Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for April 2017

CHRONIC PAIN MANAGEMENT PATIENT'S ARE FINDING OUT THE COLD HARD TRUTH WHEN WE ATTEMPT TO LIVE LIFE WITH SOME NORMALCY ::

Is the CHANGES IN THE LAWS GOVERNING THE PRESRIBING OF MEDICATIONS WHICH ARE INCLUDED IN THE "US CONTROLLED SUBSTANCE ACT" and The TIGHTER RULES AND...

Is the CHANGES IN THE LAWS GOVERNING THE PRESRIBING OF MEDICATIONS WHICH ARE INC...

Denali101

•7 years ago

3 Replies

Struggling Lupie Looking for Friends

Hello, Yes I am from the USA, no I do not like it at the moment but it is what it is. I just started a job that after one shift I had to tell them that I...

Hello, Yes I am from the USA, no I do not like it at the moment but it is what i...

LifeAsALupie

•7 years ago

16 Replies

Heart attacks and lupus?

Has anyone heard of a connection between lupus and someone having a heart attack? Could lupus have caused this?

Has anyone heard of a connection between lupus and someone having a heart attack...

Hidden

•7 years ago

16 Replies

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MCTD Newbie - any advice about Methotrexate / PIP / PaH appreciated :-)

Hello - Newbie here! I have a recent diagnosis of mctd, with muscle inflammation, severe raynauds and hand stiffness, pulmonary hypertention and palpitations,...

Hello - Newbie here! I have a recent diagnosis of mctd, with muscle inflammation...

Hidden

•7 years ago

14 Replies

Rheumatologist recommendations Bexley (London/Kent)

Hi, I found out today that my amazing rheumatologist is moving back home to Spain in June. Am absolutely gutted as she is brilliant. If anyone has any...

Hi, I found out today that my amazing rheumatologist is moving back home to Spai...

Bee1london

•7 years ago

3 Replies

DHEA treatment for lupus, anyone ever experienced this?

I just got my blood tested. My cortisol level is normal, but my DHEA is low. I got 36, the standard is 65-90. Has anyone ever experienced dhea treatment?...

I just got my blood tested. My cortisol level is normal, but my DHEA is low. I g...

Babymilo

•7 years ago

3 Replies

Treatment

Hi just to let you all know I had treatment last Thursday for my skin. I had it by infusion it took nearly 6 hours. It was rituximab. My next treatment will...

Hi just to let you all know I had treatment last Thursday for my skin. I had it ...

djsema

•7 years ago

1 Reply

Living with Lupus

My name is bummy. Mother of 4. Three girls and a boy. Every morning to play fast on lupus before I get caught by this monster. For the past 6 years it has...

My name is bummy. Mother of 4. Three girls and a boy. Every morning to play fast...

BUMMY1

•7 years ago

4 Replies

Pain management programme

Well, here we are starting the 2nd week of a 3 week pain management programme. To be honest, I was full of doubt when I started. I said, " I have pain, my...

Well, here we are starting the 2nd week of a 3 week pain management programme. ...

Georgie-girl

•7 years ago

38 Replies

Butterfly rash?

Hey everyone, so apparently I don't have lupus - I have all the markers bar one but can't remember what it is now - ena's or something? That was the only...

Hey everyone, so apparently I don't have lupus - I have all the markers bar one ...

Leemaree44

•7 years ago

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I'm so tired of being tired and in pain!!!!

So for the last 3 months I have been dealing with sever pain throughout my body that feels like I've been in a boxing match and have muscle soreness all over...

So for the last 3 months I have been dealing with sever pain throughout my body ...

mskeki

•7 years ago

18 Replies

Help

Ana high so done dsdna test 10000 crithrdia I think strong positive c3 c4 very low under liver speaclist autoimmune hepatitis xx what does all this mean as...

Ana high so done dsdna test 10000 crithrdia I think strong positive c3 c4 very l...

Marie1980x

•7 years ago

10 Replies

intro

hi I am harry and I suffer from quite a lot of pains so if anyone can help it would be much apprieciated

hi I am harry and I suffer from quite a lot of pains so if anyone can help it wo...

HARRYTHEFISH1

•7 years ago

4 Replies

morphine patches

Anyone know where I can get some morphine patches

HARRYTHEFISH1

•7 years ago

15 Replies

Bit of luck

My Aunty said the other day when she finds the log book I can have her old car which is on my drive ! I think this have given me a bit more motivation to keep...

My Aunty said the other day when she finds the log book I can have her old car w...

LouLamb

•7 years ago

8 Replies

Methotrexate and Azathioprine effective or not?

Hi all, I have been following posts, but not making any recently. I was diagnosed with subacute cutaneous lupus over two years ago. I referred to a doctor...

Hi all, I have been following posts, but not making any recently. I was diagnos...

maggielee

•7 years ago

9 Replies

Whale neck

Woke up with this. What the ???? My husband said you just slept on your blanket and it left a mark. I dont think so. I did push myself all week working out,...

