What Happens ?

[Bangoraye]

Hi All

On the 13th April I have an appointment with the Rheumy nurse I think its to help with the fatigue (I've just been diagnosed with UCTD) I have no idea what to expect any advice on what I should expect from the appointment would  be appreciated

thanks

Mel x

[EOLHPC]

Hello bangoraye

I think this link gives some of the best advice for patients having their first appts...and my feeling is that this info applies to any immune dysfunction condition whether lupus or UCTD or whatever...you could follow the advice in this link when prepping for virtually any of your ongoing appts including those with the clinic nurse about more specific probs like fatigue...just adapt the focus of your preparation to suit the priority of the appt you're having...but whatever the appt priority, you still do well to be prepared to talk about your overall condition because of the systemic, multisystem nature of lupus: no symptoms occur in isolation

This info is on  the Lupus Foundation of America website...but its advice fits with my experience at my first lupus clinic appt in the uk, and all my subsequent appts over the past 5-6 years

lupus.org/answers/entry/pre...

I hope this link helps you

Am sure you'll get more great advice here

Please let us know how you get on

🍀🍀🍀🍀 coco