Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,848 members • 28,191 posts

All posts for May 2013

Fed up with pain!!!!!!!!!!!!!!!!!!!& desperately need to vent my feelings!!!!!!!!!!!!!!!!!!!!

It's driving me insane, wake up PAIN, sit down PAIN, lay down PAIN!!!!!!!!!!!!! Oh my God when will this stop??? I'm feeling really aggressive and think that...

It's driving me insane, wake up PAIN, sit down PAIN, lay down PAIN!!!!!!!!!!!!! ...

beckybooboo

•11 years ago

6 Replies

Update on my Rheumy nurse appointment and put on 400mg of planq, to start.

Hi all thank you all for all your support these last few weeks, my rheumy nurse appointment went well she was very nice, they have started me on planquill is...

Hi all thank you all for all your support these last few weeks, my rheumy nurse ...

willowwag

•11 years ago

5 Replies

re not able to keepfood down

Thank you all for your kind messages of support this past few days its been nasty but things are geting better and am able to food down now though I still...

Thank you all for your kind messages of support this past few days its been nast...

wood

•11 years ago

3 Replies

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Prescribed prevabalin, anyone else with lupus taking these.

chorb

•11 years ago

5 Replies

confused.com??

So I went to see my rheumy yesterday and he spent a long time with me discussing all my symptoms and my latest flare up. He has now decided that I have...

So I went to see my rheumy yesterday and he spent a long time with me discussing...

Rachy24

•11 years ago

4 Replies

Thought for the day

Lupus problems are like air bubbles in wallpaper...you smoooth one out that's been annoying you in one place and another one pops up somewhere else!! Life...

Lupus problems are like air bubbles in wallpaper...you smoooth one out that's be...

steadilymovingforward

•11 years ago

10 Replies

Laugh for the day

Morning every one. Just reading some of the other this will make you laugh blogs. I was cleaning a house yesterday. This is the 4th time I have been there,...

Morning every one. Just reading some of the other this will make you laugh blogs...

lowicklady55

•11 years ago

3 Replies

BBC 1

I thought the interview Jane Dunnage gave on the BBC 1 this morning (Tuesday 14/05/13) about the problems Lupus patients have when using the NHS was brilliant!

I thought the interview Jane Dunnage gave on the BBC 1 this morning (Tuesday 14/...

schnauzersmudge

•11 years ago

16 Replies

Lupus, urticaria vasculitis

Hi, please help. I have urticaria vasculitis under arms, thighs and chest and also have melasma on my face. Has anyone suffered the same and what an i use to...

Hi, please help. I have urticaria vasculitis under arms, thighs and chest and al...

Pipido36

•11 years ago

2 Replies

Methotrexate???

I have been reading through other blogs about methotrexate, is it normal to be on 30mg of methotrexate for 1 year, compared to others this seems like a very...

I have been reading through other blogs about methotrexate, is it normal to be o...

March2012

•11 years ago

2 Replies

Lupus awareness day (10th May 2013)

I just thought I would share new great news as I did a funding raising day selling sausage, bacon, egg rolls tea coffee, cake stall and raffle tickets and the...

I just thought I would share new great news as I did a funding raising day selli...

sam289

•11 years ago

9 Replies

what to ask at first rhumy appointment?

Hi all,, need some advice as what to exactly ask at my first rhumy appointment tomorrow. my list so far 1. can you confirm my diagnosis?, 2 if no what the...

Hi all,, need some advice as what to exactly ask at my first rhumy appointment t...

scoobydoo1

•11 years ago

15 Replies

employment/self employment

Well, that's job number 1 out of the door. The caring was too much work for too little pay. I start a cleaning job today. I am a little confused though, as I...

Well, that's job number 1 out of the door. The caring was too much work for too ...

lowicklady55

•11 years ago

4 Replies

withdrawals

Hi evry1 I used to love horseradish on things. Now my mouth can't take it. I even had some raspberry jam the other day and that whacked the lining too. Looks...

Hi evry1 I used to love horseradish on things. Now my mouth can't take it. I eve...

lowicklady55

•11 years ago

4 Replies

How to increase my health?

I want to ask about increasing my Health. Actually last year i was suffering from pleural effusion. I have complete my Medical course which was 6 months and...

I want to ask about increasing my Health. Actually last year i was suffering fro...

rubysharma

•11 years ago

2 Replies

Wow... some feeling good days

Good morning lupie friends. I was diagnosed 2 months ago with lupus after many years of been ill and nobody listening. Now i know the problem and i am...

Good morning lupie friends. I was diagnosed 2 months ago with lupus after many ...

