Hello everyone I'm new here, lots of questions! I had a punch biopsy that confirmed subacute cutaneous lupus, I was told this was a good thing and I'm lucky my bloods don't show full lupus??
They said it will only affect my skin, I'm extremely photosensitive! but I don't get why I'm so poorly all the time? Swollen joints, tummy troubles, hair loss, dry eyes, severe tiredness, chest pain with dizziness and very breathless just to name a few, I'm not feeling 'lucky' at all? Bloods are relatively normal other than always very low vit D, very weak ANA, and positive D -dimer? Told to basically keep out of the sun and run along by my rheumatologist, but I'm not functioning as a regular human most days lol