Cold intolerance anyone?

[Clare1975]

Hi everyone,

I am currently awaiting a diagnosis but have had cold intolerance for a while. I am like a lizard, I need warmth I don't sweat as much as I used to (a good thing Just wondering if this is a symptom of Lupus amongst all the other things it can throw up?

Sending gentle hugs x

Clare x

[steadilymovingforward]

Hi Claire, do the tips of your fingers go numb and a bit blue/whiteish, or get a burning pain after the blood runs back?xx

[Clare1975]

Hi steadilymovingforward, not as such just really cold all over. My hands and feet are the first to get cold, I have kept an eye on the colour. The hands and feet get pale and tips are a bit pink and numb. No blues or whites just pale with pink tips.

How's your day been going for you?

Clare x

[steadilymovingforward]

Hi Clare!

My day's been ok...been suffering with fatigue so just fell asleep at my desk for the fourth time in the last few weeks but apart from that fine lol!....only for a few secs though!

How you doin?...it's s bit warner today here in Herts xx

[willow24]

hi clare,

i always moaning im cold and wear a vest tucked in knickers pretty much all yr round lol. my other half informs me i give off loadsa heat at night when i sleeping (he always warm), shame i cant store it and use it during day. my hands and feet especially cold but i dont have any blueness or pain either

[Clare1975]

Steadyilymovingforward your body is saying it needs sleep, have you been pushing yourself like we all do? Yes, it's been a sunny day on/off here in Yate (near big old Bristol). I have been going against the Lupus grain and been exposing myself to UV rays for the past 2 days to remind myself that I have a problem with it (sounds silly I know

Willow24, I can relate to the cold moan it comes from my husband as I push my cold feet against his warm legs at night

There are amazing people on this site which find ways of coping and helping to support one another, I think it's a safe place for us 'undiagnosed' to wave hello and chip in a little.

Sending hugs and love x

Clare x

[steadilymovingforward in reply to Clare1975]

Omg!...I totally do that clare1975!!! I do things that I know I shouldn't sometimes just to see if it definitely still affects me, especially if I haven't had a reaction in a while. Eg I usually use very very mild toiletries and hadn't had a reaction in a while (probably because I'd been sensible) but sometimes you can recover from certain ailments and I thought I'll try some perfumed stuff and see how it goes!...managed a few months before my skin fell off again!!!...sometimes I just want to be 'normal'!!

I have been pushing myself but only to do my usual routine. My last flare saw me unable to walk for about 2 years and it got pretty miserable sitting around doing nothing after a while!....I suppose I just keep going until my body stops me because even if I take it easy my body will stop me periodically anyway!....hoping doc on Monday will be able to tell me if vit d levels are rising xxx

Take care, chat soonxxx