Rituximab question: Hi everyone. Have the... - LUPUS UK

LUPUS UK

31,708 members28,077 posts

Rituximab question

joannebond360 profile image
9 Replies

Hi everyone. Have the appointment for my first and second dose of rituximab come through today for 9th and 23rd of December. 2 days before my birthday and two days before Christmas.

Just wanted to know if the medicine can wipe you out after infusion and if anyone has experienced this, worried I will be in bed in christmas day, got all the family coming!

Had infliximab a few years back and that used to wipe me out.

Thank you.

Jo

Written by
joannebond360 profile image
joannebond360
To view profiles and participate in discussions please or .
Read more about...
9 Replies
Martinf1 profile image
Martinf1

I Had my first two dose of rituximab months ago and did not get any side affects it seen to have My GPA (wg) stable a present

when i had 10 doses of cycophiatine over 6 months that did drag me down for a couple weeks

i am due next 3rd on 17th DEC (6 doses over 2year i am told)

goods luck

joannebond360 profile image
joannebond360 in reply to Martinf1

Hi. Thank you so much for your reply. Great to hear that you haven't had any side effects and that it's working for you! That's brilliant.

Was trying to hold out having it til the new year but been too unwell.

Jo

Butterflywings profile image
Butterflywings

Hi, I was a bit tired after mine the next day but otherwise ok. All the best x

joannebond360 profile image
joannebond360

Thanks butterflywings. That's great.

Jo

misty14 profile image
misty14

Hi Jo

Good luck for when you start Rituximab. Hope it works quickly and you feel better soon. X

joannebond360 profile image
joannebond360 in reply to misty14

Thank you so much misty14 :)

Jo x

NeeNaw profile image
NeeNaw

I had rituximab for the first time over 10 years ago - I had no ill effects whatsoever, sometimes you can develop a rash during the infusion, but if that is the case it will be stopped and antihistamines will be given. Good luck and with a bit of luck you'll have the best Christmas ever :)

joannebond360 profile image
joannebond360 in reply to NeeNaw

Thanks so much neenaw!

:)

Jo x

dzagotskillz profile image
dzagotskillz

I had rituximab 4 months ago and was fine. Nothing to worry about. Hope all goes well for you

You may also like...

Rituximab questions...

I had the first infusion yesterday & would be interested to hear other peoples experiences. The...

Questions about rituximab experience

after the first rituximab infusion? Did you have to take time off work/studying? How did you feel...

Rituximab

lol and I'm worried about how I'm going to after it and how it's all going to effect my family?!...

RITUXIMAB

there eveyone I am starting on Rituximab next week with my first infusion and I am a little...

Rituximab

returned and was pretty awful. I have been offered rituximab which is great but I am absolutely...