Hi, I'm not one for emotional outbursts but it's all getting too much, I will apologise in advance
I started having breathing difficulties and feeling pretty poorly with it on 8th march, seen my doctor three times so far, because of dizziness and not being able to breath, fell down the stairs and fractured my toe and badly bruised my arm, collapsed a second time in my lounge, my 10 year old had to call someone to help and watch my 3 year old on the second time my gp did a finger prick test called a d-dimer, it came up positive and she was convinced I had a PE , sent to hospital, chest x ray, vq scan all clear, still positive blood test for PE signs though.. but they sent me home and said maybe it's a auto immune thing and wait to see your rheumatologis! I don't see him until May 16th, still feel so ill
can't make it up the stairs in one go, it's not asthma, pumps don't help it at all, no infection etc but I couldn't even stand and cook my family's dinner today, I had to sit down, the sensation is a blocked/heavy feeling deep in my chest with dizziness and shortness of breath, pretty serious and scary **** to be honest and I just feel ill, no other way to put it. Is there anything to do with lupus/autoimmune issue that could be causing this that a chest X-ray/scan won't show? Sorry to ramble, I just feel like my OT is the only person that really seems to want to help but it's not her area really, shouldn't my doctor be helping me be able to breath?!? Rather than 'oh well you don't have a blood clot we can see so run along and get on with it!' I want to be well enough to take my kids out, to the park even at least and I can't, I'm only 35 and feeling about 85, sorry rant over for now, just think something is definitely being missed, SCLE doesn't cause all this that I know of? x