Posts - LUPUS UK | HealthUnlocked

LUPUS UK

32,145 members • 28,486 posts

All posts for April 2017

Could it be Lupus?

Hi all I would really appreciate some advice please. I am not expecting a diagnosis just an indication of whether I am being paranoid or not! I was diagnosed...

Hi all I would really appreciate some advice please. I am not expecting a diagno...

Oakmoss

•7 years ago

15 Replies

New kid on the block

Hi all, I am new here, but I am veteran with SLE. It's been exactly 20 years since I was diagnosed with it. I hav been doing pretty good for all this time. I...

Hi all, I am new here, but I am veteran with SLE. It's been exactly 20 years si...

Papilon73

•7 years ago

5 Replies

Numb gums and loose teeth feeling!

Hi all, I'm new here after my sister suggested I join. I have recently been diagnosed with SLE and am still trying to wrap my head around the whole thing-...

Hi all, I'm new here after my sister suggested I join. I have recently been diag...

Penny_P

•7 years ago

14 Replies

Want to take advantage of all our features? Just log in!

Utter waste of time...

Hi guys - feeling so disappointed with my appointment. I'm beginning to think I'm psychic or is that psychotic?*!#... As I said earlier - I was feeling anxious...

Hi guys - feeling so disappointed with my appointment. I'm beginning to think I'...

Charliebear68

•7 years ago

9 Replies

VSL#3

Some time ago I bought some VSL#3 probiotics to see if it helped the gastric problems, and said I'd report back. First of all, a period of having difficulty...

Some time ago I bought some VSL#3 probiotics to see if it helped the gastric pro...

Lupiknits

•7 years ago

26 Replies

Feeling really anxious now

Hello my lovelies, I'm about to leave for second 'first' rheumatologist appointment and feel soo anxious 😐 Got blood results, letter and my notes so think I'm...

Hello my lovelies, I'm about to leave for second 'first' rheumatologist appointm...

Charliebear68

•7 years ago

2 Replies

Unable to be treated for Lupus

Hi I am a new member. Please can you help me? I am desperately trying to find out if there is any other person who has SLE and like myself is unable to be...

Hi I am a new member. Please can you help me? I am desperately trying to find ou...

ShadowSky

•7 years ago

13 Replies

What do these mean (got the results for my blood (ana, etc) today

Got the confirmation that I am on the rheumatology waiting list yesterday - but that the time before I get it will likely be 'considerable.' But saw doc today,...

Got the confirmation that I am on the rheumatology waiting list yesterday - but ...

bengali

•7 years ago

10 Replies

Small moments of happiness :)

Here is a link about the power of positive thinking, hoping we all can cope better with pain and dark moments. Big hug to all who need one...

Here is a link about the power of positive thinking, hoping we all can cope bett...

1sam

•7 years ago

7 Replies

Vertigo and sudden falls not at the same time

Hi all , so I recently fell , stepped off a curb from a standstill and it was as though the curb wasn't there. I've had a lot of falls with dizziness episodes...

Hi all , so I recently fell , stepped off a curb from a standstill and it was as...

Pepper64

•7 years ago

7 Replies

West Midlands Cake Sale for World Lupus Day

Hi I hope it's Ok to post this ... Call out to everyone who may be able to make it ... For anyone living in West Midlands UK. Do you fancy meeting up and...

Hi I hope it's Ok to post this ... Call out to everyone who may be able to make ...

fabwheelie

•7 years ago

1 Reply

Starting with ciclosporine drops

Hi,. I had my first dose last night, no stinging or pain but maybe that's because I had anaesthetic drops in my eyes during the day at Eye clinic. What is...

Hi,. I had my first dose last night, no stinging or pain but maybe that's becaus...

Stephanietee

•7 years ago

3 Replies

Lupus & Alcohol

Another night wide awake after having a glass of wine. I've noticed it over the last few weeks that when I go out for a meal and have a drink I just can't...

Another night wide awake after having a glass of wine. I've noticed it over the ...

MissFG

•7 years ago

38 Replies

Burning scalp😝😝😝

I have been suffering on and off lately from a burning pain in my scalp, with some raised spots . It gets particularly bad at night and it can be painful...

I have been suffering on and off lately from a burning pain in my scalp, with so...

weathervane

•7 years ago

21 Replies

Pip??

Hello :) I had my OT visit today, she thinks because my husband got fired for taking too many days off in the last year to help me at home I can claim PIP?...

Hello :) I had my OT visit today, she thinks because my husband got fired for ta...

Anyac81

•7 years ago

15 Replies

My son has chicken pox

Hi all and happy easter, My son has chicken pox which showed up last week. He is 5yrs old and has been indoors since last thursday ( so much 4 his easter...

Hi all and happy easter, My son has chicken pox which showed up last week. He i...

ijeasike

•7 years ago

11 Replies

Steroids - a necessary evil??

Been sick over 16 months with Hashimotos and Lupus! My thyroid bloods are nearly optimal since slowly introducing T3 in January. I've been on Hydroxy nearly 4...

Been sick over 16 months with Hashimotos and Lupus! My thyroid bloods are nearly...

