I have recently been diagnoised with Lupus & today started on treatment of a 2 year course of MMF, 6 months of steroids, 6 months of antibiotics & 6 months of a vitamin D suppliment! Am finding the whole process quite scarey!
My diagnois came about when i had flu & my hands swelled up after numerous tests to discover why i was loosing protein in my water my consultant was convinced it was lupus & 3 weeks ago i underwent a kidney biopsy which confirmed lupus in my kidneys! I had never heard of this condition until i was told i had it!
Although people say i look well i get very tired & sometimes i feel i could sleep forever, my bones in my feet & fingers ache as do my legs! I will turn 40 in October & have gone from being on the go all day to having to slow right down! Which is not always easy when i have a 7 & 5 year old!
I would really appreciate any advice people have in coping with this illness.
Thank you for taking the time to read this : )