Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for September 2015

Problems getting my breathe

I am getting very short of breathe, I am asthmatic but normally OK, but also have a lot of pleghm, I have a few things happening such as RA, Lupus and Fibro....

I am getting very short of breathe, I am asthmatic but normally OK, but also hav...

Iona467

•9 years ago

11 Replies

Positive then negative ANA

Hi, has anyone else had a positive Ana then a negative Ana ?! My regular dr did blood work an said I had a positive Ana and they were positive I had lupus sle...

Hi, has anyone else had a positive Ana then a negative Ana ?! My regular dr did ...

1TeiaMarie

•9 years ago

9 Replies

I am so confused. Diarrhea and stomach pain return.

I was diagnosed with Sjogren, some doctors say I have vasculitis, on occasion the doctor diagnosed me with APS, the hematologist say i have Raynaud's...

I was diagnosed with Sjogren, some doctors say I have vasculitis, on occasion th...

clapa80

•9 years ago

2 Replies

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What do I do now?

Hi all I saw Dr Sangle months ago in place of my usual consultant Prof Khamashta...(.I already know I have APS as this is why I saw Prof Khamashta a few years...

Hi all I saw Dr Sangle months ago in place of my usual consultant Prof Khamashta...

jp83

•9 years ago

9 Replies

Cutaneous lupus

I've had lupus maybe 6 years or so but only properly diagnosed 14 months and have been on PlaquNil 12 months now. It has kept the rashes and outbreaks at bay...

I've had lupus maybe 6 years or so but only properly diagnosed 14 months and hav...

23889

•9 years ago

5 Replies

Still waiting for diagnosis

Hi, had my 1st appointment with rheumatologist last week, I have positive ANA, fatigue, painful hands, feet, joints, nausea, headaches, the list goes on, I...

Hi, had my 1st appointment with rheumatologist last week, I have positive ANA, f...

Sarah777

•9 years ago

7 Replies

Hiprex (methenamine - oral, Mandelamine, UrexHexamethylenetetramine): anyone?

My consultant urologist tells me hiprex is our fall-back treatment re the way we're managing the chronic issues involved in my various chronic urological/renal...

My consultant urologist tells me hiprex is our fall-back treatment re the way we...

Barnclown

•9 years ago

9 Replies

Pilocarpine (salagen): update

Hello all 👋👋👋. 8 months ago, I was being screened at the metabolic bone unit for IV bisphosphonate treatment. The rheumatologist was interested in my...

Hello all 👋👋👋. 8 months ago, I was being screened at the metabolic bone unit...

Barnclown

•9 years ago

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Confused and fed up

This takes a lot for my to post here as I'm not much of a talker about problems, I'll try keep this brief. I'm 23 and nearly 3 years ago presented with a rash...

This takes a lot for my to post here as I'm not much of a talker about problems,...

Charleyloopylu

•9 years ago

7 Replies

Horrendous premenstrual flares anyone?

I have a diagnosis of undifferentiated connective tissue disease - likely SLE. Generally my symptoms of joint pain, fatigue, mouth ulcers are so much better on...

I have a diagnosis of undifferentiated connective tissue disease - likely SLE. G...

Asarahjohnson

•9 years ago

6 Replies

Advice on using Azathioprine

Hi everyone, Can anyone give me any advice on their experience using Azathioprine? Saw my consultant today who has now decided to start me on 50mg and I...

Hi everyone, Can anyone give me any advice on their experience using Azathiopri...

kitkat74

•9 years ago

18 Replies

LDN success!

Just wanted to let you know - after 3 months taking LDN I'm feeling really great!! I've even moved house and not had a flare up!! It's amazing. I get the odd...

Just wanted to let you know - after 3 months taking LDN I'm feeling really great...

Maya23

•9 years ago

17 Replies

Rosacea or a Lupus Rash?!

Hey lovely people- I'm still waiting to see the new rheumatologist after a not so successful visit to the last one! This time I have been keeping a diary of...

Hey lovely people- I'm still waiting to see the new rheumatologist after a not s...

freedom84

•9 years ago

4 Replies

Daughter's Facial Rash - Update

Hi all. We had our 2nd apointment today with the paediatric dermatologist, which was a joint review with other doctors. Isla's bloods were normal but the Dr...

Hi all. We had our 2nd apointment today with the paediatric dermatologist, which...

Daisy_flower83

•9 years ago

18 Replies

Vitamins and supplements

Hi everyone, haven't posted on here very much but when I have I've had some really good help and advice so...I thought I would ask another question. Does...

Hi everyone, haven't posted on here very much but when I have I've had some real...

Maggie46

•9 years ago

8 Replies

Flu Jab

Hello all, Hope all is well? When I last went for my lung function test I was told by the doctor that I should consider having the flu jab. I am looking into...

Hello all, Hope all is well? When I last went for my lung function test I was ...

