Hello - Newbie here!
I have a recent diagnosis of mctd, with muscle inflammation, severe raynauds and hand stiffness, pulmonary hypertention and palpitations, and have been quite ill recently... with a ten day stay in hopsital for severe odema.
I had a follow up with my consultant today and have finally been told i'm well enough to start taking the Methotrexate, which i'm nervous but happy about.
I've been told it will take about 3-4 months to really work, and that I probably won't get back to work until at least August or September.
I'm also still on a high dose of steroids - 40mg daily.
So, my questions for you lovely people are:
Anyone else out there with mctd? I would love to hear from you!
How has anyone else got on with Methotrexate? I'm aware of some of the issues and don't want to pre-empt them, but i am a little nervous.
Steroids - Same really - i see to be okay on them, but am a little worried about long term usage although i'm told this will be reduced in time.
I'm now on SSP at work - this is not much money!! Has anyone managed to claim PIP sucessfully or am i kidding myself??
Does anyone else have PAH or Heart failure?? I have an appt at Papworth on Friday but i feel anxious about long term heart medications....
Thanks in advance!