Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,925 members • 28,254 posts

All posts for June 2013

What is a lupus test?

I have noticed people saying that they have tested negative or positive for Lupus, and positive or negative ANA. What I understand is that a positive dsDNA...

I have noticed people saying that they have tested negative or positive for Lupu...

Chapter

•11 years ago

6 Replies

Inside of my mouth has turned yellow any advice would be grateful

I have been having back pain and bad stomach cramps a few days now also feeling very hot and tired, with a very bad headache on the right side of my head. I...

I have been having back pain and bad stomach cramps a few days now also feeling ...

luupysue

•11 years ago

13 Replies

Stress!!

Sorry for a many post but I'm so fed up. I've been flaring on and off since march, at the moment I'm trying to taper off steroids so know I'm quite...

Sorry for a many post but I'm so fed up. I've been flaring on and off since m...

Dumpypug

•11 years ago

6 Replies

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Lupus

My first lupus test came back positive also ANA positive. My latest lupus test was negative but ANA remains positive. Would the steroids I was on at the time...

My first lupus test came back positive also ANA positive. My latest lupus test ...

Lesi

•11 years ago

8 Replies

Is there a point of life anymore?

Im stuck in a place where depression is taking over and no one is doing anything to help me (i.e. doctor or rheumy) Day in day out I do nothing because im so...

Im stuck in a place where depression is taking over and no one is doing anything...

Danielle2419

•11 years ago

17 Replies

Spoon, spoon, where for art thou spoon

I'm starting to get frustrated with my symptoms piling themselves on top of me, i figured i was getting some control on them hence my lack of posting. But in...

I'm starting to get frustrated with my symptoms piling themselves on top of me, ...

Hidden

•11 years ago

5 Replies

A question for the ladies!

I'll apologise now, this is going to be long winded before I get to my question! I've been having a lot of problems with menstrual bleeding & my contraception....

I'll apologise now, this is going to be long winded before I get to my question!...

Nyc2012

•11 years ago

13 Replies

Baseline eye screen and plaquenil

I will be starting plaquenil next week. I understand that it is recommended that a baseline retinal screen is carried out before treatment starts. Is this...

I will be starting plaquenil next week. I understand that it is recommended that...

Hidden

•11 years ago

14 Replies

Has anyone been on Quinacrine? If so, any bad side affects?

Hi, I've been diagnosed with Lupus sense 1993 & I've been on placquinil sense with no real issues. Now I'm having a flare they want me to start taking...

Hi, I've been diagnosed with Lupus sense 1993 & I've been on placquinil sense wi...

Ceeceelove

•11 years ago

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Views on new medication

I've been laid off work now after 7yrs as a carer and nvq assesser as my SLE and other things have taken a turn for the worst and mainly affecting hands and...

I've been laid off work now after 7yrs as a carer and nvq assesser as my SLE and...

sezrill

•11 years ago

3 Replies

Please can anyone offer any advice on backpain ?

I can't stand this pain much longer. My lower back is agony and struggling to walk, sit or stand. I saw the rheumy who more or less said I just have to live...

I can't stand this pain much longer. My lower back is agony and struggling to wa...

lillyanne

•11 years ago

14 Replies

DLA

I applied for DLA as ive been treated for PMR since July 2012 but got turned down but my mobility is getting worse and now my last 3 blood tests have come back...

I applied for DLA as ive been treated for PMR since July 2012 but got turned dow...

steph1

•11 years ago

4 Replies

Night sweats & painful hands and feet

Hi everyone, I have started waking up through the night soaking in sweat but freezing cold. This started happening about 3-4 months ago and happens about...

Hi everyone, I have started waking up through the night soaking in sweat but ...

Cole24

•11 years ago

15 Replies

Ankle pain

Well I've had a bizarre thing happen. I was tidying my daughters toys on my knees when my ankle cluncked and felt like it needed to click back but wouldn't....

Well I've had a bizarre thing happen. I was tidying my daughters toys on my knee...

Lg1968

•11 years ago

4 Replies

Direst Coombs test positive for 3 months can said to be strong disease?

My direct Coombs test is still positive after 3 months. Most of others are back to normal. One doctor said direct Coombs test positive for 3 months mean my...

My direct Coombs test is still positive after 3 months. Most of others are back ...

Yangon

•11 years ago

2 Replies

Can c3 and c4 level be easier and quick to go back to normal

And after get to normal, can they become very low again in a short time?

Yangon

•11 years ago

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How can I know that my organ's attacked? If Diagnosed at early stage and treat - can I prevent the damage ?

If I m feeling well clinically , can it be possible that organ's inside is attacked ? If everything is good except for a bit hurt on hand where I got broke...

If I m feeling well clinically , can it be possible that organ's inside is attac...