Lil-Miss

•9 years ago

22 Replies

Jo

Hi evry1.. its 1st time ive ever wrote or really discussed my illness.. ive had dle for nearly 14-15yrs! Feels like foreva! I eventually found out afta about...

Hi evry1.. its 1st time ive ever wrote or really discussed my illness.. ive had ...

caterlink

•9 years ago

1 Reply

So far Raynaud's resting tachycardia chronic pancreatitis and positive ana homogenous.

Any ideas as not diagnosed with lupus but lupus syndrome mentioned.

Circles

•9 years ago

3 Replies

Prolonged QT on ecg ?

Hi again all, Just wondering if anybody else with Lupus shows a slightly prolonged QT on ecg and if so has your lupus consultant or gp taken it seriously or...

Hi again all, Just wondering if anybody else with Lupus shows a slightly prolon...

littleeffie

•9 years ago

7 Replies

Methotrexate & Prednisone Side-effects?:

Hello, I am taking methotrexate and prednisone, my doses are about what most of you list that you are on: Methotrexate 15.5 mg weekly, 6 tablets of 2.5 mg...

Hello, I am taking methotrexate and prednisone, my doses are about what most of ...

Hidden

•9 years ago

8 Replies

Mycophenolate

As i have a strong history of macular degeneration i have been advised to stop hydroxychloroquine and try Mycophenolate . Anybody else use it and do the...

As i have a strong history of macular degeneration i have been advised to stop ...

chandlermandy

•9 years ago

2 Replies

Going around in circles but feeling a bit more normal now on plaqeunil.

Just back from holiday feet and ankles are swollen all week could it be the heat?

Just back from holiday feet and ankles are swollen all week could it be the heat...

Circles

•9 years ago

3 Replies

PTSD with autoimmune disease in family

I have PTSD and I have for the last year been having really weird symptoms, chronic ear infections treated with antihistamines and antibiotics. It still...

I have PTSD and I have for the last year been having really weird symptoms, c...

Jjd421

•9 years ago

5 Replies

Recent rheumatology appointment

Hi I've been suffering for years with painful joints and muscles extreme tiredness never felt well. Had blood tests in 2003 which were positive for ANA and...

Hi I've been suffering for years with painful joints and muscles extreme tiredne...

Leecylou

•9 years ago

7 Replies

Advice needed: Going back to NHS after going private.

Hi guys I've been going to my local LUPUS outpatient clinic since I was first diagnosed three years ago. I was diagnosed with pericarditis that resulted in...

Hi guys I've been going to my local LUPUS outpatient clinic since I was first d...

N1994

•9 years ago

10 Replies

Rheumatology at Milton Keynes

Anyone any experience of rheumatology department at Milton Keynes Hospital - good or bad?

Anyone any experience of rheumatology department at Milton Keynes Hospital - goo...

sarahsch

•9 years ago

2 Replies

Really need some answers :(

Hey everyone- sorry if this seems like a long post. The past few years I have not been feeling well- fatigue, joint pains, couple of miscarriages etc. however...

Hey everyone- sorry if this seems like a long post. The past few years I have no...

freedom84

•9 years ago

9 Replies

FLU JAB

I have sle and I always feel unwell for about 3 weeks after having my flu jab. Is this a normal reaction?

I have sle and I always feel unwell for about 3 weeks after having my flu jab. ...

flossy1

•9 years ago

6 Replies

Better Jobs for SLE

I was just diagnose with SLE. I work over 60 hours a work and my schedule varys. Im a city bus driver and the stress of my job causes my symptoms to flare. I...

I was just diagnose with SLE. I work over 60 hours a work and my schedule varys....

nea29

•9 years ago

8 Replies

Flare up & fed up

Hi I've not had a good day been off work since june had a meeting with manager & hr dept. They said that they want me to see occupational health which is fine...

Hi I've not had a good day been off work since june had a meeting with manager &...

charmaineholmes

•9 years ago

13 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for September 2015

Problems getting my breathe

Positive then negative ANA

I am so confused. Diarrhea and stomach pain return.

What do I do now?

Cutaneous lupus

Still waiting for diagnosis

Hiprex (methenamine - oral, Mandelamine, UrexHexamethylenetetramine): anyone?

Pilocarpine (salagen): update

Confused and fed up

Horrendous premenstrual flares anyone?

Advice on using Azathioprine

LDN success!

Rosacea or a Lupus Rash?!

Daughter's Facial Rash - Update

Vitamins and supplements

Flu Jab

Jo

So far Raynaud's resting tachycardia chronic pancreatitis and positive ana homogenous.

Prolonged QT on ecg ?

Methotrexate & Prednisone Side-effects?:

Mycophenolate

Going around in circles but feeling a bit more normal now on plaqeunil.

PTSD with autoimmune disease in family

Recent rheumatology appointment

Advice needed: Going back to NHS after going private.

Rheumatology at Milton Keynes

Really need some answers :(

FLU JAB

Better Jobs for SLE

Flare up & fed up

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