Hi everyone, although i read this site all the time this is only the second time i have ever left a comment, so here goes. After 3 years of constant ear, eye and throat problems, my ENT cons, and Rhumy decided last September it would be better to remove my adonoids a huge lump that was growing in my throat by my voice box and have a throat cancer biopsy, and have my ears, eyes nose and throat flushed out to eradicate the infection that was causing my continuous lupus flare up. So i had to have 2 weeks off work for the operation and recovery, i could of had far more time off due to being not fit for work after 2 weeks really but i went back into work, i am a customer service advisor and this was the first time i had any sickness time off in 4 years. On returning to work my HR and Line Manager in my 1 to 1 back to work meeting, although sympathized with my condition, gave me a warning for having too much sickness time off. 10 days in 4 years and part of the time off was for a throat cancer biopsy. Luckily when i was eventually diagnosed with Lupus, Fibro, connective tissue disorder and severe spine, and neck arthritus, curviture of the spine, and spasmatic bowl disorder (that one i have lived with for 20 years plus), i joined the works Union, best thing i ever did, as i got in touch with them and i appealled the decision, it has taken my works HR since last September to sort themselves out, and have kept me waiting until last week, when 2 of the HR team members tried to get my appeal meeting to go a head without my Unison Rep, which was very naughty of them, i stood my ground and would not go ahead with the meeting without my rep, so the meeting at my works head office got stopped much to the 2 HR annoyance, as they both told me that no unison reps could make it that day. but my meeting with them had to go ahead right there and then when really the Unison rep had already cancelled my meeting until the following day. The whole episode was absolutely awful, i nearly bottled and gave in to the meeting just to get it over with, as i was ill all over Xmas in bed with no energy, sickness, joint pain etc, then i hadnt slept at all for 2 days prior to the above meeting, but when the 2 H R reps were trying to push my sickness meeting through with my rep i suddenly stood my ground and thought if i do not get this sorted correctly today, i am leaving myself open for them to get rid of me if i am off ill due to no fault of my own and due to all of the above. So glad i did stand my ground, as i had my meeting with the 2 the day after with a top Union rep who put them in their place, and my warning from them was cancelled. So one up for the Lupus sufferes, the little people can win sometimes. Also my Union rep is so outraged by the HR lack of care towards me he is helping me to compose a letter of grievance towards my company basically in a bid to kick them up the back side and to care more about employees who are in ill health due to no fault of there own, as even though i consented for my works to have full knowledge of my illness history from my doctors, i was still accused in the first meeting of maybe making my illness up to the extent that i was ill, so in last weeks meeting i took all my medicines in a bag and tipped them all over the table just so they understood that i was not making my illness up and to show the extent of the amount of medicines a lupus sufferer has to take just to survive the day. It worked though.
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