Hi guys, hope you are all well
I need some advice as I am getting the serious run around! Better explain.
I have been having problems with breathlessness for over 6 months. I have had 5 different courses of antibiotics and 4 courses of steroids, an inhaler changed as I have had asthma since a child. All of this hasn't improved the breathlessness. I have had 2 X-rays 2 months apart which both came back abnormal due to possible chest infection - hence the meds. The Rheumatologist thought it could be the Methotrexate so told me to stop taking it (even though I hadn't been taking it for over 4 months due to all the treatment and she knew this) until told otherwise. Was sent for a Pulmonary Function Test - and the technician said that my breathing was obstructive. The Rheumy said it's not the Methotrexate, restart and that it is asthma related ???? What kind of answer is that? Asthma related in what way? To what degree? What did the test say? - no answer!
Went back to GP yesterday as still having really bad breathlessness, it is making everything and anything impossible and is seriously making me more exhausted than usual (didn't think that was possible). Told GP that this has to be more than just my asthma - I have had asthma since I was 4 - I am 36 and only been hospitalised twice due to asthma - it has never been this bad or for this long! GP agreed, but because Rheumy hasn't shared info from PFT have to undergo another breathing test called reversed spirometry. GP thinks it is possible that I have COPD as nothing is improving my breathing. If it is COPD I know that as an heavy ex-smoker it is possible (quit 18 months ago after smoking for 18 years), I was breathless then but no where as bad and decided to quit because of my health and my family.
Spoke to Rheumy Nurse today who agreed that it must be something more than asthma as it has been going on too long. And then was told there is nothing they can do and it is not their problem!
I am getting seriously fed up. It seems I am going around in circles, not getting any answers and more importantly I can't cope with this breathlessness - it's making me feel really ill. Is it really so hard for them to communicate and try to give me any clue as to what it is? Fed up of being sent for test after test, with little or no answers, I am NOT a guinea pig lol.
I have just had enough! I can't keep going on like this. The breathlessness is affecting every part of my life and I just want some help to understand what is causing it.
If anyone has been in the same situation or knows about COPD any advice would be great fully appreciated.
Sorry for the rant guys x
Lupie hugs and well wishes to all