Posts - LUPUS UK | HealthUnlocked

LUPUS UK

32,146 members • 28,486 posts

All posts for April 2017

Cyclophosphamide

Anyone else having cyclophosphamide infusions?or have had them, how did you feel afterwards. Cara x

Anyone else having cyclophosphamide infusions?or have had them, how did you feel...

Cara_H

•7 years ago

3 Replies

Confused!

Hello everyone :) I'm new here, lots of questions! I had a punch biopsy that confirmed subacute cutaneous lupus, I was told this was a good thing and I'm lucky...

Hello everyone :) I'm new here, lots of questions! I had a punch biopsy that con...

Anyac81

•7 years ago

18 Replies

Tooth ache again

Bloody tooth ache has Come back . Taken some paracematmol and put numbing jel on . Hopefully I'll sleep and tomorrow it will be gone . If not I can't go back...

Bloody tooth ache has Come back . Taken some paracematmol and put numbing jel on...

LouLamb

•7 years ago

3 Replies

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I've forgotten how to stairs!

Or this is how I'm told the kids turn things into verbs these days...I'm in UsHaus now, waiting for the ridiculously loyal friends the Dutchman roped into...

Or this is how I'm told the kids turn things into verbs these days...I'm in UsHa...

Silvergilt

•7 years ago

14 Replies

Aunty driving

My Aunty let me drive her car to her house . I had my mum , cousin and cousins boyfriend in back . Them talking didn't effect my concentration which I was...

My Aunty let me drive her car to her house . I had my mum , cousin and cousins b...

LouLamb

•7 years ago

8 Replies

Lemon, cinnamon, honey in hot water

Hi all, Thought I had Lupus but was diagnosed as having Rheumatoid Arthritis some 8 odd months ago...went from being able to do yoga twice a week to bed...

Hi all, Thought I had Lupus but was diagnosed as having Rheumatoid Arthritis so...

rubina786

•7 years ago

2 Replies

Not sure how to cope without ibuprofen!?

I need some suggestions, please! I started a flare 3 or 4 days ago and I can't take ibuprofen or any NSAIDS because I have a stomach ulcer. I started 10 mg of...

I need some suggestions, please! I started a flare 3 or 4 days ago and I can't t...

Jorgenli

•7 years ago

27 Replies

Back in hospital 😞

The petechiea started to go away, and the pain meds took hold. That was just for a few days. Petechiae is back and severe pain in my bones, deep. I can't take...

The petechiea started to go away, and the pain meds took hold. That was just for...

dar58

•7 years ago

6 Replies

A Good Day - AT LAST 🌈

Nearly half way through April and I've had a good day, after believing it would never happen again because Ive been feeling rubbish since the new year. Got a...

Nearly half way through April and I've had a good day, after believing it would ...

Lupiknits

•7 years ago

12 Replies

1st appointment with rheumy was a bit of a disaster...

Well, I'm sure that this has happened to at least one other person on here...got to my appt nice and early. Grabbed a cuppa and lo and behold, called straight...

Well, I'm sure that this has happened to at least one other person on here...got...

Charliebear68

•7 years ago

31 Replies

Pain in and around chest area

I've been getting pain in and around my chest. It's been happening for a while, but hasn't been to noticeable until recently. I am overweight but I'm doing...

I've been getting pain in and around my chest. It's been happening for a while, ...

teaparty

•7 years ago

8 Replies

Menopause

Since Lupus can go in and out of remission based on hormonal balances, menopause is something NOT to be feared. Menopause started and Lupus finally went into...

Since Lupus can go in and out of remission based on hormonal balances, menopause...

CJ384

•7 years ago

9 Replies

looking for a rhuematologist for a 2nd opinion

hi is there anyone here who can possibly recommend a rheumatologist in the notts/derbys area? i am going to see my gp when i can get an appointmbet and ask for...

hi is there anyone here who can possibly recommend a rheumatologist in the notts...

Guinea21

•7 years ago

3 Replies

Co trimoxazole?

Hi everyone! My nephrologist has put me on co- trimoxazole as i am on Rituximab and will be every 6 months for 3 years. I have to take the tablets every other...

Hi everyone! My nephrologist has put me on co- trimoxazole as i am on Rituximab ...

Rach459

•7 years ago

2 Replies

Update!!!! Yeah!!!

2017 has been a good year for me this far! For those that remember my story from last year and all the doors that have been slammed on my face, I am finally,...

2017 has been a good year for me this far! For those that remember my story from...

Lara4228

•7 years ago

5 Replies

DsDNA

I'm confused. My lab result came back 33.0 iu/ml. The results said negative. Also saying that anything over 100 is positive.... I'm reading online that my...

I'm confused. My lab result came back 33.0 iu/ml. The results said negative. Als...

Hidden

•7 years ago

6 Replies

Undifferentiated connective tissue disease/lupus and university

Hi, I've recently been diagnosed with undifferentiated conective tissue disease (UCTD) but my rhumotologist said it all lupus (I'm on medication for SLE) but...

