Finally started tablet: Tonight I decided to... - LUPUS UK

LUPUS UK

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Finally started tablet

LouLamb profile image
19 Replies

Tonight I decided to finally start the hydroxy . It's only 1 tablet a day .

I was really worried about my eye sight . The only thing that is 100 % correct for me is my eye sight .

If I get any problems I'll stop it straight away , lets see if it works then .

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LouLamb profile image
LouLamb
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19 Replies
weathervane profile image
weathervane

Do get your eyes checked every year 🌸

LouLamb profile image
LouLamb in reply to weathervane

I've got to make appointment soon for my yearly check

Chapter profile image
Chapter

LouLamb,

Just wanted to remind you that Hydroxy is not going to work overnight, can take several months before you can appreciate the improvements. I just don't want you to give up on it too soon because of your concern about your eyes.

Chapter

LouLamb profile image
LouLamb in reply to Chapter

I have problems with tablets weather painkillers or meds . After about a week of taking a tablet I start to feel very sick in the mornings and that makes me not want to eat .

Chapter profile image
Chapter in reply to LouLamb

I always take my Hydroxy after eating my breakfast. I have always been a breakfaster, but having to take pill is my excuse everyday no matter where we are, lol.

LouLamb profile image
LouLamb in reply to Chapter

I don't eat breakfast . I go out so early eating food at half 6 is the morning makes me feel sick . lol can't win

Chapter profile image
Chapter in reply to LouLamb

Well, breakfast is the first meal of the day, just take your your pill when ever that is.

Paul_Howard profile image
Paul_HowardPartnerLUPUS UK in reply to Chapter

Alternatively a glass of milk can sometimes be sufficient.

LouLamb profile image
LouLamb in reply to Paul_Howard

I use to take my other tablets with milk . Made me feel sick and I went off milk

CRYSTAL11 profile image
CRYSTAL11

I am the same with taking anything. All the pills make me feel so rough. I am currently trying to increase my hydroxy I take 1 at night at the moment as they make me sleep. Tried to take whole pill but kept sleeping all day. I am now increasing it slowly. I have cut the pill into quarters and take 1and a 1/4 each night. Hope this works do I can take two at night eventually 😘 Good luck with taking them 😘

Rubylu profile image
Rubylu

There's a great lecture on YouTube by Dr Stephen Soloway on Lupus, and there is a very reassuring section on hydroxochloroquine and eyes in it it that help.

misty14 profile image
misty14

Hi loulamb

Good luck for taking Hydroxy. Sounds like your starting on the lowest dose so hopefully you won't have any problems!. Hope it helps you. X

Nikki246 profile image
Nikki246

I wasn't allowed to start the hydroxychloroquine until I had been for an eye test. When I had my eyes tested I was told you need to be on quite a high dose before they get really worried about it affecting the eyes. I'm on 2 a day which I take at night with my dinner and all my other pills. I take one set of tablets am and a different lot at night, morning lot can be taken without food and evening lot have to be taken with food.

Wendy39 profile image
Wendy39

How are you getting on? I take my tablet with a small glass of milk after breakfast. The hydroxy took a year to really work for me, very slow! But I think I'd been flaring the whole of 2013 and really needed more help to shift that than just 2 x 200mg hydroxy! But hindsight is a wonderful thing. Hydroxy made my tummy rumbly for a few weeks, noisey gurgles etc but that did settle down. Good luck. X

LouLamb profile image
LouLamb in reply to Wendy39

Today will be only the 4th day I've taken . I woke up today in terrible pain every where though

Wendy39 profile image
Wendy39 in reply to LouLamb

Worse than normal?

LouLamb profile image
LouLamb in reply to Wendy39

Haven't been this bad since before I had a diagnosis

Wendy39 profile image
Wendy39 in reply to LouLamb

Can you see your GP or do you have a Rheumy Nurse or Rheumy Help Line telephone number? X

LouLamb profile image
LouLamb in reply to Wendy39

Nah . It'll be fine

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