Posts - LUPUS UK | HealthUnlocked

LUPUS UK

32,072 members • 28,393 posts

All posts for November 2014

Share your experiences of the Expert Patient Programme for our blog

For November and December we would like people with lupus to share their experiences of attending an Expert Patient Programme -...

For November and December we would like people with lupus to share their experie...

Paul_Howard

Partner•10 years ago

Be the first to reply

Infections

Hi im just interested to hear how other peoples GP's deal with Infections. I have recently had two different infections the first resulted in me been admitted...

Hi im just interested to hear how other peoples GP's deal with Infections. I hav...

LULU85

•10 years ago

5 Replies

North East Lupus Support Group

Hi I have Lupus & I know I can't be the only one in my area eg County Durham. Is there anyone interested in setting up a support group in the north east of...

Hi I have Lupus & I know I can't be the only one in my area eg County Durham. Is...

QueenV

•10 years ago

11 Replies

Want to take advantage of all our features? Just log in!

Earn money for LUPUS UK and yourself with this research study

***Applications for this study are now closed. Thank you to everybody that took part in the screening.*** Ipsos Healthcare is working with Cello Health...

***Applications for this study are now closed. Thank you to everybody that took ...

Paul_Howard

Partner•10 years ago

11 Replies

Pip Assessment Report Received

Hey Every one Please call DWP and ask them to send you a copy of the report that was made during your Personal Independence Payment (PIP) assessment even if...

Hey Every one Please call DWP and ask them to send you a copy of the report t...

wotshernameagain

•10 years ago

4 Replies

Dermatomyositis anyone?

I've seen my rheumatologist recently and mentioned that I've been having some face swelling that doesn't seem to go away. I also showed him pics of redness on...

I've seen my rheumatologist recently and mentioned that I've been having some fa...

Purpletop

•10 years ago

4 Replies

Does a low crp and esr mean that my lupus is in remission despite symptoms to suggest that it isn't? Should I be looking at anything else?

Hi Been feeling unwell for 2 years now after having suffered an adrenal crash 18 months ago. My symptoms have been wide and debilitating on the road to...

Hi Been feeling unwell for 2 years now after having suffered an adrenal crash 18...

Chablis

•10 years ago

2 Replies

Flu vaccine?

Am I supposed to get a flu jab? GP is nice but clueless. Louise Coote clinic not helping me despite my lupus positive skin biopsy, blood tests showing anti Ros...

Am I supposed to get a flu jab? GP is nice but clueless. Louise Coote clinic not...

Roromatic

•10 years ago

8 Replies

Methotrexate

Hi everyone, I was shocked to hear I had to start on Methotrexate today. I know all the negatives but would like to know from other Lupies what your symptoms...

Hi everyone, I was shocked to hear I had to start on Methotrexate today. I know ...

friendly2013

•10 years ago

30 Replies

Lupus disappeared?

Hi all. I'm feeling totally confused. In 2012 I was diagnosed with Connective Tissue Disorder and Lupus sle. I have been having regular Steroid Injections and...

Hi all. I'm feeling totally confused. In 2012 I was diagnosed with Connective Ti...

dawsden

•10 years ago

7 Replies

Upper back pain with trouble catching breathe

Just wanted to share something today that I have just learned. Occassionally I have trouble breathing along with upper back pain. Thought it was arthritis from...

Just wanted to share something today that I have just learned. Occassionally I h...

Natura

•10 years ago

29 Replies

Uctd or shingles or what??

My first visit to a rheumatologist was prompted by achy hands. All tests were negative back in July 2013. Fast forward sept 2014, had more blood tests done...

My first visit to a rheumatologist was prompted by achy hands. All tests were n...

hperkins26

•10 years ago

Be the first to reply

Rituximab

Hi everyone. Haven't posted on here for a while. Found releif from symptoms for about 8 months taking mycophenolate. Reduced steroids down to 5mg and was...

Hi everyone. Haven't posted on here for a while. Found releif from symptoms for ...

joannebond360

•10 years ago

13 Replies

Wipe spots of blood after a wii

I dnt know if this should worry me but saturday night i went to have i wii and when i wiped myself i saw blood stain , i wiped again to make sure i was not...

I dnt know if this should worry me but saturday night i went to have i wii and w...

ijeasike

•10 years ago

4 Replies

Pyoderma Gangrenosum

Hi All Wondering if anyone with SLE has been diagnosed with Pyoderma Gangrenosum ? Just had appt with plastic surgeon in relation to leg ulcer that will not...

Hi All Wondering if anyone with SLE has been diagnosed with Pyoderma Gangrenosu...

Debbiemay

•10 years ago

Be the first to reply

Researchers seeking participants for painkiller survey

Researchers at the University of Derby are doing a survey to measure changes in painkiller use over time and investigate the role of factors such as pain...

Researchers at the University of Derby are doing a survey to measure changes in ...

Paul_Howard

Partner•10 years ago

2 Replies

Pain, pain and more pain

Hi all, I have not posted in a while but have logged on most days via my ipad to keep up to date with you all. I had my second sub acromial decompression with...

