For those that remember my story from last year and all the doors that have been slammed on my face, I am finally, finally! getting some progress with my journey.
I changed GPs this Feb and I am so glad I did!
So far this year....
I have seen a rhuemy twice, the dermatologist at the University of Alberta Lupus clinic and will be seeing the neurologist in July/August, and go for exploratory surgery for cervical cancer.
doc at the hospital started to give me injections on my head (but had to stop as I passed out lol), then put me on Plaquinel (however you spell it). Finally some relief!!!!
Just came back from Rhuemy and it is entirely confirmed I do NOT have SALE...yay! But I have mixed connective tissue. But that's OK.
At least I know what I have and that I have a treatment plan and a bunch of doctors who are here to help me and not ignore me!
2013: Discoid Lupus
2016: Pernicious Anemia
2017: Fibromyalgia and MCTD
I know one this post may sound weird but pop pop fizz fizz oh what a relive it is to know I am finally getting diagnosed and help is on its way
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Lara4228
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Thank you dear! Not to offend anybody, but you and Misty have helped me tremendously on guiding me in the right direction for figuring out my symptoms and Avenue of what to seek (in terms of of docs and questions and methods to use to get where I am today). I don't mean to belittle others who have helped me along my journey, in essence EVERYONE has helped and I am hugely appreciative, immensely.
It seems everyday I am growing weaker, not stronger, both in body and mind. I am fortunate to have my fiance support and handle my health gingerly rather than questionably.
He too appreciates this forum (from what I tell him surrounding my experience) and all the support, information and woes we share together.
I'm not going to lie...I'm worn down. You and him are all I have and now a set of docs who finally take my complaints to some degree of interest.
Thank you!
Now....let's tackle my cancer scare! (not really scared....just always on the back of my, Kinda like Willie Nelson ....You are always on my mind
I am so pleased to read you are getting help now you have a diagnosis. You must be so relieved, your battling is over and it sounds like you have a good team of medics on your side!. Worth so much!. Do hope Hydroxy works well for you. Keep us posted. X
Oh a question! about the Plaquinel I'm taking....does anyone have a side effect to it where you feel like little bugs are crawling all over you, just enough to make you itch?
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