Yangon

•11 years ago

2 Replies

Thanks lupus UK!

We received a lovely box of tricks today from yourselves. So much support in trying to raise money and awareness for lupus. My daughter is going to be proud to...

We received a lovely box of tricks today from yourselves. So much support in try...

purple-lou

•11 years ago

4 Replies

Dla waiting game...

I've been waiting over 3 months for a decision about my dla. They have written to my rheumatologist and my GP. Is this delay and requests from my doctors a...

I've been waiting over 3 months for a decision about my dla. They have written t...

purple-lou

•11 years ago

4 Replies

raging thirst

For the last 10 days or so i have had a raging thirst and a horrible taste in my mouth - nothing will shift it. last year I was also like this and left it and...

For the last 10 days or so i have had a raging thirst and a horrible taste in my...

tjperfick

•11 years ago

2 Replies

Four years and the fatigue still catches me out

Today is supposed to be a working from home day for me but I'm still in bed struggling to convince my body that it can get up. I have lots to do and time is...

Today is supposed to be a working from home day for me but I'm still in bed stru...

PoppyJaman

•11 years ago

5 Replies

JAW

Hi All just wondering if anyone else gets pain in there jaw, have been told its arthritis by a doctor then by another doctor that he had never heard of...

Hi All just wondering if anyone else gets pain in there jaw, have been told its ...

gazzasoens

•11 years ago

10 Replies

Lupus and having babies?

I would love to hear from any ladies who have lupus and have had babies (good or bad stories please). I have wanted to have another baby for 4 or 5 years now...

I would love to hear from any ladies who have lupus and have had babies (good or...

zebedee01

•11 years ago

7 Replies

lupus and eye pain???

Apart from the diverse symptoms of this evil disease ,im really struggling with my eyes,pain light sensitivity,vision disturbance ,eye test was normal at...

Apart from the diverse symptoms of this evil disease ,im really struggling with ...

brave

•11 years ago

26 Replies

All very new to me!

I have recently been diagnoised with Lupus & today started on treatment of a 2 year course of MMF, 6 months of steroids, 6 months of antibiotics & 6 months of...

I have recently been diagnoised with Lupus & today started on treatment of a 2 y...

scoops

•11 years ago

10 Replies

Anyone watch that last episode of frankie last night featuring the lovely SLE young woman who was very very poorly?

I watched it with my other half who was really keen. he went v quiet....clearly saw the similarities. OK, the lupus thing was only a tiny bit of the episode,...

I watched it with my other half who was really keen. he went v quiet....clearly...

Barnclown

•11 years ago

4 Replies

need help urgently

i am in the process of being tested for lupus, but today my toes are black and blue (have been for some time) but last night i started with this incredible...

i am in the process of being tested for lupus, but today my toes are black and b...

trace66

•11 years ago

10 Replies

BBC 1 Frankie

Hi last night on bbc1 was the last episode of Frankie, worth a watch on bbc I player. It involves a case on lupus and atos. Hope everybody is well x

Hi last night on bbc1 was the last episode of Frankie, worth a watch on bbc I pl...

bettie

•11 years ago

16 Replies

So scared :(

I have recently been diagnosed with lupus and I am so scared. I feel so depressed all the time, I can't stop thinking about dying :( I have tried to speak to...

I have recently been diagnosed with lupus and I am so scared. I feel so depresse...

zebedee01

•11 years ago

16 Replies

Anyone else struggle with the well meaning 'you look really well' comment?!

I just feel like the underlying message is 'you can't be that unwell because you don't look it'. Really struggling at the moment and just feel alone with this...

I just feel like the underlying message is 'you can't be that unwell because you...

Tinksie

•11 years ago

27 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for June 2013

What is a lupus test?

Inside of my mouth has turned yellow any advice would be grateful

Stress!!

Lupus

Is there a point of life anymore?

Spoon, spoon, where for art thou spoon

A question for the ladies!

Baseline eye screen and plaquenil

Has anyone been on Quinacrine? If so, any bad side affects?

Views on new medication

Please can anyone offer any advice on backpain ?

DLA

Night sweats & painful hands and feet

Ankle pain

Direst Coombs test positive for 3 months can said to be strong disease?

Can c3 and c4 level be easier and quick to go back to normal

How can I know that my organ's attacked? If Diagnosed at early stage and treat - can I prevent the damage ?

Thanks lupus UK!

Dla waiting game...

raging thirst

Four years and the fatigue still catches me out

JAW

Lupus and having babies?

lupus and eye pain???

All very new to me!

Anyone watch that last episode of frankie last night featuring the lovely SLE young woman who was very very poorly?

need help urgently

BBC 1 Frankie

So scared :(

Anyone else struggle with the well meaning 'you look really well' comment?!

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