Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,937 members • 28,265 posts

All posts for June 2013

Does anyone have experience with Plaquenil and breastfeeding?

My son is just six weeks and i have not taken any of my meds since before he was born, now i am paying for it. I don't want to give up breastfeeding but i...

My son is just six weeks and i have not taken any of my meds since before he was...

mem334

•11 years ago

4 Replies

ROMANIA

LUPUSUL SI SUPRAVIETUIREA ESTE UN MOD DE VIATA FORTATA MINISTERUL SANATATII CONDAMNA LA MOARTE PE CEI CU O BOALA CRONICA CARE NU ISI PERMIT UN MINIM TRATAMENT...

LUPUSUL SI SUPRAVIETUIREA ESTE UN MOD DE VIATA FORTATA MINISTERUL SANATATII COND...

Hidden

•11 years ago

3 Replies

what is happening to me

cant understand my body at the minute . dread each day and what its going to bring . sorry if i am making people miserable but had a breakdown last night...

cant understand my body at the minute . dread each day and what its going to bri...

happyhoops

•11 years ago

5 Replies

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What is Sjogren's please

bigland

•11 years ago

8 Replies

Skin exfoliation

Some of you mentioned on this forum about skin exfoliation. Are you using dry exfoliation or body scrub products? And how often do you exfoliate? No...

Some of you mentioned on this forum about skin exfoliation. Are you using dry e...

Purpletop

•11 years ago

5 Replies

30 years of Lupus........

30 years ago I had what I thought was bad influenza. I went back to work but never really recovered. I was so fatigued that I had to lie down during the day at...

30 years ago I had what I thought was bad influenza. I went back to work but nev...

Angelman1

•11 years ago

16 Replies

I had a borderline positive ANA test 2 years ago, and Hep2 cells were borderline positive..and the dsDNA level was very low at about 5 units

.. Mid-December 2012 I had the test repeated through a neurologist (as I was getting numb toes) and the test came back as ANA positive...Hep2 cells...

.. Mid-December 2012 I had the test repeated through a neurologist (as I was get...

nannytutu

•11 years ago

1 Reply

Lupus research study seeking participants for telephone interviews Applications Now Closed

***Please note that they now have all the participants required and will not be accepting any more applications. Thank you.*** We've just...

***Please note that they now have all the participants required and will not be ...

Paul_Howard

Partner•11 years ago

6 Replies

Can I ask if someone has had a positive ANA, and a negative DSDNA but still been diagnosed with Lupus? I have speckled pattern 1:80 titre

Im blessed with pernicious anemia, kidney problems, Ive been diagnosed with rheumatoid arthritis, bruises so eaisily, sores that just wont heal, I have flares,...

Im blessed with pernicious anemia, kidney problems, Ive been diagnosed with rheu...

nancee

•11 years ago

3 Replies

esa dreading it

hi iv been ill for years i spent sevral years in wheel chair luckily im out of it most the time i suffer with alot of illnesses but reading on the net question...

hi iv been ill for years i spent sevral years in wheel chair luckily im out of i...

paul2667

•11 years ago

23 Replies

AntiCoagulation Europe (registered charity no 1090250) needs your help with our major new survey

AntiCoagulation Europe needs your help with our major new survey. Please help us by completing our major new survey on peoples experience of being diagnosed...

AntiCoagulation Europe needs your help with our major new survey. Please help ...

warfarin1

•11 years ago

Be the first to reply

Does anyone have any experience of rituximub? finally getting this in August, but do not want to be too hopeful.

quinoric, oral methrotrexate and subcutaneous methotrexate have not made any real impact and back on the steroids again.

quinoric, oral methrotrexate and subcutaneous methotrexate have not made any rea...

goingaroundthetwist

•11 years ago

14 Replies

Burning hands...??

Does anyone else have 'burning hands' My palms are absolutely burning, left one worse. Ive put it in cold water and it seems to have eased it. A couple of...

