Today is supposed to be a working from home day for me but I'm still in bed struggling to convince my body that it can get up. I have lots to do and time is flying by. Then I decided to visit this place as it always acts as a grounding experience reminding me that I have a serious condition and my body really can't get up and what I actually need is sleep.
If sleep is not in my gift then what I need is kindness to myself. A gentle voice encouraging and reassuring. It's so easy to step into reprimanding and feeling guilty that friends and family around you feel bad for 'wearing you out'. I don't want my friends to feel responsible for my fatigue I worry that it might make them think twice about visiting or inviting me out.
I'm smiling as I consider that so many days on and I am still thrown when fatigue hits. How easily fooled I am when I have a period of wellness.
Thank you for reading this and I hope it resonates with some of you out there and helps knowing that a positive attitude is imperative the occasional reality check is necessary too!
Ps. My partner is doing a parachute jump to raise awareness for lupus, please donate if you can. justgiving.com/jaan-madan1/