Back again..

[trueman]

Hi,

Haven't posted for a bit. But I've ended up back here. Just been referred to a rheumatologist by a neurologist. Suggestion of lupus again since symptoms are numerous and now experiencing weird rashes. 

My situation since last post a while ago..

Previously diagnosed peripheral nerve hyper excitability.

Diagnosed trigemula neuralgia due to blood vessel on nerve.

Recently suggested diagnosis of functional dissociative neurological disorder by neurologist.

Been referred for tilt table suspicion of POTS.

These rashes though are a bit odd. I noticed the consultant write down livedo recticulus. The other rash is an insanely itchy red scabby blistery and bruising ish rash on my lower leg (which I've had before and took ages to go away - used a steroidal cream which just took edge of it).

Also still experiencing this 'flush red' across cheeks, neck and lower neck/chest.

New symptom amongst the many  (as well as the rashes) has been extreme neck and collar bone pain on breathing deeply. Excruciating pain that has almost sent me to A&E. It comes in bouts and lasts about 2/3hrs then fades. But still niggles. Still also getting wheeze randomly throughout chest and throat areas every day. Been referred for a chest X-ray again. 

So that's me back for a bit if you all don't mind. My journey is still ongoing.. 

If anyone can let me know more about these rashes that would be great. Also that curve ball 'collar bone neck pain'. Not sure I've noticed that on here as a symptom..

Thank you. Hope you are all having a good day today.

[Paul_Howard Partner LUPUS UK]

Hi trueman,

I hope you get on well when you see the rheumatologist and they are able to help with a diagnosis. Do you have an appointment yet?

We have a booklet about skin involvement in lupus which you may find helpful. You can view and download it from our website at lupusuk.org.uk/wp-content/u...

[trueman in reply to Paul_Howard]

Thank you Paul!