Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for November 2014

A little guidance please

Have mild lupus for which i am prescibed hydroxychloroquine, started on two tablets and then got down to one, recently got the cold bug thats going around and...

Have mild lupus for which i am prescibed hydroxychloroquine, started on two tabl...

weg1

•9 years ago

11 Replies

Hep B vaccine?

Hi All, I've received a letter from my GP advising me to have an Hepatitis B vaccination as I had my spleen removed many years ago. However I also have SLE and...

Hi All, I've received a letter from my GP advising me to have an Hepatitis B vac...

Rockhopper

•9 years ago

2 Replies

New plan of action

Had a personal phone call from my new rheumatology doctor. Have decided I will start mycophenolate in December and get another steroid injection to get me...

Had a personal phone call from my new rheumatology doctor. Have decided I will ...

adrienneioannou

•9 years ago

9 Replies

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Positive notes

Well, had my first steroid injection in my knee this morning, and wow it has only taken a couple of hours to begin to have some effect, or is that just that...

Well, had my first steroid injection in my knee this morning, and wow it has onl...

adrian_holland

•9 years ago

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Intracranial Hypertension

Has anyone been diagnosed with this as a result of lupus, please? If so, what tests confirmed the diagnosis and who has done them? I've been having trouble...

Has anyone been diagnosed with this as a result of lupus, please? If so, what t...

Purpletop

•9 years ago

12 Replies

Pregancy

Hi everyone. Hope you're all feeling ok today. Well haven't been on here for a long time now. Feels like I just don't have time. But now I'm on maternity leave...

Hi everyone. Hope you're all feeling ok today. Well haven't been on here for a l...

Clairebear

•9 years ago

3 Replies

Sex and lupus

I was just recently diagnosed with lupus... I was feeling pretty good and had been for a week or so we had intercorse my husband and I the next morning I woke...

I was just recently diagnosed with lupus... I was feeling pretty good and had be...

Goosneysgirl

•9 years ago

3 Replies

Trying to stay calm

Hi Everyone, Hope you're all having a good day today :-) Well, after visiting the surgeon again last week it was decided to graft my leg to try and heal the...

Hi Everyone, Hope you're all having a good day today :-) Well, after visiting...

Debbiemay

•9 years ago

2 Replies

Rituximab question

Hi everyone. Have the appointment for my first and second dose of rituximab come through today for 9th and 23rd of December. 2 days before my birthday and two...

Hi everyone. Have the appointment for my first and second dose of rituximab come...

joannebond360

•9 years ago

9 Replies

Healing ways

The photo is intended to be my end of course piece from my photography course. It is meant to represent the fact that I always try to keep my demons bottled...

The photo is intended to be my end of course piece from my photography course. I...

adrian_holland

•9 years ago

3 Replies

Bugger

Just in the mood for a bellyache......sorry Rheumy review appointment that I have been waiting patiently for and due for Monday, has been put back again to...

Just in the mood for a bellyache......sorry Rheumy review appointment that I hav...

adrian_holland

•9 years ago

2 Replies

Have I got lupus or am I mad?!

I started with Migraines - 3 years ago & have since developed dizzy spells (to the point I ohysically tip), palpitations, poor circulation, high blood...

I started with Migraines - 3 years ago & have since developed dizzy spells (to t...

Xxbeafacexx

•9 years ago

8 Replies

Elbow and arm pain

Am wondering if this is lupus related or im losing my mind perhaps??! My left elbow has been hurting for weeks now. Have been ignoring it. How can i go to...

Am wondering if this is lupus related or im losing my mind perhaps??! My left el...

Hidden

•9 years ago

5 Replies

Lupus worse in winter?

Is your lupus worse in winter? I had my first bad flare in jan 2013 then next very bad one feb 2014. Now im starting to go downhill again, i just feel more...

Is your lupus worse in winter? I had my first bad flare in jan 2013 then next ve...

Hidden

•9 years ago

6 Replies

Nickel and Steroid Allergies

Hi Everyone, Thank you for your feedback regarding my allergies. To be honest, I think everyone should have their allergies checked out, as it's obvious to me...

Hi Everyone, Thank you for your feedback regarding my allergies. To be honest, ...

ripon1756

•9 years ago

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News & Views Magazine - Winter 2014 Edition - OUT NOW

The new edition of our News & Views magazine was sent out to all LUPUS UK members either yesterday or today, so if you are a member, it will be dropping...

The new edition of our News & Views magazine was sent out to all LUPUS UK member...

Paul_Howard

Partner•9 years ago

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hey

hey im new on this had some blood tests and they came back as weakly positive for RA and lupus could this mean ive got a chance of having both of them?

hey im new on this had some blood tests and they came back as weakly positive fo...

