Posts - LUPUS UK | HealthUnlocked

LUPUS UK

32,145 members • 28,486 posts

All posts for April 2017

Going back

I've gone back to a bad place at the moment . Yesterday my cousin Nan died . She wasn't my family by blood but I classed her as family she was like a nan ....

I've gone back to a bad place at the moment . Yesterday my cousin Nan died . She...

LouLamb

•7 years ago

14 Replies

Headaches, again. Steroids?

I've had a couple of headaches again the last couple of days. I only just feel like I am coming out of that horrendous flare with progressing headache, that...

I've had a couple of headaches again the last couple of days. I only just feel l...

Wendy39

•7 years ago

19 Replies

What should I do?

Hello everyone, Not sure what I should do I left my job as pharmacy tech in 2012 because I thought the stress was causing me to be sick, after 5 years of...

Hello everyone, Not sure what I should do I left my job as pharmacy tech in 201...

rxtcjw1

•7 years ago

7 Replies

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Mary 1146

I was diagnosed with lupus 20 months ago systemic lupus erythematosus

MARY1146

•7 years ago

2 Replies

ODD RASH ON BREAST?!

Morning :) I was wondering if anyone could help give me some answers. I've got this rash on one of my breasts that seems to have an itch to it. I have had it...

Morning :) I was wondering if anyone could help give me some answers. I've got t...

Lauralulu

•7 years ago

4 Replies

Blurry vision, headaches, chills and night sweats

Hi! I've been having a lot of problems with my eyes getting really blurry and bad headaches. This past week I went to the eye dr and got new contacts to...

Hi! I've been having a lot of problems with my eyes getting really blurry and ...

Cindymc

•7 years ago

9 Replies

Update 😬

I posted a while ago about my daughter being poorly and we were waiting blood results unfortunately aftervwaiting 10 days and chasing doctors I was told there...

I posted a while ago about my daughter being poorly and we were waiting blood re...

L_curtis

•7 years ago

4 Replies

Travel insurance?

Hi where do we stand with travel insurance? Do we have to declare our illness? Does it depend on our diagnosis i.e. UVDT or SLE as to how it could affect the...

Hi where do we stand with travel insurance? Do we have to declare our illness? D...

MissFG

•7 years ago

7 Replies

Consultant gone on holiday forgot to see me first!....

So my consultant rang me about 10 days ago as had to stop my azathioprine for second time as it had raised my liver enzymes approx 10 times normal! He said he...

So my consultant rang me about 10 days ago as had to stop my azathioprine for se...

Sara_A

•7 years ago

6 Replies

I got diagnosed in 2012...

Hello, I'm kelly and I got diagnosed in Feb 2012, I had a lot of problems previous and the vitiligo society told me to ask for an ANA full body profile, I did...

Hello, I'm kelly and I got diagnosed in Feb 2012, I had a lot of problems previo...

Kelly1977

•7 years ago

1 Reply

Lupus flare with Petechiae rash

I have been in so much pain lately. I do have 4 autoimmune illnesses amongst other medical problems, so when the pain hits I never know what is flaring up. I...

I have been in so much pain lately. I do have 4 autoimmune illnesses amongst oth...

dar58

•7 years ago

4 Replies

Another challenge...

Hello again, My previously fit Mum was diagnosed yesterday with colon cancer. It appears to be quite advanced, and she is due to start chemo- and radio-...

Hello again, My previously fit Mum was diagnosed yesterday with colon cancer. I...

whisperit

•7 years ago

31 Replies

Lupus eyes

Can lupus affect your eyes?

jensen_lynne

•7 years ago

6 Replies

Lupus pain

Hi , I am Ann . I was recently diagnosed with Lupus after years of pain in my feet and feeling ill most times. I have started medication but now I have swollen...

Hi , I am Ann . I was recently diagnosed with Lupus after years of pain in my fe...

Annjanice

•7 years ago

7 Replies

Pip new form

Got my new pip claim form as my award end may 10th . Went down citizen advice today . They said they will ring for an appointment with benefit expert . My form...

Got my new pip claim form as my award end may 10th . Went down citizen advice to...

LouLamb

•7 years ago

6 Replies

More bad news in shock

Hi all Sorry not posted for a while with not being well. Today I saw Rheumatologist and Neurologist. They said my lupus is not improving in fact getting quite...

Hi all Sorry not posted for a while with not being well. Today I saw Rheumatolog...

LSurtees

•7 years ago

20 Replies

Help newly diagnosed and feel so sick! 😢

I'm obviously having a flare right now of both lupus and hypothyroidism and feel so sick. Not sure what I should do? My anxiety is sky high as I'm so down from...

