Posts - LUPUS UK | HealthUnlocked

LUPUS UK

32,210 members•28,555 posts

All posts for April 2017

Phew!🙃 Latest round of tests is complete!

So I had the MRI and I haven't got the official report but I don't think there's anything concerning there. Blood tests all came back normal except plasma free...

So I had the MRI and I haven't got the official report but I don't think there's...

1985mum

•8 years ago

8 Replies

Hampshire Lupus Information Day - 6th May 2017

The Hampshire Lupus Information Day and AGM will take place on Saturday 6th May 2017 at the Guildhall, Winchester, SO23 9GH. Refreshments will be...

The Hampshire Lupus Information Day and AGM will take place on Saturday 6th May ...

Paul_Howard

Partner•8 years ago

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What a donut !!

Starting back on methotrexate after a years break and found myself counting and calculating and counting again convinced the pharmacist hadn't given me enough...

Starting back on methotrexate after a years break and found myself counting and ...

Georgie-girl

•8 years ago

37 Replies

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Magnesium deficiency and hair loss

I am still searching for an answer to the hair loss. My current obsession is magnesium deficiency. I have read that 90% of us are deficient due to farming...

I am still searching for an answer to the hair loss. My current obsession is ma...

Asarahjohnson

•8 years ago

7 Replies

Confused one

Hi everyone I'm a 35 yr old woman of 3 kids. Ive been sick for abt a yr now. I was loosing tremendous amount of weight. Until Jan 09 2017 i was every bit of...

Hi everyone I'm a 35 yr old woman of 3 kids. Ive been sick for abt a yr now. I ...

KupKakes

•8 years ago

1 Reply

Suffering from a lot of things and need help ASAP

Hy everyone, I'm a 19 year old girl and i have abdominal pains sometimes they are sharp but sometimes they feel like period pains and I've also been burping a...

Hy everyone, I'm a 19 year old girl and i have abdominal pains sometimes they ar...

Sempho

•8 years ago

2 Replies

Concern about home visit for PIP soon

I get DLA now and due to have a home visit from Atos soon for PIP assessment. They were very nice and understanding on the phone about my mobility problems and...

I get DLA now and due to have a home visit from Atos soon for PIP assessment. Th...

Sunphoenix

•8 years ago

1 Reply

Struggling with the "fog"

On a new project at work and I am struggling like never before to keep up. I can't absorb info like everyone else (or like I used to) and I get confused and...

On a new project at work and I am struggling like never before to keep up. I can...

katidid

•8 years ago

6 Replies

Shocked

Today my Aunty told me that the relative that died , died of pneumonia . I can't believe it . She had it before and thought she had it on Tuesday when I...

Today my Aunty told me that the relative that died , died of pneumonia . I can't...

LouLamb

•8 years ago

4 Replies

Doctors letter

Made an appointment for tomorrow morning to see my doctor . Fingers crossed she'll give me a letter for my PIP . I'm going to write down tonight on bit of...

Made an appointment for tomorrow morning to see my doctor . Fingers crossed she'...

LouLamb

•8 years ago

3 Replies

Sunbeds & SLE

So this may just be me being completely naive but is it bad for people with SLE to use sunbeds? I get sunbeds a few times a month, never had problems with sun...

So this may just be me being completely naive but is it bad for people with SLE ...

Charlottelauren

•8 years ago

11 Replies

1st rheumatology app

Had my first appointment yesterday and feel so much better about things, they confirmed lots of what I already new about (after reading about lupus for months...

Had my first appointment yesterday and feel so much better about things, they co...

Jensherg11

•8 years ago

4 Replies

Looking for tips on post op shoulder surgery

Hello friends! I am scheduled to have surgery in May to repair a torn rotator cuff and inflamed biceps, remove a cyst, etc. I will be in a sling for 4-6 weeks...

Hello friends! I am scheduled to have surgery in May to repair a torn rotator cu...

shareasmile

•8 years ago

9 Replies

ESA Appeals

On the 15-2-17 I was told I could not claim ESA so they put me on JSA for the past 8weeks.to which I put in a appeal. Now when I have signed they have told me...

On the 15-2-17 I was told I could not claim ESA so they put me on JSA for the pa...

Michael-

•8 years ago

2 Replies

Flare after operation

So I had keyhole done on Tuesday just gone, as soon as I got out of recovery I could feel straight away I was starting a flare, I have had none stop weakness...

So I had keyhole done on Tuesday just gone, as soon as I got out of recovery I c...

Hidden

•8 years ago

1 Reply

Feeling confused and very down

Hello Everyone Yesterday I got and felt normal for the first time for ages. I could walk with no difficulty didn't feel sick.......Cured ! Hooray Today I got...

Hello Everyone Yesterday I got and felt normal for the first time for ages. I co...

bones-bones

•8 years ago

3 Replies

Hydroxychloroquine DLE

Is there alternative treatments that are not so potent as Hydroxychloroquine for Discoid Lupus( that is not Chronic) As The steroid cream works on the Face...

