Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,833 members • 28,172 posts

All posts for January 2013

Does anyone else suffer from feeling Hot and feverish but body temp is normal or low?

I have been noticing more & more recently that I have times (often evenings) when I feel like I'm burning up, nothing will cool me down and I feel awful as if...

I have been noticing more & more recently that I have times (often evenings) whe...

tidmusshaz

•11 years ago

38 Replies

Even the dole dont want me

I went to see the disability works advisor today and she told me to sign off get a sick note and go onto ESA. I didnt take everything in cause all I could...

I went to see the disability works advisor today and she told me to sign off get...

luupysue

•11 years ago

12 Replies

flossy1

Wrote last blog and half missing, wanted to know why arm and leg skin flare in winter? would love a reply.

Wrote last blog and half missing, wanted to know why arm and leg skin flare in...

flossy1

•11 years ago

5 Replies

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flossy1

Hi have recenty been diagoised with Lu[us and I am not yet sure whats happening. I thought only skin exposed to the sun would flare, and am asking why the...

Hi have recenty been diagoised with Lu[us and I am not yet sure whats happening....

flossy1

•11 years ago

8 Replies

Nettles ,pins and needles and electric shock like pains are these symptoms your nerves/nervous system are involved ?Forgot to add numbness

letslaugh63

•11 years ago

10 Replies

Does anyone suffer with chest pain?

I have been waking with chest "ache" recently ,saw my gp eventually he said it was muscular. Does anyone else get this? It is a little worrying, I treated it...

I have been waking with chest "ache" recently ,saw my gp eventually he said it ...

talula

•11 years ago

5 Replies

25 years old, 6months pregnant, oh yer I have lupus!

Has any 1 out there gone through pregnancy and dealing with lupus! Im Classed as high risk but have seen midwife 3 times! Feel completely on my own! I have my...

Has any 1 out there gone through pregnancy and dealing with lupus! Im Classed as...

LillyAlfie

•11 years ago

14 Replies

I am just about to trial pure aloe Vera gel, has anyone else tried it out?

I have been told that it could help protect my stomach and build up my immune system. I am really hoping it will stop the griping,nausea and general bloating....

I have been told that it could help protect my stomach and build up my immune sy...

sollyn

•11 years ago

11 Replies

Teeth and infections

Hi everyone, I'm experiencing a flair on top of a swollen face from a horrible tooth infection. Feel rubbish but don't know if its mainly tooth or lupus,...

Hi everyone, I'm experiencing a flair on top of a swollen face from a horrible t...

Stacy2310

•11 years ago

4 Replies

Steroids and Indigestion???

Just a quickie - Dr's are starting to wean me off steriods - commenced weaning last Nov from 5mg 1 day then 4 the next and so on. The 16th January reduced to 4...

Just a quickie - Dr's are starting to wean me off steriods - commenced weaning l...

Lulabelle

•11 years ago

5 Replies

When do you tell a new employer about having Lupus

I am curently job hunting, after being made redundant at the end of October. Does anyone have any advise on when best to tell a future employer about...

I am curently job hunting, after being made redundant at the end of October. ...

lupydragon

•11 years ago

6 Replies

Another day... another walk :)

Finally today, after relatively short flare by my standards, I managed to walk 2km :) For me this is a HUGE achievement! I have mobility issues and I...

Finally today, after relatively short flare by my standards, I managed to walk 2...

Silvermyst

•11 years ago

29 Replies

Home alone !!!

being alone has never bothered me in fact I love it normally.hubby away to work ,even though we're seperated for 21 months we share a house.I'd normally be in...

being alone has never bothered me in fact I love it normally.hubby away to work ...

letslaugh63

•11 years ago

11 Replies

GP visit

Off to GP this afternoon because of joint/bone pains which are stopping me from sleeping. Until recently had a rubbish GP who made me feel I was wasting their...

Off to GP this afternoon because of joint/bone pains which are stopping me from ...

Chicklette

•11 years ago

4 Replies

Feeling well! :))))

So today something remarkable happened! Hahaha! I am feeling well and my energy levels are on red... Woke up with a little headache that stopped after a big...

So today something remarkable happened! Hahaha! I am feeling well and my energy...

ribitribi

•11 years ago

8 Replies

Hi Luppies, is anyone getting sharp stabbing pains in their chest??? Just comes out of the blue and feels like a mini heart attack....

chucch

•11 years ago

9 Replies

Problems with work

Hi everyone, although i read this site all the time this is only the second time i have ever left a comment, so here goes. After 3 years of constant ear, eye...

Hi everyone, although i read this site all the time this is only the second time...

puddleduck

•11 years ago

15 Replies

Holidays!!!!