I'm obviously having a flare right now of both lupus and hypothyroidism and feel...

MissFG

•7 years ago

6 Replies

SLE and low clotting factor 2

Hi everyone, I was just wondering if anyone else has experienced bleeding problems along with an SLE diagnosis? I had ITP from the ages of 13-17, and no...

Hi everyone, I was just wondering if anyone else has experienced bleeding proble...

alicethomas95

•7 years ago

3 Replies

Question concerning drug induced lupus

Hi. 7 years ago I became extremely ill - pleurisy, pericarditis, acid reflux, painful swollen joints - and it ended up with ambulance and emergency care in...

Hi. 7 years ago I became extremely ill - pleurisy, pericarditis, acid reflux, p...

Doogiex

•7 years ago

1 Reply

7th driving lesson

Had my lesson today 7:55 am (early 😴) . I did emergency stop not what you expect first time . It was alright . He said there it was good driving with some...

Had my lesson today 7:55 am (early 😴) . I did emergency stop not what you expec...

LouLamb

•7 years ago

5 Replies

Sleepless nights and pain

I wish I could sleep all night. Feeling fed up of knee and foot pain in particular that is very resistant to the full armoury of analgesics at my disposal. The...

I wish I could sleep all night. Feeling fed up of knee and foot pain in particul...

Rubylu

•7 years ago

13 Replies

Mild vs aggressive Lupus

What does it mean to have mild lupus versus aggressive lupus??? And is yours mild or aggressive and for how long have you had it?

What does it mean to have mild lupus versus aggressive lupus??? And is yours mil...

Hidden

•7 years ago

27 Replies

Sorry another question

Went to the GP last week and was treated for Uti as dipstick showed very raised level of White Blood Cells and raised Protein. Called back for results, no...

Went to the GP last week and was treated for Uti as dipstick showed very raised ...

dotty2203

•7 years ago

6 Replies

UV. Some information.

There was a small clip on Ultra Violet light and its strength during full sun and cloud on The One Show tonight (Wednesday 5th April) toward the end of the...

There was a small clip on Ultra Violet light and its strength during full sun an...

Hidden

•7 years ago

5 Replies

Allergic to sun creams

Hi, community. My 14 year old granddaughter is going on her first school skiing trip next week. Her skin burns really badly but she comes out in a red, sore,...

Hi, community. My 14 year old granddaughter is going on her first school skiing...

skylark15

•7 years ago

10 Replies

On biological infusions to help my arthritis caused by my Lupus and white blood cells keep dropping..

Hi all, im on Abatacept 4weekly infusions at hospital to help as my lupus has attacked my joints aparently there is only a choice of a couple of the...

Hi all, im on Abatacept 4weekly infusions at hospital to help as my lupus has a...

Mellisa1066

•7 years ago

Be the first to reply

periods....

I had my laparoscopy yesterday, first one to have it done and was the last one on the ward. After my surgery i had a turn for the worse with my heart rate...

I had my laparoscopy yesterday, first one to have it done and was the last one o...

Hidden

•7 years ago

5 Replies

ANA number

What was your ANA number when you tested positive for lupus??

Hidden

•7 years ago

24 Replies

March's Topic of the Month - Pain Management

Our blog article for March about pain management has now been published. http://www.lupusuk.org.uk/pain-management/ Thank you so much to everybody who...

Our blog article for March about pain management has now been published. http://...

Paul_Howard

Partner•8 years ago

6 Replies

Nasal septum perforation

Has anyone else had a nasal septum perforation as a result of having Lupus? I have had oral and nasal ulcers from the get go but, at the end of last year, I...

Has anyone else had a nasal septum perforation as a result of having Lupus? I ha...

Tonk

•8 years ago

12 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for April 2017

Going back

Headaches, again. Steroids?

What should I do?

Mary 1146

ODD RASH ON BREAST?!

Blurry vision, headaches, chills and night sweats

Update 😬

Travel insurance?

Consultant gone on holiday forgot to see me first!....

I got diagnosed in 2012...

Lupus flare with Petechiae rash

Another challenge...

Lupus eyes

Lupus pain

Pip new form

More bad news in shock

Help newly diagnosed and feel so sick! 😢

SLE and low clotting factor 2

Question concerning drug induced lupus

7th driving lesson

Sleepless nights and pain

Mild vs aggressive Lupus

Sorry another question

UV. Some information.

Allergic to sun creams

On biological infusions to help my arthritis caused by my Lupus and white blood cells keep dropping..

periods....

ANA number

March's Topic of the Month - Pain Management

Nasal septum perforation

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