Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,815 members • 28,151 posts

All posts for May 2013

Fed up big time!! Ill again.

Hi guys sorry to moan again but I'm really fed up! Not been well for ages struggling with my sinuses, last night I ended up in a&e with severe dizziness I...

Hi guys sorry to moan again but I'm really fed up! Not been well for ages strugg...

Hhsegibs

•11 years ago

4 Replies

Tocilizumab anyone? Been told that they're trying to arrange this next.

Has anyone used it or know much info? Just got A phone call telling me to come in for bloods by the rheumy nurse so they have all the precautionary measures as...

Has anyone used it or know much info? Just got A phone call telling me to come i...

Scoofiecoo

•11 years ago

Be the first to reply

Spoons for you...

Sending you some spoons Chicklette

steadilymovingforward

•11 years ago

9 Replies

Want to take advantage of all our features? Just log in!

anyone with a child with lupus or mixed connective tissue disease in Scotland or anywhere

westlife1

•11 years ago

11 Replies

Still smiling :-)

So I had to change my rheumy appointment as I had to have an operation. It turns out I have breast cancer, and with my huge family history of breast cancer...

So I had to change my rheumy appointment as I had to have an operation. It turns...

Chicklette

•11 years ago

8 Replies

In between times

Hi folks, most of the time I have a heavy, foggy head and can sit at my kitchen table firhours just staring, not sure anymore if it's due to the lupus or the...

Hi folks, most of the time I have a heavy, foggy head and can sit at my kitchen...

uzi41

•11 years ago

4 Replies

Has anyone experienced a dry persistent cough?

Hello. I have been suffering from a dry persistent cough with breathlessness for a year now. The frequency of the cough is increasing and getting...

Hello. I have been suffering from a dry persistent cough with breathlessness ...

eunidarling

•11 years ago

20 Replies

Has anyone experienced hair loss(patches on the scalp) while taking chloroquine???

I have been taking a low dose of chloroquine for about a year now. Everything seemed to be going well. But, I have now started to notice patches in my scalp...

I have been taking a low dose of chloroquine for about a year now. Everything s...

littlemissp

•11 years ago

5 Replies

Help please its driving me crazy

Hi all im on hydrochloriquine this is my 2nd week, i am feeling like i have been hit by a bus will this get better, also last 3 days i feel like someones hit...

Hi all im on hydrochloriquine this is my 2nd week, i am feeling like i have bee...

willowwag

•11 years ago

7 Replies

Can anyone help blood test showed Smooth muscle antibody positive with a titre of 40 has anyone had similar result?

Deary

•11 years ago

Be the first to reply

Now completely flumoxed may be here under false pretences!!!!

Hi folks, Has anyone reached to the point of 'what are they going to call it today?' I've just got back from Rheumy, and am completely and totally...

Hi folks, Has anyone reached to the point of 'what are they going to call it ...

lizzidrippin

•11 years ago

8 Replies

I feel so ill today - is this normal?

Sorry guys, just need to sound off this morning - I have been up most of the night feeling really hot and sore around the shoulder blade area. For the last few...

Sorry guys, just need to sound off this morning - I have been up most of the nig...

tjperfick

•11 years ago

6 Replies

Exempt the NHS from the US/EU Free Trade Agreement petition

This petition needs your signatures and publicity Pass on the link The petition http://epetitions.direct.gov.uk/petitions/47102

This petition needs your signatures and publicity Pass on the link The pet...

overnighthearingloss

•11 years ago

9 Replies

Suddenly Stopping Steroids

It's me again. Wondering whether anyone has experienced this or can provide any advice. So I went to see the Rheumy for the third time tonight. Reported...

It's me again. Wondering whether anyone has experienced this or can provide any...

Loopylooby

•11 years ago

12 Replies

Another laugh for the day...

Just needed a laugh to cheer myself up today... Have been looking at some of your replies to me and some of you abbreviate my 'handle' to ' s.m.f '.......

Just needed a laugh to cheer myself up today... Have been looking at some of ...

steadilymovingforward

•11 years ago

2 Replies

Want to claim dla but don't want to get turned down :'(

Hi guys Sorry iv not been on for a while, been sorting myself out. ANyways I wanna try claim dla but I don't think they will give me it tbh, with me being a...

Hi guys Sorry iv not been on for a while, been sorting myself out. ANyways I wan...

Hidden

•11 years ago

6 Replies

When starting hydroxychloroquine do symptoms feel worse?

Hi, Ive just been newly diagnosed and started on hydroxychloroquine last week. I don't know if it's just me but im feeling so much worse as though all my aches...

Hi, Ive just been newly diagnosed and started on hydroxychloroquine last week. I...

Belee

•11 years ago

7 Replies

Am I being oversensitive?

Yesterday on my Facebook page I re-posted one of those jokey photo's about fatigue with the comment "This is me". A few people have liked it but one friend...

