My daughter has recently been diagnosed as having discoid lupus and has symptoms on her scalp.
I have had an initial consultation with a local doctor and am now in the system to see a doctor at st thomas (nick wilkinson), I posted on here a month ago and got some excellent advice, actually the only advice i have had so far! fingers crossed we will get to see somebody soon.
Anyway, we were given steroid pills for her which helped reduce the red swollen lumps on her head... I think, we are not taking the steroid pills anymore but my daughter is now developing new sore swollen head lumps, does anyone know if this is whats called a flare and also should we just wait this out or do we need to re nag someone and get her back on steroids (as this seemed to keep it at bay)
Other question is this normal with discoid, dose it come and go, or does it arrive (as in the form of swollen sore bald lumps, and then stay?) lots of questions and nobody to answer... yet.
any help would be great.
thanks so much so far.