Is there alternative treatments that are not so potent as Hydroxychloroquine fo...

Advice1

•8 years ago

7 Replies

Does anyone else do this?

I've recently been diagnosed with a "lupus-like" UCTD. One thing that's been happening of late is that I keep dropping things. Not in the usual monthly/clumsy...

I've recently been diagnosed with a "lupus-like" UCTD. One thing that's been hap...

VanK

•8 years ago

15 Replies

Pain in top right hand corner of chest

Hi I'm Bernie 70 years old, I keep getting sharp pains in the top right hand corner of my chest. I'm feeling okay but worried about this pain?

Hi I'm Bernie 70 years old, I keep getting sharp pains in the top right hand cor...

berniesearle

•8 years ago

3 Replies

Sun protection - plain, long sleeved rash vests

If any of you are very sun sensitive and struggle with clothing in the Spring/Summer, I have just received my two plain white rash vests from Lands End and am...

If any of you are very sun sensitive and struggle with clothing in the Spring/Su...

Wendy39

•8 years ago

35 Replies

Need some help – terrible symptoms baffling everybody.

I am new here and looking for help and answers. Thanks in advance for any help you can give. I’ve not been diagnosed with Lupus but I do wonder if it's the...

I am new here and looking for help and answers. Thanks in advance for any help y...

Nunezhall

•8 years ago

16 Replies

Strange question about adoption...and lupus

Hi, I just wondered if anyone here has experience of adoption and having lupus?? I want to know if it is possible or if I would be declined straight away due...

Hi, I just wondered if anyone here has experience of adoption and having lupus??...

Sara_A

•8 years ago

5 Replies

First Appointment with Rheumy

Good afternoon my dear friends, I have been quiet for a couple of weeks as I've been a bit preoccupied on top of feeling like I've been done over with a Base...

Good afternoon my dear friends, I have been quiet for a couple of weeks as I've ...

Charliebear68

•8 years ago

36 Replies

Struggling to breathe

Lasts few weeks it's felt as if someone was sitting on my chest. At first it didn't hurt overly, uncomfortable but not really painful - not like a throat...

Lasts few weeks it's felt as if someone was sitting on my chest. At first it di...

bengali

•8 years ago

11 Replies

Lupus sucks!

Well it's Spring and the weather is fabulous but after a half hour stroll with the dog this morning, I have nausea, a puffy face, rash, blinding hum-dinger of...

Well it's Spring and the weather is fabulous but after a half hour stroll with t...

Rubylu

•8 years ago

26 Replies

A bit fed up:(

Hi all I have had lupus now for 18 years and have now been told I also have something called benign intercranial hypertension and it is lupus related.does...

Hi all I have had lupus now for 18 years and have now been told I also have some...

Sarah13802

•8 years ago

2 Replies

Shoulder and Elbow pain.

Hi everyone I'm hoping someone can give me some advice. For 3 weeks I've had a shoulder blade pain I thought it was a trapped nerve but the pain has gone to...

Hi everyone I'm hoping someone can give me some advice. For 3 weeks I've had a ...

rita02

•8 years ago

8 Replies

Struggling to get diagnosed!

Hi, everyone! I'm new here, to the lupus community. Like many before me, I've been struggling to get an accurate diagnosis. It's been a long process so far....

Hi, everyone! I'm new here, to the lupus community. Like many before me, I've b...

wanderingunicorn

•8 years ago

2 Replies

New Dr. Update

So, I went to see an immunologist on March 22 and she ordered a bunch of labs to check for food allergies and inflammation and some immune workup along with...

So, I went to see an immunologist on March 22 and she ordered a bunch of labs to...

Wildcats85

•8 years ago

2 Replies

I'm confused

I'm still not sure if I have lupus or not because I still haven't gotten results back. I only have a positive ANA of 1:40... my hair has been falling since...

I'm still not sure if I have lupus or not because I still haven't gotten results...

Hidden

•8 years ago

5 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for April 2017

Phew!🙃 Latest round of tests is complete!

Hampshire Lupus Information Day - 6th May 2017

What a donut !!

Magnesium deficiency and hair loss

Confused one

Suffering from a lot of things and need help ASAP

Concern about home visit for PIP soon

Struggling with the "fog"

Shocked

Doctors letter

Sunbeds & SLE

1st rheumatology app

Looking for tips on post op shoulder surgery

ESA Appeals

Flare after operation

Feeling confused and very down

Hydroxychloroquine DLE

Does anyone else do this?

Pain in top right hand corner of chest

Sun protection - plain, long sleeved rash vests

Need some help – terrible symptoms baffling everybody.

Strange question about adoption...and lupus

First Appointment with Rheumy

Struggling to breathe

Lupus sucks!

A bit fed up:(

Shoulder and Elbow pain.

Struggling to get diagnosed!

New Dr. Update

I'm confused

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