Hi, I've recently been diagnosed with undifferentiated conective tissue disease ...

jrhart

•7 years ago

7 Replies

Increased tinnitus since vertigo ☹️☹️☹️

Hi there , i had lots of great advice a couple of weeks ago when i had a sudden bout of vertigo. I have noticed now that the mild buzzing tinnitus that I...

Hi there , i had lots of great advice a couple of weeks ago when i had a sudden ...

weathervane

•7 years ago

22 Replies

DLE and the Pill

Few months ago started taking the progestogen-only pill Cerelle 75mg with no side effects, i ordered a repeat Prescription but the Surgery would only provide...

Few months ago started taking the progestogen-only pill Cerelle 75mg with no sid...

Advice1

•7 years ago

6 Replies

Make up

Did anyone see the channel 4 programme, Katie Pipers Face to Face. (Tuesday) It was very interesting for any of us with a facial rash. I like many I battle...

Did anyone see the channel 4 programme, Katie Pipers Face to Face. (Tuesday) It ...

Hidden

•7 years ago

2 Replies

Donation to Lupus

My Aunty informed me today . Instead of flowers at the funeral on the 27th . They are going to be doing donation to lupus

My Aunty informed me today . Instead of flowers at the funeral on the 27th . The...

LouLamb

•7 years ago

7 Replies

Autonomic Autoimmune Ganglionopathy anyone?

Two years ago at an autonomic unit I had, amongst other things, a blood test for AAG. This test apparently is sent to oxford labs for testing and takes up to...

Two years ago at an autonomic unit I had, amongst other things, a blood test for...

Georgie-girl

•7 years ago

3 Replies

8th Driving Lesson

Driving instructor texted the other day to change lesson from 6:30 am to 10am. A better time for me. I haven't been waking up till gone 9 :) . My problem is...

Driving instructor texted the other day to change lesson from 6:30 am to 10am. A...

LouLamb

•7 years ago

11 Replies

Confused

Hi guys I'm really hoping you don't mind me being on here as I don't actually have a diagnosis, I'm wondering if anyone can give me some advice, I seem to...

Hi guys I'm really hoping you don't mind me being on here as I don't actually ha...

Mlmcc

•7 years ago

8 Replies

April's Topic of the Month - Coping with Mouth & Nose Ulcers (We want to hear your tips and experiences)

Our 'Topic of the Month' discussion for April is 'Coping with Mouth & Nose Ulcers''. Up to 45% of people who have SLE will develop oral or nasal ulcers....

Our 'Topic of the Month' discussion for April is 'Coping with Mouth & Nose Ulcer...

Paul_Howard

Partner•7 years ago

12 Replies

A perfect storm:

I apologise in advance: this is a letting off of steam. I can't scream and grizzle with the pain because I don't want to wake the others, so I'm trying to...

I apologise in advance: this is a letting off of steam. I can't scream and grizz...

skylark15

•7 years ago

50 Replies

Headache and dizziness after exercise

I went out for an early morning little bike ride. Only 4 miles. Trying to ride early to beat the heat of the day. As soon as I got off my bike, pounding...

I went out for an early morning little bike ride. Only 4 miles. Trying to ride e...

Natura

•7 years ago

7 Replies

Pip form

Got some what of a doctors letter today . Luckily citizen advice rang me up as well to come in today to do my form perfect timing really . I went and they...

Got some what of a doctors letter today . Luckily citizen advice rang me up as w...

LouLamb

•7 years ago

2 Replies

Sun cream

Hi Looking for advise what sun cream does everyone use particularly if you have a rash on your face. I have Amber soldier factor 50+ for kids and its...

Hi Looking for advise what sun cream does everyone use particularly if you hav...

Jensherg11

•7 years ago

16 Replies

Didn't get to the hospital!

I was so pleased that my gynae appointment was so quick and that the registrar was being proactive about his part helping with my anaemia. They were very good,...

I was so pleased that my gynae appointment was so quick and that the registrar w...

Hidden

•7 years ago

6 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for April 2017

Cyclophosphamide

Confused!

Tooth ache again

I've forgotten how to stairs!

Aunty driving

Lemon, cinnamon, honey in hot water

Not sure how to cope without ibuprofen!?

Back in hospital 😞

A Good Day - AT LAST 🌈

1st appointment with rheumy was a bit of a disaster...

Pain in and around chest area

Menopause

looking for a rhuematologist for a 2nd opinion

Co trimoxazole?

Update!!!! Yeah!!!

DsDNA

Undifferentiated connective tissue disease/lupus and university

Increased tinnitus since vertigo ☹️☹️☹️

DLE and the Pill

Make up

Donation to Lupus

Autonomic Autoimmune Ganglionopathy anyone?

8th Driving Lesson

Confused

April's Topic of the Month - Coping with Mouth & Nose Ulcers (We want to hear your tips and experiences)

A perfect storm:

Headache and dizziness after exercise

Pip form

Sun cream

Didn't get to the hospital!

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