Hello all: I had that question come down the phone the other day from one of my oldest, best friends who is more like a brother (& his wife is like a sister). I just paused, thinking: even he doesn't get it...after all these decades & all my illness.😖
So, I said to him:
come on, you know that I'm 62 and have an infant onset incurable progressively debilitating chronic multisystem relapsing & remitting autoimmune condition, which is more or less in pharmaceutical remission some of the time, which NHS treatment is helping but even so this is essentially palliative care (of course he didn't say a word after that, poor guy...I felt really mean, so changed onto a cheery subject..it's not easy for them, is it?)
Since that conversation, I've been jotting down as many of these sort of exasperating comments as I can remember: 'one liner questions & statements' friends & family have made & just keep making...no matter how much they know about me & my health. My feeling is that a collection of these comments will be good: I can use it to practice making pithy replies!😆
So: Can you help me? I'd be very glad of any of these sort of 'one liner questions & comments' you're up for sharing here!
Another example in my listing:
"Oh, I thought you're in remission"
And if you have any really good "one liner replies" to share, please please do....I can use ALL the help I can get! You can tell from the reply I gave my poor friend, above, that I need something short I can actually remember and that doesn't seem so mean...although I do like that good old reply:
I do not look sick, and you do not look stupid. Looks can be deceiving