Woke up with this. What the ???? My husband said you just slept on your blanket ...

Natura

•7 years ago

10 Replies

Reaction to hydroxychloroquine

Just been to out of hours as I've been feeling unwell and I'm now covered in a rash and she said I've had a reaction to the hydroxychloroquine, has anyone else...

Just been to out of hours as I've been feeling unwell and I'm now covered in a r...

Jensherg11

•7 years ago

2 Replies

Feeling down

Hi im a 47 year old female. For the past 3 weeks i have been experiencing widespread pain a lot of pain in the ribcage area and a low grade fever. Have been to...

Hi im a 47 year old female. For the past 3 weeks i have been experiencing widesp...

Dooters

•7 years ago

8 Replies

anyone else get "invisible" butterfly rashes??

i get normal rashes; butterfly, or around my mouther etc, but i wondered how common it is t get the *sensation* of a rash, but no visible symptoms. i get a...

i get normal rashes; butterfly, or around my mouther etc, but i wondered how com...

sherbertsherbert

•7 years ago

8 Replies

Admitted to hospital

Hi all sorry not been on for a while, been in hospital and still here! can I ask if anyone has had any problems with Mycophenolate mofetil (MMF) please? Thank...

Hi all sorry not been on for a while, been in hospital and still here! can I ask...

LSurtees

•7 years ago

15 Replies

Can't sleep!

I had my knee aspirated what is now yesterday afternoon, and was given a steroid injection into the joint. It's now 04:00 and I am wide awake but exhausted....

I had my knee aspirated what is now yesterday afternoon, and was given a steroid...

Rubylu

•7 years ago

18 Replies

Possible diagnosis of something ??

Hello , Just joined up and hoping for some advice . I've been struggling on and off with lots of varied ailments , complaints and illnesses for yonks and...

Hello , Just joined up and hoping for some advice . I've been struggling on and...

Cas23

•7 years ago

6 Replies

Ok, just having a bad day

Hi, I'm not one for emotional outbursts but it's all getting too much, I will apologise in advance I started having breathing difficulties and feeling pretty...

Hi, I'm not one for emotional outbursts but it's all getting too much, I will ap...

Anyac81

•7 years ago

11 Replies

Tongue pain

Hi everyone, a quick weird question: Do any of you suffer with pain in the tongue that radiates to lower teeth and jaw and sometimes throat? Mine comes...

Hi everyone, a quick weird question: Do any of you suffer with pain in the tongu...

Purpletop

•7 years ago

4 Replies

9th Driving Lesson

Had a lesson after work today. Went on a sort of dual carriage way thing where you go 70. I don't even like doing 40 lol . So that was something a bit...

Had a lesson after work today. Went on a sort of dual carriage way thing where y...

LouLamb

•7 years ago

10 Replies

Owe, just owe!

Well, after several interventions my rheumie suggested yesterday that I go in today to have my knee sorted. The rheumie nurses were brilliant at responding to...

Well, after several interventions my rheumie suggested yesterday that I go in to...

Rubylu

•7 years ago

6 Replies

Owe, just owe!

Well, after several interventions my rheumie suggested yesterday that I go in today to have my knee sorted. The rheumie nurses were brilliant at responding to...

Well, after several interventions my rheumie suggested yesterday that I go in to...

Rubylu

•7 years ago

3 Replies

Lung Progress

It's almost exactly a year since I was diagnosed with UCTD and interstitial lung disease and started on Hydroxycholoroquine and prednisilone. Its hasn't been...

It's almost exactly a year since I was diagnosed with UCTD and interstitial lung...

whisperit

•7 years ago

27 Replies

Looking after my sleep pattern

I don't sleep well due to pain in my feet and hands, I don't worry about it too much, as I'm retired and can usually have a quiet day after a bad night. I...

I don't sleep well due to pain in my feet and hands, I don't worry about it too ...

creaky

•7 years ago

18 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for April 2017

CHRONIC PAIN MANAGEMENT PATIENT'S ARE FINDING OUT THE COLD HARD TRUTH WHEN WE ATTEMPT TO LIVE LIFE WITH SOME NORMALCY ::

Struggling Lupie Looking for Friends

Heart attacks and lupus?

MCTD Newbie - any advice about Methotrexate / PIP / PaH appreciated :-)

Rheumatologist recommendations Bexley (London/Kent)

DHEA treatment for lupus, anyone ever experienced this?

Treatment

Living with Lupus

Pain management programme

Butterfly rash?

I'm so tired of being tired and in pain!!!!

Help

intro

morphine patches

Bit of luck

Methotrexate and Azathioprine effective or not?

Whale neck

Reaction to hydroxychloroquine

Feeling down

anyone else get "invisible" butterfly rashes??

Admitted to hospital

Can't sleep!

Possible diagnosis of something ??

Ok, just having a bad day

Tongue pain

9th Driving Lesson

Owe, just owe!

Owe, just owe!

Lung Progress

Looking after my sleep pattern

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