE Chillblains

[Sin123]

Another joyous flair side effect I’m experiencing!

I’m currently on Methotrexate, Hydroxychloroquine and Prednisone but wondered if anyone has any experience of SLE chillblains on toes? My rheumy doesn’t want to prescribe medication for them as they can lower blood pressure and mine is already low.

I have been applying just a Boots chillblains lotion but is there a timeline on these going away? They are only a tad sore but my toes just feel so cold all the time!

[Melba1]

I had chilblains on every toe and some fingers one year in the early days of lupus. They were quite painful especially getting in a hot bath!

I think they took a few months to go I’m afraid and then I was really cautious with keeping feet warm and dry in future so have only had minor problems since.

I saw a podiatrist who gave advice and cream options but sorry to not be much help as I can’t remember what!

Hope they go soon, warmer weather will definitely help

X

[Sin123 in reply to Melba1]

Thank you Melba1, pleased to hear they finally go. Already bought extra thick thermal socks and heat pads for the next cold snap!

[weathervane in reply to Sin123]

Hi sin , i had chilblains a while ago , they weren’t very painful but they took several weeks to clear .I try to keep my feet as warm as possible, I wear thermal socks all the time and fleecey slippers , sometimes i wear bed socks. The rheumy also said its important to keep your core warm as well .

[Sin123 in reply to weathervane]

Thank Weathervane, more good advice. I’ve been using a fleece covered hot water bottle in bed at night on my feet (but being careful to not make it to hot!) It’s very soothing. I’ll hang on in there and sound like time and a bit of tootsie tlc. 😂

[Barbara17]

I used to get terrible chilblains every winter but over the last few years things improved. Until this year when it has been so cold and the Beast from the East blew in. They are now worse than they’ve ever been. I’m hoping things improve as the weather warms up. From experience the only thing that works is keeping your feet warm and, if you’re anything like me, that’s impossible! Roll on summer - then I only have the sun to worry about!! Oh joy!

[2828]

I too suffer with chilblains. I use a cream called Balmosa and my husband very kindly massages my toes with it. While it doesn't cure it definitely eases the terrible itching and pain. I also have a pair of silk lined socks which keep my feet warm but not hot. That seems to be the key, don't allow your feet to get too hot or too cold.

[Bronagh2015]

I got them for the first time this winter and my Rheumy admitted me for 5 days of flolan infusions which have really helped.