Firstly - thank you all. I'm not (yet) diagnosed with lupus but my GP and I are pretty convinced that's what's going on. I've found the posts so helpful. I feel less alone and can make sense of some of what's happening because of your posts.
I've just been told by my GP that my "adrenal glands are just about knackered" her words! Her words - I find her frankness great. I have an endocrinology appointment coming up but my local trust just use clinical team rather than specialists. Any advice prior to my appointment - I have a feeling that many of you will know much more than the clinicians.
Best wishes to you all