Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for January 2013

Raynauds in ears

Anyone having problems with their ears in this cold weather? The cartilage tips of my ears are all red and sore!! I suppose it counts as an extremity :) I...

Anyone having problems with their ears in this cold weather? The cartilage tips ...

DaleDiva

•11 years ago

9 Replies

Facebook Lupus Blog

Have had a few messages asking about how I found my pregnancies were affected by lupus , how I was diagnosed etc etc so here is the link 2 my Facebook page...

Have had a few messages asking about how I found my pregnancies were affected by...

Sher78

•11 years ago

2 Replies

Lupus United

This weekend I had to rush to hospital with a suspected blood clot which turned out to be something else for which I now take antibiotics. At the triage...

This weekend I had to rush to hospital with a suspected blood clot which turned ...

Purpletop

•11 years ago

18 Replies

Want to take advantage of all our features? Just log in!

Journey to the London Lupus Clinic

Yiphee - I've got my first appointment with the London Lupus Clinic tomorrow. It's been a very tough ride to get there but I did it! I had to borrow money to...

Yiphee - I've got my first appointment with the London Lupus Clinic tomorrow. It...

Jarrod

•11 years ago

9 Replies

prescription charges you can get them free if you earn below a certain amount.

Hi everyone I have just read a blog written 5 days ago with regards to prescription charges and wanted to give some information on this. If you earn below a...

Hi everyone I have just read a blog written 5 days ago with regards to prescrip...

field

•11 years ago

5 Replies

Back to the daily grind

Well after a lovely relaxing weekend its back to the busy week, shame my weekend was ruined by the crap football results but hey ho that's the game. Hope...

Well after a lovely relaxing weekend its back to the busy week, shame my weekend...

Hidden

•11 years ago

2 Replies

describe it/explain it

no i can't.when friends/doctors ask me that it frustrates me as i can't not because i'm illiterate because it confuses me what's happening to my own body.is it...

no i can't.when friends/doctors ask me that it frustrates me as i can't not beca...

letslaugh63

•11 years ago

32 Replies

Hye there, i just wanna ask, if there any social work department from any local university here get involved in this association?

haazik

•11 years ago

8 Replies

Should I bother the GP?

Hi lovely lupies. I am still struggling to get the steroids down after a post Xmas flare. I got up to 30mgs/day and am just down to 15mgs. But each day I am...

Hi lovely lupies. I am still struggling to get the steroids down after a post Xm...

Helly72

•11 years ago

6 Replies

Protein in urine, how much is too much?

Rheumy said I had slight protien in urine at my last appointment in December, plus blood tests showing raised levels of disease activity. I have now been asked...

Rheumy said I had slight protien in urine at my last appointment in December, pl...

roobarb

•11 years ago

9 Replies

Half marathon training!

I have entered the liverpool half marathon and I am running to raise money for lupus however I'm struggling with the training. Short runs aren't too bad but as...

I have entered the liverpool half marathon and I am running to raise money for l...

Hhsegibs

•11 years ago

6 Replies

early rising

as dawn approaches i find myself yet again sitting on couch wondering where this is all going/heading at stupid o'clock in the morning.had a lovely night with...

as dawn approaches i find myself yet again sitting on couch wondering where this...

letslaugh63

•11 years ago

9 Replies

lupus or other condition

Hi been unwell for the last 7 months, had severe chest infection treated with doxycyclin, then had collapse episode and weakness/pain in left arm and leg, and...

Hi been unwell for the last 7 months, had severe chest infection treated with do...

scoobydoo1

•11 years ago

16 Replies

Refused DLA

Just received the letter telling me that have been refused DLA. I have SLE and Fibromyalgia, I have been off work since November as I can't move far, don't...

Just received the letter telling me that have been refused DLA. I have SLE and F...

jamg3916

•11 years ago

8 Replies

The chance to meet up...?

As there are no meetings currently available to some of us, I was thinking of the possibility of trying to organise a get-together where we can meet up and...

As there are no meetings currently available to some of us, I was thinking of th...

Silvermyst

•11 years ago

62 Replies

I need help

I need help with how to cope with lupus Ive always been the one look after/ love /care for oldies in community now Im the needing help and it,s hard to take....

I need help with how to cope with lupus Ive always been the one look after/ love...

wood

•11 years ago

10 Replies

Does anyone else have the combination of lupus with coeliac disease or lupus and under active thyroid?

I have all three conditions and looking to find out if there is anyone else and how they manage with food, exercise and weight control

I have all three conditions and looking to find out if there is anyone else and ...

Jenniep85

•11 years ago

8 Replies

Embracing life and what it brings

My name is Akosua B and i am a lupus patient. I was diagnosed back in 2003 but before then life was terrible. I started out with a skin rash which was all over...

