Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,854 members • 28,197 posts

All posts for May 2013

New Loopy!

Good morning. I have very recently been diagnosed with Lupus. Firstly I want to say what a great site this is, has made me feel much better and already...

Good morning. I have very recently been diagnosed with Lupus. Firstly I want to ...

Newloop

•11 years ago

5 Replies

Low ferritin - anyone else had it? And the issue of who monitors your bloods......

To put this into context, I have been complaining of extreme fatigue, dizziness and generally unwell for 7 months. I have been hospitalised twice for this...

To put this into context, I have been complaining of extreme fatigue, dizziness ...

Chablis

•11 years ago

3 Replies

chest tightness at night and breathlessness

Over the last couple of months I have had central chest tightness and breathlessness,If I'm honest I had tried to ignore it until I went for a walk with my...

Over the last couple of months I have had central chest tightness and breathless...

charlie007

•11 years ago

11 Replies

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On top of everything else, waiting for gallstone treatment

Awaiting results from first appointment with rhuematologist on Monday then was sent by GP for an emergency scan to find I have gallstones along with letter to...

Awaiting results from first appointment with rhuematologist on Monday then was s...

Carolha

•11 years ago

4 Replies

Hair Progress!!!

Hair is one typical symptom of lupus and one which any women with the diease find distressing it seemed to start for me after the diagnosis and so on for about...

Hair is one typical symptom of lupus and one which any women with the diease fin...

Danielle2419

•11 years ago

12 Replies

Strange episode,face looked like I was having a stroke.

Hi just thought I would explain on here something strange that happened to me a few weeks ago to see if any other lupus sufferers have had this or...

Hi just thought I would explain on here something strange that happened to me a ...

mum-two

•11 years ago

23 Replies

I'm annoyed!!

I am going for a tribunal for DLA this week and requested my med records to submit. I received them this morning and I am well and truly peed off. I have an...

I am going for a tribunal for DLA this week and requested my med records to subm...

lillyanne

•11 years ago

3 Replies

Triggers

Morning (afternoon!) loopies Haven't written for a while as going through a bad patch but have been wondering about triggers for flares. I am on...

Morning (afternoon!) loopies Haven't written for a while as going through a b...

Loopylooby

•11 years ago

8 Replies

Infections doctors conflicting and would love some advice

Hi everyone I haven't write a blog before but often read all others for support and advice. I'm currently in quite a bad flare and have been having hot sweats...

Hi everyone I haven't write a blog before but often read all others for support ...

Zoezoe752

•11 years ago

7 Replies

Is this usual for others treatment from gp without seeing you

Went for my blood check as I am on methotrexate said I felt unwell and thought I had a chest infection. The nurse did not check me out physically or listen to...

Went for my blood check as I am on methotrexate said I felt unwell and thought I...

witch2

•11 years ago

8 Replies

Lupus is hard going at the moment.

Hi everyone As you know from my previous blogs I have tried to treat my lupus with natural remedies and therapies due to having a terrible time with the drug...

Hi everyone As you know from my previous blogs I have tried to treat my lupus w...

Maya23

•11 years ago

21 Replies

Update On Rhuemy Appointment From Yesterday.

Well it doesnt seem that great news its ok but still abit worried. I seem to have a small amount of protein leaking from the kidney again, although in th...

Well it doesnt seem that great news its ok but still abit worried. I seem to hav...

Danielle2419

•11 years ago

5 Replies

oh for the power of prednisolone and praquenil

well started the meds yesterday and have never known anything like it.. managed to work on a project for nearly 10 hours, no brain fog and motivated to get it...

well started the meds yesterday and have never known anything like it.. managed ...

scoobydoo1

•11 years ago

24 Replies

Eye lnfection

Does anyone suffer eye infection.s a lot . And do u get hot on a nite and have a red itcy facem

Does anyone suffer eye infection.s a lot . And do u get hot on a nite and have a...

xangx

•11 years ago

2 Replies

anyone else with low vit d levels??

my vit d is very low,around 13 I think,carnt read doctors writing!! ive been put on meds for it,anyone elses ever been very low? for how long?

my vit d is very low,around 13 I think,carnt read doctors writing!! ive been put...

poodlegal

•11 years ago

9 Replies

Good news about DLA !

I received a letter today about DLA saying that I had been awarded higher mobility rate and middle rate care for 2 years initially. I'm over the moon about...

I received a letter today about DLA saying that I had been awarded higher mobili...

janekins

•11 years ago

8 Replies

Loving these...

Found these and thought they were really cute!...http://www.lupus.org.uk/shop/official-merchandise?product_id=28

Found these and thought they were really cute!...http://www.lupus.org.uk/shop/of...

steadilymovingforward

•11 years ago

2 Replies

is there any lupus meeting in liverpool ?

christinelouise

•11 years ago

4 Replies

Upcoming improvements to this site

Hi everyone. I just wanted to let you all know that we've got some exciting new changes on the way for this forum. Here is a video demonstration and...

