SLE and low clotting factor 2 : Hi everyone, I was... - LUPUS UK

LUPUS UK

31,678 members28,065 posts

SLE and low clotting factor 2

alicethomas95 profile image
3 Replies

Hi everyone,

I was just wondering if anyone else has experienced bleeding problems along with an SLE diagnosis?

I had ITP from the ages of 13-17, and no problems between 17-21, until having a bad time with my periods, joints etc. all turning drastically for the worst over this past year. Got diagnosed with lupus this past feb with all blood test results confirming the diagnosis. My clotting times are elongated, and my clotting factor 2 is really low [4% when it is meant to be >50%].

Hope everyone is well :)

Written by
alicethomas95 profile image
alicethomas95
To view profiles and participate in discussions please or .
Read more about...
3 Replies
Bacardibabe76 profile image
Bacardibabe76

Hi.

Have you been tested for APS? Antiphospholipid syndrome also known as Hughes ? This is a common syndrome that can run along with lupus. I would expect them to test for it.

I had elongated clotting times when first tested and they also found all three antibodies.

Have you spoken to your doctor? Or asked for a copy of your test results?

Take care

L x

Paul_Howard profile image
Paul_HowardPartnerLUPUS UK

Does your doctor regularly monitor your platelet levels? Sometimes lupus can attack the platelets causing the levels to drop which can affect the ability to clot.

alicethomas95 profile image
alicethomas95 in reply to Paul_Howard

Yes, my platelet levels have come back in the normal ranges each time. I have had treatment of immunogloblins recently and it has drastically helped my clotting times :)

I was just wondering if people experience problems with bleeding too much rather than clotting too easily which seems to be a more common sympton.

You may also like...

Blood clots and SLE

blood clots you have to stay on warfarin permanently. I have argued that I don't think my 2 clots...

Blood clots and urticarial vasculitis syndrome

negative with this lupus-like syndrome and yet suffer these problems with clotting? Thank you 🌈

Blood clots with flare

most of my markers indicate Lupus but not all. I have suffered blood clots including a Pulmonary...

SLE

openly about Lupus has made me see things in a completely different way. Thank you all for all the...

SLE and fibromyalgia?

don't like steriods at all, I usually lose my appetite and its just a bad time for me. In...