LUPUS UK
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Sleepless nights and pain

I wish I could sleep all night. Feeling fed up of knee and foot pain in particular that is very resistant to the full armoury of analgesics at my disposal. The recent pulse of steroids quietened other joint pain and swellings enough, but these bits are driving me to distraction. Just blowing off here, sorry!

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Rowan1, perhaps you might consider LDN [low dose naltrexone]? Many people seem to get both relief from pain and improved sleep from its usage. As far as I know there is an LDN FB page - at least you could research it and see it is for you. Kind regards - sorry you are suffering so badly.

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Thanks Daffidols, I'll look into this. I've not come across it before and might be interested. Sleep deprivation through pain can be just the pits. I saw rheumatologist 15/3 and have another apt on 19/5, so can always discuss it then if I've not done anything before then.

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You might want to try a magnesium citrate (holland +barrets if u are in uk) .it helps to relax your muscles .itake 200mg morning +before bedtime ,it helped me alot especially with neck pain. All the best Elfie.

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Thank you

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Have you tried amatriptalin when I am bad with my hands and legs and can't sleep I take one they work really well for me I sleep all night and they help with the pain and a lot of tension goes out of the muscles but they do make me feal hung over in the morning for a couple of hrs ask your gp and see how you get on

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Awe thanks. I can't tolerate amatrip but do take gabapentin. I literally can't function on it, despite trying to preserve.

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Hi Rowan1,

Have you spoken to your doctor or rheumatologist about this?

Muscle/joint aches and pains are one of the most common symptoms associated with lupus. We recently posted a blog article on pain management containing helpful tips and information which you can read here: lupusuk.org.uk/pain-managem...

Please keep us updated, wishing you all the best.

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Thank you, yes I have read the blog. I saw rheumatologist on 15/3 and will again on 19/5, and GP a couple of times between. A recent flare has not fully settled so it may be that more needs to be done. Patience is hard to find at 3a.m.! I had D-dimers done today because of the knee swelling and pain in my leg in case of clots , which fortunately was ok. Things are a tiny bit better, so I'll take that and work towards more.

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Oh, I'm seeing neurologist on 9/5 too!

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Try Olbas Oil rubbed into the knee in circular motion and the foot too. Honestly it really lessens the pain - sit for ten minutes after or do it just before bed. There is also Deep Freeze from all super markets - worth a try?

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Blimey, haven't used olbas oil for years! Used to put it in hot water as a steam

Inhalation for colds! At least my knee will be able to breath easily! 😂

I'll give anything a go if it's not likely to be harmful. Thanks for the tip.😀

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Ha ha - I take Hydroxy etc for Lupus and Sjogrens but have always used natural old fashioned remedies. I take small amount of Turmeric daily too which was recommended by my Consultant. It is really good for Arthritis - obviously check with your GP but it is one of the oldest remedies and becoming recognised at last. I wish you well and pain free. 😊

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I do try and add turmeric to all sorts of things, but not daily I must say. So I could increase that.

Some useful suggestions there Cas. Very much appreciated.

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