Does anyone else have 'burning hands' My palms are absolutely burning, left one ...

Hidden

•11 years ago

21 Replies

Cyst question again !!!!!!!!!!!!!! Please put my mind at rest !!!???

O.K I have a cyst on my right overy , 11cm by I think 12 and many of you put my mind at rest. Iwas told that it was fluid filled , but now I have received a...

O.K I have a cyst on my right overy , 11cm by I think 12 and many of you put my ...

larissa

•11 years ago

4 Replies

twitches/ tremors

does anyone have twitches/ spasms in there extremities? I had little muscle spasms previously which didn't bother me at all really, then developed full body...

does anyone have twitches/ spasms in there extremities? I had little muscle spa...

scoobydoo1

•11 years ago

16 Replies

How do I get hold of leaflets etc?

My daughter is trying to raise money and awareness for lupus at her school. She would love to have some official leaflets, posters etc. Anybody know how we...

My daughter is trying to raise money and awareness for lupus at her school. She ...

purple-lou

•11 years ago

5 Replies

im a little bit miffed

there was a women on daybreak the other day who was talking about obesity, she had lost about 10 stone (brill) she named some of the illnesses she had due to...

there was a women on daybreak the other day who was talking about obesity, she h...

auntyp

•11 years ago

13 Replies

Is anyone else taking myfortic or cellcept . I have a very bad case of sle, many organs involved

Lizlauren

•11 years ago

7 Replies

13yrs later.......

Just had my first Rhuemy appointment ! Only taken 13 years to get there! The last few months I've been on a serious mission to get to the bottom of my...

Just had my first Rhuemy appointment ! Only taken 13 years to get there! The la...

Lupdaloop

•11 years ago

6 Replies

Rhumatologist, why does it seem so many are getting it wrong.

the question is obviously in regards to Lupus. It seems so many rheumatologist either don't have the knowledge and experience or some are just down right rude...

the question is obviously in regards to Lupus. It seems so many rheumatologist e...

scoobydoo1

•11 years ago

19 Replies

How many others choose not to go the route of daily steroid use with multi organ lupus

Lizlauren

•11 years ago

5 Replies

Suggestions re: skin ulcers?

Just joined this board this evening! I was diagnosed with lupus in 1995. My spleen was removed in 1997 to treat ITP, and aside from a few minor flares, I've...

Just joined this board this evening! I was diagnosed with lupus in 1995. My sp...

ckb080

•11 years ago

3 Replies

life begins at 40!! Yeah right.

The old saying life begins at 40 is a load of old horse manure! I am now reaching the end of my forties and in this decade, I lost my job, got Lupus,...

The old saying life begins at 40 is a load of old horse manure! I am now reachin...

lillyanne

•11 years ago

20 Replies

Azathioprine

i was just wondering if anyone else was put on azathioprine besides the hydroxi and prednislone. I also have to have steriod injections has a top up and always...

i was just wondering if anyone else was put on azathioprine besides the hydroxi ...

Donnygirl

•11 years ago

11 Replies

Advice on power port

Can anyone tell me why my new power port is not working? it was put in 2 weeks ago my GP tried to access it this morning he managed to put heparin into it but...

Can anyone tell me why my new power port is not working? it was put in 2 weeks a...

rlupus

•11 years ago

2 Replies

Sun block on prescription - any good?

I am going to take keeping out of the sun more seriously now! and my pharmacist said get DVISAT on prescription. any experience of this? I cannot find it on...

I am going to take keeping out of the sun more seriously now! and my pharmacist ...

saranne

•11 years ago

18 Replies

Lupus & cardiac re-hab. Experiences anyone?

Following an MI in May, I've been really impressed with my cardiac care so far. After initial assessment have now been enrolled on to the local cardiac...

Following an MI in May, I've been really impressed with my cardiac care so far. ...

roobarb

•11 years ago

5 Replies

Dentist

Why is it every time I have work done at the dentist I end up with a abcess this is the 3rd tooth over 3 years, every summer I have had one, now back on...