MissFG

•7 years ago

9 Replies

Lupus and Chronic Sinisutis

I have Lupus and been suffering for months from sinisutis had numerous nasal sprays from GP and antihistamines all with no effect. Any suggestions please.

I have Lupus and been suffering for months from sinisutis had numerous nasal spr...

Doreen2014

•7 years ago

17 Replies

Lung function test what can I expect?

I'm having a full pulmonary lung function test tomorrow. What can I expect? I've also a heart ultrasound in may and a little scared by it all if I'm honest....

I'm having a full pulmonary lung function test tomorrow. What can I expect? I've...

MissFG

•7 years ago

8 Replies

Point of view from the USA, from both a Lupus patient and GP (I'm them)

Since the medical system in the US is irretrievably broken and I have no idea how or when it will be fixed (and no energy left after nearly 20 years of GP...

Since the medical system in the US is irretrievably broken and I have no idea ho...

Lupusandmore3

•7 years ago

13 Replies

Resources

Hi all . Hope you had a good Easter holiday. Here in southern Oregon it was cloudy so we were able to get out and go for a little hike to see the beautiful...

Hi all . Hope you had a good Easter holiday. Here in southern Oregon it was cl...

KRutherford

•7 years ago

1 Reply

Symptoms

I have sle And over the past 2 or so years , at least once a month, I'll get really cold and shivery, my legs will ache and I will literally feel as though I...

I have sle And over the past 2 or so years , at least once a month, I'll get rea...

Charlottelauren

•7 years ago

2 Replies

Hydroxychloroquine - nightmares?

Hope everyone has had a peaceful holiday weekend. I recently started on one tablet a day of hydroxy - taken in the morning with breakfast. I was expecting...

Hope everyone has had a peaceful holiday weekend. I recently started on one tab...

VanK

•7 years ago

33 Replies

Gym ??

Hi . Was just wondering if anybody goes to gym . A doctor I saw before Christmas said that I should try and go to the gym for my joints. . Does anybody go to...

Hi . Was just wondering if anybody goes to gym . A doctor I saw before Christma...

LouLamb

•7 years ago

16 Replies

Holiday vaccinations.

Just hit a huge crash following D and V bug and now shingles. So whilst on "chair rest" my husbands asked me to look at options for our holiday for our 25th...

Just hit a huge crash following D and V bug and now shingles. So whilst on "chai...

Hidden

•7 years ago

15 Replies

No Rituxan for me

So two weeks ago my doctor decided to take me off of Cellcept and put me on methotrexate and start Rituxan infusions. I read all the info on the infusion and...

So two weeks ago my doctor decided to take me off of Cellcept and put me on meth...

Jaylowdancer

•7 years ago

6 Replies

Do i need a diet?

So ive been diagnosed with MCTD, RA,NSIP and Lung disease for about 8 months now. Ive seen my reumy almost every month and she has never metioned a diet or...

So ive been diagnosed with MCTD, RA,NSIP and Lung disease for about 8 months now...

Jaylowdancer

•7 years ago

17 Replies

Cortisol hormone and DHEA treatment for lupus

Hi. I've been searching on the internet and read book about autoimmune disease. Some of the sources said that this cortisol hormone and DHEA usually relates to...

Hi. I've been searching on the internet and read book about autoimmune disease. ...

Babymilo

•7 years ago

10 Replies

Cooling feet spray or lotion - EM?

Was just reading my Avon catalogue - they have advertised both a cooling foot spray as well as a lotion. Has anyone tried anything like this before? Worth a...

Was just reading my Avon catalogue - they have advertised both a cooling foot sp...

bengali

•7 years ago

6 Replies

uctd or b12

Hi everyone I was at the rummie on Thursday not the usual one I have uctd, an d other health probs and I have been having probs with muscles in my legs and...

Hi everyone I was at the rummie on Thursday not the usual one I have uctd, an d...

Lucieb01

•7 years ago

6 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for April 2017

Could it be Lupus?

New kid on the block

Numb gums and loose teeth feeling!

Utter waste of time...

VSL#3

Feeling really anxious now

Unable to be treated for Lupus

What do these mean (got the results for my blood (ana, etc) today

Small moments of happiness :)

Vertigo and sudden falls not at the same time

West Midlands Cake Sale for World Lupus Day

Starting with ciclosporine drops

Lupus & Alcohol

Burning scalp😝😝😝

Pip??

My son has chicken pox

Steroids - a necessary evil??

Lupus and Chronic Sinisutis

Lung function test what can I expect?

Point of view from the USA, from both a Lupus patient and GP (I'm them)

Resources

Symptoms

Hydroxychloroquine - nightmares?

Gym ??

Holiday vaccinations.

No Rituxan for me

Do i need a diet?

Cortisol hormone and DHEA treatment for lupus

Cooling feet spray or lotion - EM?

uctd or b12

Search posts

Pinned Posts

Latest poll

Did you experience more frequent and/or severe lupus flares during the hot summer 2018 compared to summer 2017? (Please explain in comments)

Topics

Archive