My name is Akosua B and i am a lupus patient. I was diagnosed back in 2003 but b...

darlakos

•11 years ago

3 Replies

Wish me luck !? Tuesdays getting closer !!!!! hope i get some answers at st thomas '

larissa

•11 years ago

9 Replies

What's causing my constipation?

Hi everyone, I've had constipation ever since I started on Azathioprine about 3 years ago. Before that I was regular as clockwork - but now, if I don't...

Hi everyone, I've had constipation ever since I started on Azathioprine a...

norma52

•11 years ago

18 Replies

Holidaying on the coast

We have a caravan sited on the east coast of yorkshire. Lots of sun (sometimes) sea and wind etc. As have only just been diagoised, wondering if this is a...

We have a caravan sited on the east coast of yorkshire. Lots of sun (sometimes...

flossy1

•11 years ago

6 Replies

Tumble Dryer :0)

I now have a working tumble dryer, yay! The engineer turned up 2day & managed 2 sort it all out so luckily, I didn't have 2 threaten 2 spike his coffee with...

I now have a working tumble dryer, yay! The engineer turned up 2day & managed 2 ...

Sher78

•11 years ago

8 Replies

Would this suggest Lupus to you?

My daughter has been unwell for nigh on 2 years with fatigue, rashes, joint pain, sore throat, depression and as I have Lupus I am becoming more of the...

My daughter has been unwell for nigh on 2 years with fatigue, rashes, joint pain...

DaleDiva

•11 years ago

4 Replies

I think there is a light at the end of the tunnel...

I've been in a flare for about 7 months. I honestly thought that I would be like that forever. When my rheumatologist told me that I would come through it, I...

I've been in a flare for about 7 months. I honestly thought that I would be like...

purple-lou

•11 years ago

15 Replies

Life is hard but I am harder :P

Between running around cleaning my home, taking my son to and from nursery (walking) doing food shops when we run out, sitting down and doing learning...

Between running around cleaning my home, taking my son to and from nursery (walk...

Hidden

•11 years ago

11 Replies

Is my gp Trying to confuse me??

HI. It's the 2nd time iv been to my gp and I chose a different one so I Might get the treatment I need. My rheumatolgist told me I couldn't be put on my...

HI. It's the 2nd time iv been to my gp and I chose a different one so I Might ge...

Hidden

•11 years ago

12 Replies

me

Am having a feel sorry for me moment.....struggling to get and getcready for work or do anything

Am having a feel sorry for me moment.....struggling to get and getcready for wor...

uzi41

•11 years ago

9 Replies

Something we can all relate too...

I found this quote earlier and it sum's up how I have felt since FINALLY having people to share my journey with. Hope you like it!! “Friendship...

I found this quote earlier and it sum's up how I have felt since FINALLY having ...

Silvermyst

•11 years ago

36 Replies

So annoyed!!

Recieved a copy of a letter sent to my gp today from my old rheumie. Apparently I missed my appointment with him (which I cancelled as I am under a new rheumie...

Recieved a copy of a letter sent to my gp today from my old rheumie. Apparently ...

megs_tom

•11 years ago

8 Replies

Why am I so tired all the time.have been power napping for a while now 5/10 mins usually does the trick maybe1_5(at most)times a day.

recently same over whelming tiredness but sleeping longer and still feel tired.is it amitriptlyine?

recently same over whelming tiredness but sleeping longer and still feel tired.i...

letslaugh63

•11 years ago

9 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for January 2013

Raynauds in ears

Facebook Lupus Blog

Lupus United

Journey to the London Lupus Clinic

prescription charges you can get them free if you earn below a certain amount.

Back to the daily grind

describe it/explain it

Hye there, i just wanna ask, if there any social work department from any local university here get involved in this association?

Should I bother the GP?

Protein in urine, how much is too much?

Half marathon training!

early rising

lupus or other condition

Refused DLA

The chance to meet up...?

I need help

Does anyone else have the combination of lupus with coeliac disease or lupus and under active thyroid?

Embracing life and what it brings

Wish me luck !? Tuesdays getting closer !!!!! hope i get some answers at st thomas '

What's causing my constipation?

Holidaying on the coast

Tumble Dryer :0)

Would this suggest Lupus to you?

I think there is a light at the end of the tunnel...

Life is hard but I am harder :P

Is my gp Trying to confuse me??

me

Something we can all relate too...

So annoyed!!

Why am I so tired all the time.have been power napping for a while now 5/10 mins usually does the trick maybe1_5(at most)times a day.

Search posts

Pinned Posts

Latest poll

Did you experience more frequent and/or severe lupus flares during the hot summer 2018 compared to summer 2017? (Please explain in comments)

Topics

Archive