Why is it every time I have work done at the dentist I end up with a abcess this...

lennox

•11 years ago

19 Replies

Preying on the vulnerable?

Like I supsect most people who are experiencing the symptoms we do and are faced with the prospect of a chronic disease, I have been doing lots of internet...

Like I supsect most people who are experiencing the symptoms we do and are faced...

Hidden

•11 years ago

11 Replies

Mycophenolate and infections

For those of you who are taking mycophenolate, did you have any increase in the number of infections you've suffered since you've taken this? What about the...

For those of you who are taking mycophenolate, did you have any increase in the ...

Purpletop

•11 years ago

19 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for June 2013

Does anyone have experience with Plaquenil and breastfeeding?

ROMANIA

what is happening to me

What is Sjogren's please

Skin exfoliation

30 years of Lupus........

I had a borderline positive ANA test 2 years ago, and Hep2 cells were borderline positive..and the dsDNA level was very low at about 5 units

Lupus research study seeking participants for telephone interviews Applications Now Closed

Can I ask if someone has had a positive ANA, and a negative DSDNA but still been diagnosed with Lupus? I have speckled pattern 1:80 titre

esa dreading it

AntiCoagulation Europe (registered charity no 1090250) needs your help with our major new survey

Does anyone have any experience of rituximub? finally getting this in August, but do not want to be too hopeful.

Burning hands...??

Cyst question again !!!!!!!!!!!!!! Please put my mind at rest !!!???

twitches/ tremors

How do I get hold of leaflets etc?

im a little bit miffed

Is anyone else taking myfortic or cellcept . I have a very bad case of sle, many organs involved

13yrs later.......

Rhumatologist, why does it seem so many are getting it wrong.

How many others choose not to go the route of daily steroid use with multi organ lupus

Suggestions re: skin ulcers?

life begins at 40!! Yeah right.

Azathioprine

Advice on power port

Sun block on prescription - any good?

Lupus & cardiac re-hab. Experiences anyone?

Dentist

Preying on the vulnerable?

Mycophenolate and infections

Search posts

Pinned Posts

Latest poll

Did you experience more frequent and/or severe lupus flares during the hot summer 2018 compared to summer 2017? (Please explain in comments)

Topics

Archive

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for June 2013

Does anyone have experience with Plaquenil and breastfeeding?

ROMANIA

what is happening to me

What is Sjogren's please

Skin exfoliation

30 years of Lupus........

I had a borderline positive ANA test 2 years ago, and Hep2 cells were borderline positive..and the dsDNA level was very low at about 5 units

Lupus research study seeking participants for telephone interviews ***Applications Now Closed***

Can I ask if someone has had a positive ANA, and a negative DSDNA but still been diagnosed with Lupus? I have speckled pattern 1:80 titre

esa dreading it

AntiCoagulation Europe (registered charity no 1090250) needs your help with our major new survey

Does anyone have any experience of rituximub? finally getting this in August, but do not want to be too hopeful.

Burning hands...??

Cyst question again !!!!!!!!!!!!!! Please put my mind at rest !!!???

twitches/ tremors

How do I get hold of leaflets etc?

im a little bit miffed

Is anyone else taking myfortic or cellcept . I have a very bad case of sle, many organs involved

13yrs later.......

Rhumatologist, why does it seem so many are getting it wrong.

How many others choose not to go the route of daily steroid use with multi organ lupus

Suggestions re: skin ulcers?

life begins at 40!! Yeah right.

Azathioprine

Advice on power port

Sun block on prescription - any good?

Lupus & cardiac re-hab. Experiences anyone?

Dentist

Preying on the vulnerable?

Mycophenolate and infections

Search posts

Pinned Posts

Latest poll

Did you experience more frequent and/or severe lupus flares during the hot summer 2018 compared to summer 2017? (Please explain in comments)

Topics

Archive

Lupus research study seeking participants for telephone interviews Applications Now Closed