Donnygirl

•11 years ago

7 Replies

This is the fourth story I've heard this week :(

Terribly tragic story in the news today - Iain Hodge, who was diagnosed with Hughes syndrome, committed suicide while trying to receive disability living...

Terribly tragic story in the news today - Iain Hodge, who was diagnosed with Hug...

Sher78

•11 years ago

16 Replies

Can I get DLA or PIP if I work full time??

March2012

•11 years ago

16 Replies

Methotrexate question

Been on methotrexate for 12 weeks now since the diagnosis of lupus and I'm still trying to figure out my lupus. It seems still pretty active but what I think...

Been on methotrexate for 12 weeks now since the diagnosis of lupus and I'm still...

Scoofiecoo

•11 years ago

2 Replies

What more can I do?

Today I'm feeling absolutely rotten. Rash on neck and swollen glands, sweating, swollen lower back and pain everywhere with a pounding headache and stiff neck....

Today I'm feeling absolutely rotten. Rash on neck and swollen glands, sweating, ...

lillyanne

•11 years ago

10 Replies

I accidentally took my hydroxychloroquine tablet at the same time as my indigestion remedy (ranitidine).

I was meant to leave 4 hours either side. I now have awful heart burn and nausea. Anyone else done the same thing and is there anything I should do/not do?...

I was meant to leave 4 hours either side. I now have awful heart burn and nause...

rachfeathers

•11 years ago

7 Replies

Does lupus affect bowels function, how many of you have had problems?

Deary

•11 years ago

31 Replies

solar

has any one had solar panels. wondering if its a good idea.

tracyxx

•11 years ago

6 Replies

Ha ha ha!!

Just had to share this, should make you smile!! Was at at work the other day and the day was going pretty slowly so I thought I'd quickly log into...

Just had to share this, should make you smile!! Was at at work the other day ...

steadilymovingforward

•11 years ago

9 Replies

cant keep food down

Hi every one can any of you help me Ive gone off food in big way I simply cant face food and when eat dont seem to be able to keep it down is this a lupus...

Hi every one can any of you help me Ive gone off food in big way I simply cant f...

wood

•11 years ago

28 Replies

Mycophenalate and flares and denial and fed up!

Been on an increasing dose of Myco for a couple of weeks and am now on 1g twice a day. 2 weeks ago when I went up to this final dose I had a stressful few days...

Been on an increasing dose of Myco for a couple of weeks and am now on 1g twice ...

DaleDiva

•11 years ago

8 Replies

A&E

Just come back from A&E after suffering really bad chest pain that wasnt responding to any meds i have lots of chest pains but this was different and quite...

Just come back from A&E after suffering really bad chest pain that wasnt respond...

Danielle2419

•11 years ago

43 Replies

life... hmmm

writing on a fellow lupies blog post has made me think. looking at family history I have 3 immediate family members with auto immune disorders (R.A,...

writing on a fellow lupies blog post has made me think. looking at family his...

scoobydoo1

•11 years ago

9 Replies

Breathing

About 6 weeks ago I came off the steroids and I suffered with breathing difficulties. These difficulties felt like not taking in enough oxygen and constantly...

About 6 weeks ago I came off the steroids and I suffered with breathing difficul...

Geordie-chick

•11 years ago

12 Replies

London meet - 25th May

Hi all, For those in the London area, we are having a little meet-up on Saturday, 25th May. I already have a thread of private messages so if you haven't...

Hi all, For those in the London area, we are having a little meet-up on Satur...

chrissiij

•11 years ago

5 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for May 2013

Fed up with pain!!!!!!!!!!!!!!!!!!!& desperately need to vent my feelings!!!!!!!!!!!!!!!!!!!!

Update on my Rheumy nurse appointment and put on 400mg of planq, to start.

re not able to keepfood down

Prescribed prevabalin, anyone else with lupus taking these.

confused.com??

Thought for the day

Laugh for the day

BBC 1

Lupus, urticaria vasculitis

Methotrexate???

Lupus awareness day (10th May 2013)

what to ask at first rhumy appointment?

employment/self employment

withdrawals

How to increase my health?

Wow... some feeling good days

This is the fourth story I've heard this week :(

Can I get DLA or PIP if I work full time??

Methotrexate question

What more can I do?

I accidentally took my hydroxychloroquine tablet at the same time as my indigestion remedy (ranitidine).

Does lupus affect bowels function, how many of you have had problems?

solar

Ha ha ha!!

cant keep food down

Mycophenalate and flares and denial and fed up!

A&E

life... hmmm

Breathing

London meet - 25th May

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