Hi all, I have not posted in a while but have logged on most days via my ipad to...

bestbuddy

•10 years ago

4 Replies

Another bad weekend

As everyone on here knows, one of the lovely afflictions that I carry with me is regular explosive abscesses. I have recently had a bit of a run of them,...

As everyone on here knows, one of the lovely afflictions that I carry with me is...

adrian_holland

•10 years ago

3 Replies

Is there different type of help in the UK...........

Hi, I'm from the States and I have SLE. I've had a stroke, I almost died from Pericarditis, 6 doctor's said it wasn't my heart and sent me home. Then the 7th...

Hi, I'm from the States and I have SLE. I've had a stroke, I almost died from Pe...

lupylulu

•10 years ago

8 Replies

Shingles & Postherpetic Neuraligia

Hi, I have SLE & have had Shingles for 4 wks now due to stress. Yesterday, I was told I have Postherpetic Neuralagia to add to my long list of conditions...

Hi, I have SLE & have had Shingles for 4 wks now due to stress. Yesterday, I was...

magSLE

•10 years ago

5 Replies

Pins and Needles anyone?

Have started to get pins and needles in my hands very frequently of late, at first I put this down to me doing a lot of decorating having just moved house and...

Have started to get pins and needles in my hands very frequently of late, at fir...

adrian_holland

•10 years ago

20 Replies

Pip Reconsideration – either really good or I have been given the wrong info

Hey guys I asked PIP for a reconsideration to my original award which I received in January 2014 at the urge of my Rhuemy. I was initially scared in case I...

Hey guys I asked PIP for a reconsideration to my original award which I rece...

wotshernameagain

•10 years ago

13 Replies

low bloods

hi can anyone advise me on whats good for low calcium. gone very low.

tracyxx

•10 years ago

3 Replies

electrolysis...

Has any one had experience of facial hair..is electrolysis safe with Lupus, I have asked my Lupus doctor and he tells me there are two types of treatment,...

Has any one had experience of facial hair..is electrolysis safe with Lupus, I ha...

strawberrylips

•10 years ago

6 Replies

Me again

Back to square one again una bad way change from asatriopin to cellcept mico) and of coarse a bal flare joints ok but chest pain out my shoulders and down my...

Back to square one again una bad way change from asatriopin to cellcept mico) an...

Limerick5

•10 years ago

2 Replies

Sleepless Nights

I'm awake (1.50am) because of itching, it's driving me crazy; I also have a burning sensation in my knees and my arms have a very heavy/achy sensation. It's...

I'm awake (1.50am) because of itching, it's driving me crazy; I also have a burn...

Gill_35

•10 years ago

14 Replies

Rivaroxaban

Hi, I have been injecting Fragmin since August this year and I get on well with them, however I am about to be swapped over to Rivaroxaban. I have just picked...

Hi, I have been injecting Fragmin since August this year and I get on well with ...

CalebJacob

•10 years ago

Be the first to reply

rashes

Hello was wondering if anyone knows any good moisturisers for dry flakey skin also ones that might help with rashes and itchyness

Hello was wondering if anyone knows any good moisturisers for dry flakey skin al...

Chloe-

•10 years ago

9 Replies

Has anybody tried the indian holistic approach

Hi all i resently spoke with a friend of mine who is also suffering 4rm lupus. She is in nigeria and gets her treatment when she goes to america. She told me...

Hi all i resently spoke with a friend of mine who is also suffering 4rm lupus. ...

ijeasike

•10 years ago

7 Replies

Kidney problems

Has anyone ever had very high potassium levels with CKD? I hace stage 3b, and take ramapril to keep blood pressure in kidneys table and a diuretic, but...

Has anyone ever had very high potassium levels with CKD? I hace stage 3b, and ta...

Luppykate

•10 years ago

1 Reply

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for November 2014

Share your experiences of the Expert Patient Programme for our blog

Infections

North East Lupus Support Group

Earn money for LUPUS UK and yourself with this research study

Pip Assessment Report Received

Dermatomyositis anyone?

Does a low crp and esr mean that my lupus is in remission despite symptoms to suggest that it isn't? Should I be looking at anything else?

Flu vaccine?

Methotrexate

Lupus disappeared?

Upper back pain with trouble catching breathe

Uctd or shingles or what??

Rituximab

Wipe spots of blood after a wii

Pyoderma Gangrenosum

Researchers seeking participants for painkiller survey

Pain, pain and more pain

Another bad weekend

Is there different type of help in the UK...........

Shingles & Postherpetic Neuraligia

Pins and Needles anyone?

Pip Reconsideration – either really good or I have been given the wrong info

low bloods

electrolysis...

Me again

Sleepless Nights

Rivaroxaban

rashes

Has anybody tried the indian holistic approach

Kidney problems

Search posts

Pinned Posts

Latest poll

Did you experience more frequent and/or severe lupus flares during the hot summer 2018 compared to summer 2017? (Please explain in comments)

Topics

Archive