Sleepless Nights

Hi there- when I itch, it's always at night. When I'm stressed, this can be so much worse. Vent away. I truly think only people dealing with the crazy symptoms of lupus understand how frustrating and sometimes defeating lupus is. Sip that wine and get a rest.

Hi Gill (and Roho). I'm a nocturnal itcher, too. If I've overdone it, I itch; if I'm stressed, I itch; if my period is near, I itch. It comes on once I start to relax and drift off into that drowsy, pre-sleep stage. Needless to say, that soon ends and I am bolt wide awake. Like you, a sleeping tablet is the only solution. You have my every sympathy!

Hi Gill and everyone else with itchy or aching skin,

I am allergic to both steroids and nickel. So needless to say I am very limited to what medication and creams I can use to avoid a flare up.

However, I recently read up about being allergic to nickel and discovered that very high levels of nickel can be found in food as well as jewellery.

Like you I have red and purple patches on my right foot, ankle and leg as well as other parts of my body and my right foot is also swollen.

I avoid high content nickel in food and massage Dermalex Repair Cream for Excema (steroid free) into my foot and other parts of my body to avoid new flare ups. So far this has worked quite well although the cream which I have to buy is pretty pricey.

In my opinion reading the feed-backs, I believe lupus is being used to cover a multitude of unrelated problems, especially when the doctor doesn't know how to deal with the problems in the first place.

Hi Gill and everyone else with itchy or aching skin,

I am allergic to both steroids and nickel. So needless to say I am very limited to what medication and creams I can use to avoid a flare up.

However, I recently read up about being allergic to nickel and discovered that very high levels of nickel can be found in food as well as jewellery.

Like you I have red and purple patches on my right foot, ankle and leg as well as other parts of my body and my right foot is also swollen.

I avoid high content nickel in food and massage Dermalex Repair Cream for Excema (steroid free) into my foot and other parts of my body to avoid new flare ups. So far this has worked quite well although the cream which I have to buy is pretty pricey.

In my opinion reading the feed-backs, I believe lupus is being used to cover a multitude of unrelated problems, especially when the doctor doesn't know how to deal with the problems in the first place.

Wow! Do you know that I had never put the night itches down to Lupus and I have suffered them for years! Especially the tops of my arms, thighs and shins, I can be scratching myself for hours some nights before I drop off. And then the worst if late at night, just like last night my back starts, I usually end up having to take a knife out to scratch myself with as the missus cares to much to be able to scratch anywhere near hard enough, and they don't make a back-scratcher anywhere near sturdy enough, trust me I have tried a few over the years.

Hi

I feel normal-ish again. I have had itching for years now. I also have dogs and with every exacerbation of the Itching they end up showered, and covered in all the anti flea and mite remedies going. I think their limit was the last time and it was a charcoal based shampoo. They didn't like the smell but psychologically I felt reassured.

It's not them though, I realise that. If I miss my certraline it gets worse as the day progresses and like everyone else I can't sleep at night. My scalp gets involved also and I cover my body and scalp in emulsifying solution just to calm it.

Does anyone come out in a hive like rash? It must be linked. I don't have a diagnosis just a list of symptoms including blood results but I know when I feel worse such as increased fatigue and pain in muscles or joints the itch often turns up.

As I say reading what people put on here makes you feel that your not mad. I've been scratching so much over the past few days and it so matched an increase in general symptoms. I too understand it can even stop a CFS sleeping. BUT WHY IS IT SO BAD AT NIGHT ?