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LUPUS UK

32,145 members • 28,486 posts

All posts for April 2016

Feeling nervous

So I'm off to see the rheumatologist this afternoon. This is my first visit in 3 years. 3 years ago I was admitted onto a medical ward, because I was having a...

So I'm off to see the rheumatologist this afternoon. This is my first visit in 3...

Naomi82

•8 years ago

4 Replies

I'd be grateful for thoughts on the sun

I went on a family skiing holiday last week and because legs aren't really up to skiing, I sat in the sunshine a bit. I was covered in suncream and since I...

I went on a family skiing holiday last week and because legs aren't really up to...

puffyface

•8 years ago

6 Replies

Advice

Morning lovely people. I have been on aziathoprine for 4 weeks and am on hydroxy. Indometacin and prednisone. The last few days I have been suffering from...

Morning lovely people. I have been on aziathoprine for 4 weeks and am on hydroxy...

Neiluk75

•8 years ago

1 Reply

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Ms

Want to work . Did until someone jealous wrote to dept work pensions that I was working and getting DLA. They called me in staying can't work and get DLA so...

Want to work . Did until someone jealous wrote to dept work pensions that I was...

Kata12345678

•8 years ago

6 Replies

Finally

Finally my GP is giving me a referral to a rheumy. Unfortunately I have to wait till June just to be seen. But it's one step closer to getting help. So...

Finally my GP is giving me a referral to a rheumy. Unfortunately I have to wait...

Ratana21

•8 years ago

3 Replies

Some relief at once, finally didn't go into remission so mornings are puking and pain.

I can get up and take my medications after 2 hours I feel alive again !After a couple hours I can make plans go places.Its much better .I'm glad my doctor...

I can get up and take my medications after 2 hours I feel alive again !After a c...

Julietsmombless2015

•8 years ago

1 Reply

Creative Lupies!

Well, I am really hoping this works, Misty...here goes, my crochet project! X

Musicteach

•8 years ago

21 Replies

Any advice?

Hello everyone. I was diagnosed with pneumonia 2 and 1/2 months ago. It won't respond to antibiotics including a stay in hospital where I was treated with a...

Hello everyone. I was diagnosed with pneumonia 2 and 1/2 months ago. It won't re...

Karenjp

•8 years ago

4 Replies

Some my medication increased to the amount I need to accomplish anything during this flare up.I feel god that i accomplished things.

I normally am in too much pain to really clean well and do a lot in 1 day like laundry dishes grocery shopping and taking care of my 11 month old baby girl.My...

I normally am in too much pain to really clean well and do a lot in 1 day like l...

Julietsmombless2015

•8 years ago

20 Replies

Menopause and flares update

Thank you to all those who gave me your experiences on the menopause and flares. I had posted that being peri menopausal I was experiencing more flares and...

Thank you to all those who gave me your experiences on the menopause and flares....

Hidden

•8 years ago

7 Replies

a bit confused.

So on the saturday, I ended up with really bad restless leg syndrome to the point where my brain couldn't consternate on anything. It kept trying to remind me...

So on the saturday, I ended up with really bad restless leg syndrome to the poin...

seanto

•8 years ago

3 Replies

Here's one I made earlier 2.

Hello everyone You were all so complimentary at my card making , gave me such a boost thank you. Here is one with a butterfly that was requested. I so agree...

Hello everyone You were all so complimentary at my card making , gave me such a ...

misty14

•8 years ago

20 Replies

Hydroxychloroquine

Hi, ive only been taking Hydroxychloroquine for a week - my Dr thinks i have a connective tissue disorder and because i have severe me/cfs as well (cant...

Hi, ive only been taking Hydroxychloroquine for a week - my Dr thinks i have a c...

Kate16

•8 years ago

21 Replies

Back again..

Hi, Haven't posted for a bit. But I've ended up back here. Just been referred to a rheumatologist by a neurologist. Suggestion of lupus again since symptoms...

Hi, Haven't posted for a bit. But I've ended up back here. Just been referred to...

trueman

•8 years ago

2 Replies

The funny side of lupus #16

Forgive me, my lupus friends, for I have sinned.......it has been a few days since my last post due to having enough of the world and the people within it and...

Forgive me, my lupus friends, for I have sinned.......it has been a few days sin...

amandalilley

•8 years ago

5 Replies

I sketch not from dreams but rather from my reality..My escape from lupus ~ <3 ~ art..

I do not even know what i'm drawing until I'm done..LOL BRAIN FOG IS SO REAL. I completely just leave my mind for that hour or so.Think about nothing and just...

I do not even know what i'm drawing until I'm done..LOL BRAIN FOG IS SO REAL. I ...

Julietsmombless2015

•8 years ago

11 Replies

ANA positive?