Yesterday on my Facebook page I re-posted one of those jokey photo's about fatig...

DaleDiva

•11 years ago

11 Replies

I was wondering how often people have their urine tested and what they've been advised about doing dip tests either at the GP's or at home?

panther50

•11 years ago

5 Replies

Go home and have a baby !

At 25 I started with joint pain. First Rheumy I saw asked me how many children I had given birth to. (None, as I have antiphosolipid syndrome and couldn't...

At 25 I started with joint pain. First Rheumy I saw asked me how many children ...

MadMatilda

•11 years ago

15 Replies

Splitting up at last.

It's been a long time coming. I have asked my partner to leave. He was a weight around my neck and life is hard enough without that. I needed strength, he...

It's been a long time coming. I have asked my partner to leave. He was a weigh...

purple-lou

•11 years ago

10 Replies

Pain free and enjoying the moment

Hi my fellow lupies! I am a lupie newbe, although like most lupies I have been suffering for many many years. It's 4.45 am and I am wide awake and pain free,...

Hi my fellow lupies! I am a lupie newbe, although like most lupies I have been s...

BaileyD

•11 years ago

9 Replies

Need advice

Hello ok so im 22 female half jamaican and I went to the doctors about a year ago conplaining of achyness, tiredness and I have alot of protein in my urine...

Hello ok so im 22 female half jamaican and I went to the doctors about a year ag...

missjupey

•11 years ago

7 Replies

PROBLEMS WITH HAEMOSTASIS?

Hi everyone. Has anyone had problems with haemostasis which have caused micro clots throughout the body, dangerously low levels of platelets and a very swollen...

Hi everyone. Has anyone had problems with haemostasis which have caused micro cl...

InSpain

•11 years ago

1 Reply

Lupus and Hughes Syndrome

I was diagnosed with SLE and Raynauds 6years ago. These have been fairly well controlled by drugs over the years. However, recently I have developed the...

I was diagnosed with SLE and Raynauds 6years ago. These have been fairly well co...

SNOWWHITESHELLY

•11 years ago

10 Replies

can my husband get benefits if hes self employed

my husband has total obliteration of both hips. he is an electrician who works on cranes and hoists but cant climb at the present time. Hes on the waiting list...

my husband has total obliteration of both hips. he is an electrician who works o...

knipper

•11 years ago

2 Replies

A CRY OF DESPERATION

I have reached the end - no more humour, no more fight, no more energy, nothing left....... 16 years I have been raging a battle with Lupus, trying to...

I have reached the end - no more humour, no more fight, no more energy, nothing ...

amandalilley

•11 years ago

23 Replies

Steroids

Hi all just wondering if anyone else has been on steroids since they found out they had lupus, as I have never been able to come off them.

Hi all just wondering if anyone else has been on steroids since they found out t...

gazzasoens

•11 years ago

12 Replies

Hair loss, can someone answer this please

Can you get hair loss of hair on your arms and legs too? My arms look like a plucked turkey and not had it on my lower legs for years?

Can you get hair loss of hair on your arms and legs too? My arms look like a pl...

Carolha

•11 years ago

4 Replies

Has anybody had TB?

Hi,just wondered if anybody has had TB. What were your symptoms and what treatment did you have for it. The reason I ask is my GP has sent off samples of...

Hi,just wondered if anybody has had TB. What were your symptoms and what treatm...

mum-two

•11 years ago

6 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for May 2013

Fed up big time!! Ill again.

Tocilizumab anyone? Been told that they're trying to arrange this next.

Spoons for you...

anyone with a child with lupus or mixed connective tissue disease in Scotland or anywhere

Still smiling :-)

In between times

Has anyone experienced a dry persistent cough?

Has anyone experienced hair loss(patches on the scalp) while taking chloroquine???

Help please its driving me crazy

Can anyone help blood test showed Smooth muscle antibody positive with a titre of 40 has anyone had similar result?

Now completely flumoxed may be here under false pretences!!!!

I feel so ill today - is this normal?

Exempt the NHS from the US/EU Free Trade Agreement petition

Suddenly Stopping Steroids

Another laugh for the day...

Want to claim dla but don't want to get turned down :'(

When starting hydroxychloroquine do symptoms feel worse?

Am I being oversensitive?

I was wondering how often people have their urine tested and what they've been advised about doing dip tests either at the GP's or at home?

Go home and have a baby !

Splitting up at last.

Pain free and enjoying the moment

Need advice

PROBLEMS WITH HAEMOSTASIS?

Lupus and Hughes Syndrome

can my husband get benefits if hes self employed

A CRY OF DESPERATION

Steroids

Hair loss, can someone answer this please

Has anybody had TB?

Search posts

Pinned Posts

Latest poll

Did you experience more frequent and/or severe lupus flares during the hot summer 2018 compared to summer 2017? (Please explain in comments)

Topics

Archive