Hi everyone. I just wanted to let you all know that we've got some exciting ...

Paul_Howard

Partner•11 years ago

4 Replies

Cathartic release!!!!

Hi everyone, Can I just say a heartfelt 'thank you' to all who post. Although this is a first blog, I've read a lot of your posts, support and advice. For...

Hi everyone, Can I just say a heartfelt 'thank you' to all who post. Although t...

lizzidrippin

•11 years ago

6 Replies

Malar rash ...or not?

Hi All, I am not yet diagnosed and due to see Rheumatologist in June. I am not really sure what constitutes a malar rash. My nose is a pink/red colour...

Hi All, I am not yet diagnosed and due to see Rheumatologist in June. I am ...

Hidden

•11 years ago

6 Replies

Hoping st thom can shed some light on the rashes and scars on my shins in time for summer at my appt on Monday, fingers crossed! :)

...haven't worn a skirt in amost a year!

steadilymovingforward

•11 years ago

2 Replies

I have been diagnosed with fybromyalgia. My lupus is in " remission" I was diagnosed with that in 1997. Anyone else in same boat?

talula

•11 years ago

6 Replies

THE LUPUS FITNESS DVD mentioned in a blog from Twist

GOOD MORNING YOU LOVELY LOT I have just read a blog from Twist mentioning a fitness dvd on sale from Lupus America and people also commenting that it costs...

GOOD MORNING YOU LOVELY LOT I have just read a blog from Twist mentioning a f...

MandieR

•11 years ago

16 Replies

Cold intolerance anyone?

Hi everyone, I am currently awaiting a diagnosis but have had cold intolerance for a while. I am like a lizard, I need warmth :) I don't sweat as much as...

Hi everyone, I am currently awaiting a diagnosis but have had cold intoleranc...

Clare1975

•11 years ago

6 Replies

The Right Moves for Lupus Fitness Program DVD

HI I found a link on a Lupus website that refers to this workout DVD for Lupus suffers done by an actual Lupus suffer who is/was a trained personal trainer....

HI I found a link on a Lupus website that refers to this workout DVD for Lupus s...

twist1

•11 years ago

8 Replies

ulnar nerve entrapment

Had my report back from my neurologist today and it said that I had ulnar nerve entrapment in my right arm. Ive been having pain and my little finger has...

Had my report back from my neurologist today and it said that I had ulnar nerve ...

lillyanne

•11 years ago

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Low Grade Body Fever

Hi there, Can anyone tell me if they also experience feeling that your body is always warm, especially to touch? I find that it gets worse at times, like now...

Hi there, Can anyone tell me if they also experience feeling that your body is a...

charz001

•11 years ago

7 Replies

Waiting to find out if I have Lupus

Hope you dont mind me joining you all. I have been sick for years with one thing or another.I have had one Dr tell me it was my age I am 57 this year.I use...

Hope you dont mind me joining you all. I have been sick for years with one th...

Dee4

•11 years ago

8 Replies

Aaaaaaarghhhh help so frustrating!

Hello everyone I just wanted to rant a little bit as I am getting so frustrated. After waiting almost a year to start hydroxychloroquine, and having now...

Hello everyone I just wanted to rant a little bit as I am getting so frustrat...

natal1a

•11 years ago

5 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for May 2013

New Loopy!

Low ferritin - anyone else had it? And the issue of who monitors your bloods......

chest tightness at night and breathlessness

On top of everything else, waiting for gallstone treatment

Hair Progress!!!

Strange episode,face looked like I was having a stroke.

I'm annoyed!!

Triggers

Infections doctors conflicting and would love some advice

Is this usual for others treatment from gp without seeing you

Lupus is hard going at the moment.

Update On Rhuemy Appointment From Yesterday.

oh for the power of prednisolone and praquenil

Eye lnfection

anyone else with low vit d levels??

Good news about DLA !

Loving these...

is there any lupus meeting in liverpool ?

Upcoming improvements to this site

Cathartic release!!!!

Malar rash ...or not?

Hoping st thom can shed some light on the rashes and scars on my shins in time for summer at my appt on Monday, fingers crossed! :)

I have been diagnosed with fybromyalgia. My lupus is in " remission" I was diagnosed with that in 1997. Anyone else in same boat?

THE LUPUS FITNESS DVD mentioned in a blog from Twist

Cold intolerance anyone?

The Right Moves for Lupus Fitness Program DVD

ulnar nerve entrapment

Low Grade Body Fever

Waiting to find out if I have Lupus

Aaaaaaarghhhh help so frustrating!

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