Hidden

•9 years ago

6 Replies

just been put on azathiaprine

Hi due to not being able to come off steriods, I have now been put on azathiaprine. Not too sure how I feel about this, but glad to be off the high dose...

Hi due to not being able to come off steriods, I have now been put on azathiapr...

tjperfick

•9 years ago

22 Replies

Redeployment

Hi all seen Prof today re results of x rays and bloods. Thankfully chest Ok but just getting over a chest infection. Bloods confirmed lupus flare. Today came...

Hi all seen Prof today re results of x rays and bloods. Thankfully chest Ok but ...

Lulabelle

•9 years ago

3 Replies

MRI Scan - T2 Hyperintense white matter lesions reported

My recent MRI Scan reported T2 Hyperintense white matter lesions in the frontal region. Anyone else have any experience of this finding, and willing to share...

My recent MRI Scan reported T2 Hyperintense white matter lesions in the frontal ...

LupusKaren

•9 years ago

2 Replies

AstraZeneca lupus drug produces positive results in trial

This has just been issued. http://news.yahoo.com/astrazeneca-lupus-drug-produces-positive-results-trial-120212029--finance.html

This has just been issued. http://news.yahoo.com/astrazeneca-lupus-drug-produce...

Nat1969

•9 years ago

2 Replies

Totally unsure !!

Hi lately I have been suffering a lot not sure if it's from my fibro or lupus.. Spent 2 weeks in hosp with my body taking full muscle spasms was very hard an...

Hi lately I have been suffering a lot not sure if it's from my fibro or lupus.. ...

Ruth_lderry

•9 years ago

1 Reply

Left side numbness

The left side of my face ( cheek) and my left leg and arm feel numb. Tingly aswell. It comes n goes but had it for few weeks now. have previously had this...

The left side of my face ( cheek) and my left leg and arm feel numb. Tingly aswe...

Hidden

•9 years ago

2 Replies

Blood work

Several of my blood test came back positive but the two that concern me most is: they found protein in my urine and I have connective tissue disease. Seems...

Several of my blood test came back positive but the two that concern me most is:...

randa_lupie

•9 years ago

3 Replies

Alcohol?

I seem to get hungover really quick, 2 glasses of wine n im slmost drunk and really suffer the next day. Im only on hydroxychlorine nothing else. Do u think...

I seem to get hungover really quick, 2 glasses of wine n im slmost drunk and rea...

Hidden

•9 years ago

6 Replies

Will I be put on meds for discoid lupus?

Hi everyone. Can anyone tell me what will happen now that I have been diagnosed with discoid lupus? I have a lot of mild symptoms of SLE but my ANA test was...

Hi everyone. Can anyone tell me what will happen now that I have been diagnosed ...

rad123

•9 years ago

9 Replies

pANCA test

Does anyone have a diagnosis of SLE despite having a negative pANCA test?

Lorraine44

•9 years ago

2 Replies

Chest Pain

Hey all! I'm an undiagnosed but almost positive SLE person ;) Lots of positive blood work and unwilling to listen Rheumys which I'm sure you've all dealt with....

Hey all! I'm an undiagnosed but almost positive SLE person ;) Lots of positive b...

CMP027

•9 years ago

5 Replies

Wrongly diagnosed

Hi, I was diagnosed with RA 6yrs ago and fibromyalgia 4yrs ago I also have bipolar I kept getting all these horrible feelings tingling and feeling so weak and...

Hi, I was diagnosed with RA 6yrs ago and fibromyalgia 4yrs ago I also have bipol...

Jammy13

•9 years ago

19 Replies

Travelling...

Hey there...just wondering has anyone on here gone travelling with having lupus and/or other conditions and what their experience would be in other countries...

Hey there...just wondering has anyone on here gone travelling with having lupus ...

Dandy_14

•9 years ago

12 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for November 2014

A little guidance please

Hep B vaccine?

New plan of action

Positive notes

Intracranial Hypertension

Pregancy

Sex and lupus

Trying to stay calm

Rituximab question

Healing ways

Bugger

Have I got lupus or am I mad?!

Elbow and arm pain

Lupus worse in winter?

Nickel and Steroid Allergies

News & Views Magazine - Winter 2014 Edition - OUT NOW

hey

just been put on azathiaprine

Redeployment

MRI Scan - T2 Hyperintense white matter lesions reported

AstraZeneca lupus drug produces positive results in trial

Totally unsure !!

Left side numbness

Blood work

Alcohol?

Will I be put on meds for discoid lupus?

pANCA test

Chest Pain

Wrongly diagnosed

Travelling...

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