I just wanted to rant a little bit as I am getting so frustrated. After waiting almost a year to start hydroxychloroquine, and having now been on it for nearly three months, and finding it isnt really working, my doctors have now told me to stop it for three months and see how i go.
The thing i am finding really hard is the muscle pains and the awful fatigue. I have had to take today off work because i didnt sleep all that well and this morning my muscles just felt so weak. Even holding my phone up to my ear is painful, washing my hair in the shower is painful, walking up slight hills is painful because my muscles are so rubbish. I guess this is what makes me feel so tired and generally unwell. Does anyone know what i can do about this? I just would like more energy!
I always get fed up when I have to ake a day off work as I feel bad and I feel like I'm not managing well. Even things i enjoy doing, like seeing friends etc, i now dread, because i dont really enjoy things as much when im constantly tired.
If anyone has any advice at all id be so grateful x