anyone else with low vit d levels??

[poodlegal]

my vit d is very low,around 13 I think,carnt read doctors writing!! ive been put on meds for it,anyone elses ever been very low? for how long?

[lubby]

Sorry I can't help you I've only just had mine checked for the first time so waiting for result. I expect it to be okay as I already take ADCAL as also coeliac. Will be interesting to know.

Hope you get sorted with an answer very soon. X

[SarahHeney]

Mine was less than 14. I was put on 10,000 units of vit d a week for 6 months and then 800 units a day maintenance dose. Wow what a difference this has made. Good luck x

[tracynoe]

Mine is 48 at the moment but still taking 2400 units vitd a day to try to build it up. When my level was very low a couple of years ago I had an injection but I have since been told that it is no longer available. I take Desunin as they are vegetarian and are the only one that does not contain gelatine as a binding agent.

[poodlegal]

thanks everyone,went to gp today as hospital said they couldn't issue a script,my gp wasn't pleased at all one because he said "they are suppose to be experts" and 2 because he couldn't read her writing! didn't know if it said 13 or 0.13!!! any way he had to ask another gp to help work out the dosage and the script says 20,000 unit caps,take one twice a week for 7 weeks then wait 6 weeks and have blood test,but my doctor at hospital mentioned you take them for 3 days?? oh I hate all this,wish just one doctor could deal with me as my gp hates doing things the consulants ask but if I go with a cold im told to ring my lupus clinic xx

[rlupus]

Hi Ya

mine was very low to was put on medication for 2 months and seems to have worked, and now off them have to have test repeated in 2 weeks time, Good Luck x

[poodlegal]

you too rlupus xx

[steadilymovingforward]

Mine is low..on the cholecalciferol for a few weeks so far but no let up in the horrible fatigue yet...follow up appt @ st Thomas on mon so see what they say. Hope you feel better soon xxx

[poodlegal]

thank u,just went to the chemist and they never heard of what the doctor wrote script for!! have to go back to gp,hope you feel better soon too xx

[DebFitz]

I too have problems keeping my Vit D level normal. The reason being I can't tolerate the sun very long. Sunlight is how we Naturally get our Vit D. It can be a real problem for us Lupus sufferers. When mine is Low I have really bad Bone, Joints and Muscle PAIN!!! It is recommended you get at least 15 minutes of sunlight a day to help maintain a good level of Vit D. I have a lot of trouble with mine because sunlight causes me rashes. I also have trouble tolerating the prescription strength. For some reason it makes my Pain a lot worse. My Rheumy says even though that is not common he has a few other patients like me. I have to start with a small dose and slowly increase it where I can tolerate 400iu a day. I hope you don't have these problems with yours. You should feel a lot better when you get it back to a normal level. Good Luck!!!