Do any of you travel abroad for holidays ??? If you do any tips how to cope when away !!!

Do any of you travel abroad for holidays ??? If you do any tips how to cope when...

Olibop

•11 years ago

12 Replies

Did your medication make your symptoms worse after you was diagnosed with lupus or given you an extra illness to contend with?

Medication have given me sjogren, diabetes through steroids use,slip disc crumbling bones through 4 years of steroids use, constant thrush and UTI,s through...

Medication have given me sjogren, diabetes through steroids use,slip disc crumbl...

luppychick

•11 years ago

7 Replies

Sick and tired of being sick and tired!

Even though I am pain free the last few months and I am about to stop taking prednisolone, I cannot enjoy it! Since August there hasn't been a week free of a...

Even though I am pain free the last few months and I am about to stop taking pre...

ribitribi

•11 years ago

8 Replies

Can the Lupus patients get a tattoo?

ribitribi

•11 years ago

10 Replies

Where to get help with children, chores, doctors visits etc.

Had a rough few months before Xmas which meant I didn't get my children to school regularly and my house looked like a bomb site. I was very low. As I have...

Had a rough few months before Xmas which meant I didn't get my children to schoo...

Hidden

•11 years ago

9 Replies

Talk about Lack of support

I've recently returned to work after being very poorly. I had to do a risk assessment with our HR officer before I came back and it was decided then that if I...

I've recently returned to work after being very poorly. I had to do a risk asses...

Hidden

•11 years ago

9 Replies

Computer screens - do they affect your SLE?

I was just wondering if anyone else has any flare up of Lupus symptoms after using a computer or laptop? I have noticed for a long time now that if I use my...

I was just wondering if anyone else has any flare up of Lupus symptoms after usi...

Karen34

•11 years ago

10 Replies

Pain in left side

I have lupus and suffer pain down my neck and all down my left side,arm feels really tight

I have lupus and suffer pain down my neck and all down my left side,arm feels re...

ladylou

•11 years ago

5 Replies

Snowed in

that's the weather but also how I feel.was back at docs 2day and asked if he could just get me a room there save me coming out in this weather.if only i could...

that's the weather but also how I feel.was back at docs 2day and asked if he cou...

letslaugh63

•11 years ago

6 Replies

Just been put on amitriptyline ? Has anyone heard/been on this.I don't like taking pills

letslaugh63

•11 years ago

41 Replies

Swallowing

Never thought of this as a Lupus issue before but ya never know. Does anyone else choke drinking even just water. Always thought it's just me can't drink a...

Never thought of this as a Lupus issue before but ya never know. Does anyone els...

DaleDiva

•11 years ago

10 Replies

Steroid Reduction .. feel like pants !

Started reducing my steroids last weds, 10mg day 1 10mg day 2, 5mg day for 2 weeks, then 10mg 5mg 10mg 5mg for 2 weeks, then 10mg 5mg 5mg for 2 weeks then down...

Started reducing my steroids last weds, 10mg day 1 10mg day 2, 5mg day for 2 wee...

jemmyjemjem

•11 years ago

24 Replies

Does anyone else struggle getting their children to school?

I have had to keep my daughter off school today because im in too much pain to get her there,ive phoned the school asking for help and they said theres nothing...

I have had to keep my daughter off school today because im in too much pain to g...

katknapp

•11 years ago

9 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for January 2013

Does anyone else suffer from feeling Hot and feverish but body temp is normal or low?

Even the dole dont want me

flossy1

flossy1

Nettles ,pins and needles and electric shock like pains are these symptoms your nerves/nervous system are involved ?Forgot to add numbness

Does anyone suffer with chest pain?

25 years old, 6months pregnant, oh yer I have lupus!

I am just about to trial pure aloe Vera gel, has anyone else tried it out?

Teeth and infections

Steroids and Indigestion???

When do you tell a new employer about having Lupus

Another day... another walk :)

Home alone !!!

GP visit

Feeling well! :))))

Hi Luppies, is anyone getting sharp stabbing pains in their chest??? Just comes out of the blue and feels like a mini heart attack....

Problems with work

Holidays!!!!

Did your medication make your symptoms worse after you was diagnosed with lupus or given you an extra illness to contend with?

Sick and tired of being sick and tired!

Can the Lupus patients get a tattoo?

Where to get help with children, chores, doctors visits etc.

Talk about Lack of support

Computer screens - do they affect your SLE?

Pain in left side

Snowed in

Just been put on amitriptyline ? Has anyone heard/been on this.I don't like taking pills

Swallowing

Steroid Reduction .. feel like pants !

Does anyone else struggle getting their children to school?

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