A little confused about my ANA test. Result says positive. Flag for abnormal. Reference interval - negative? Does tgis mean it's positive? BC my dr didn't...

A little confused about my ANA test. Result says positive. Flag for abnormal. ...

Ratana21

•8 years ago

3 Replies

Medication

Hello, I have lupus n I have stop taking my medication. Do you all know what might happen.

Hello, I have lupus n I have stop taking my medication. Do you all know what mi...

Jo_25

•8 years ago

5 Replies

How long was your initial appointment with Lupus specialist?

Hi gang. Been cogitating about visit to first Lupus specialist.My symptoms, as you know, have been ignored for some time though I have been diagnosed with...

Hi gang. Been cogitating about visit to first Lupus specialist.My symptoms, as y...

Footygirl

•9 years ago

15 Replies

ms

I have been diagnosed with osteoporosis and offered denusobab. Has anyone any experience of this drug please?

I have been diagnosed with osteoporosis and offered denusobab. Has anyone any ex...

osteoporoticlucy

•9 years ago

6 Replies

...nevermind I forgot what I wanted to type.....

Great day lupus peeps.I hope you have a lower amount of pain, that is we all know there is no good days.Unless our flare up goes into remission..Good news for...

Great day lupus peeps.I hope you have a lower amount of pain, that is we all kno...

Julietsmombless2015

•9 years ago

3 Replies

What Happens ?

Hi All :D On the 13th April I have an appointment with the Rheumy nurse I think its to help with the fatigue (I've just been diagnosed with UCTD) I have no...

Hi All :D On the 13th April I have an appointment with the Rheumy nurse I think...

Bangoraye

•9 years ago

1 Reply

Help

Hi everyone About 10 days ago I started to itch all over body with random spots then found I was very unsettled then5 days ago could not get warm and went...

Hi everyone About 10 days ago I started to itch all over body with random spots...

Kimmi56

•9 years ago

1 Reply

Adrenal deficiency/endocrinologist appointment advice

Hi folks Firstly - thank you all. I'm not (yet) diagnosed with lupus but my GP and I are pretty convinced that's what's going on. I've found the posts so...

Hi folks Firstly - thank you all. I'm not (yet) diagnosed with lupus but my GP a...

Polly2Cats

•9 years ago

19 Replies

uti kidneys

hi for over a month now ive been feeling really unwell (tried slight headache) i was told i had a uti and give 7 day course of Trimethoprim , i still feel...

hi for over a month now ive been feeling really unwell (tried slight headache) i...

jazzanne

•9 years ago

40 Replies

uti / kidneys

hi for over a month now ive been feeling really unwell (tried slight headache) i was told i had a uti and give 7 day course of Trimethoprim , i still feel...

hi for over a month now ive been feeling really unwell (tried slight headache) i...

jazzanne

•9 years ago

2 Replies

Muscle wasting hands and feet, please help!

Dear fellow lupies(alike), Like you know I have since 2 years a diagnosis of UCTD (undifferentiated connective tissue disease). My rheumatologist prescribed...

Dear fellow lupies(alike), Like you know I have since 2 years a diagnosis of UCT...

Patricia2015

•9 years ago

25 Replies

PIP medical consultation

Hi all,it's been a while had a rough few months.This morning I have received an apt to see a medical professional for my PIP claim .this is all very new to me...

Hi all,it's been a while had a rough few months.This morning I have received an ...

tinkslupus

•9 years ago

4 Replies

Myocarditis anyone?

Hi all, I've been receiving positive and negative results for Lupus but from my symptoms and flares I'm fairly convinced it is. Anyway, my question is has...

Hi all, I've been receiving positive and negative results for Lupus but from my ...

Kimbobaggins81

•9 years ago

6 Replies

What do you think?

Has anyone had this rash on them?

Lisamarie43

•9 years ago

22 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for April 2016

Feeling nervous

I'd be grateful for thoughts on the sun

Advice

Ms

Finally

Some relief at once, finally didn't go into remission so mornings are puking and pain.

Creative Lupies!

Any advice?

Some my medication increased to the amount I need to accomplish anything during this flare up.I feel god that i accomplished things.

Menopause and flares update

a bit confused.

Here's one I made earlier 2.

Hydroxychloroquine

Back again..

The funny side of lupus #16

I sketch not from dreams but rather from my reality..My escape from lupus ~ <3 ~ art..

ANA positive?

Medication

How long was your initial appointment with Lupus specialist?

ms

...nevermind I forgot what I wanted to type.....

What Happens ?

Help

Adrenal deficiency/endocrinologist appointment advice

uti kidneys

uti / kidneys

Muscle wasting hands and feet, please help!

PIP medical consultation

Myocarditis anyone?

What do you think?

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