I've got a copy of my letter from my Rheumy to my GP which confirms SLE and a weak positive for myosotis. Is it normal to have both?
I'm worried as to how this could affect my future and especially my muscle strength as I already struggle getting up the stairs and thought this was my extreme fatigue but now think it could be more serious.
Does anyone have any kind words of advice? I know it sound extreme but I knew someone when I was younger who ended up in a wheel chair! Also my nurse did bloods Thursday and asked how my hair was as another patient wears wigs as she's lost all her hair.
I'm seeing my Rheumy again in a couple of weeks and I'm going to ask some straight questions as I would rather know and prepare myself than be in the dark not knowing how bad it could get x