Nettles ,pins and needles and electric shock like... - LUPUS UK

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Nettles ,pins and needles and electric shock like pains are these symptoms your nerves/nervous system are involved ?Forgot to add numbness

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Don't think so! I get this sort of thing all the time - and I am almost certain I don't have CNS lupus. I think these sort of pain is a nuisance, but relatively harmless. I wouldn't worry about it, if I were you.

letslaugh63 profile image
letslaugh63

OK try Maggie x

Thaddeus profile image
Thaddeus

I get these a lot

Its more likely to be due to nerves being pinched by swollen tendons and the like. Postural issues also come into play here and a good physio can help with nerve stretch exercises and ways to keep loose.

I have the full cannon of carple tunnel trigger finger de quervains duputrens etc, inflammation of the tendons and joints. Thes things are not uncommon with lupus and its cousins, But dont rule out a neural aspect, which can also feature.

letslaugh63 profile image
letslaugh63 in reply toThaddeus

I tend to get it more in fingers ,toes and face.but recently had nettles feeling going to toilet x

brave profile image
brave

Hi...im riddled withy nervous system symptoms ,and feel it doesnt get taken seriously as all my tests were within range ,neuralgia,and shingles type pain(if you ever had shingles/) electric shocks,creepy crawlies skin sensitivity ,muscle twitcing that you see ,spasms.rinnging in ears ,and more ,lupus can send our systems into overdrive ,i wish there was a pill to calm the system without side effects,good luck

letslaugh63 profile image
letslaugh63

Had that in my face months ago brave and doctor(old doctor)and he treated me for shingles never had shingles in my life.only thing different then was swelling under ear which I thought was mumps as just under ear was swollen and very sensitive to touch.do u think it could've been shingles? X

Sher78 profile image
Sher78

I get this loads. It's possible 4 the lupus 2 affect u're central nervous system without having full on CNS lupus (think about it, systemic lupus can & will attack ANYTHING in u're body which can cause a knock on reaction in other parts of u're body. Lupus aint fussy!). Eg, if it starts messing with u're sinus' it can affect u're balance more etc.

Speak 2 u're GP & Rheumy. Agree with brave, half the time they think we make half of this up I'm sure. Yeah rite, cos we aint got anything better 2 do than fabricate & make up all these weird & wonderful symptoms & sensations we have.

letslaugh63 profile image
letslaugh63 in reply toSher78

I haven't been diagnosed yet doctor says auto-immunebut can't say which 1.had shingles?when with other doctors who basically just messed me around ,contradicting each other ,making me feel like a hypochondriac etc so I moved surgery and is a lot better.just wondering can I ask at surgery if any docs specialise in autoimmune cos I know some surgeries have docs that specialise in different areas x

Sher78 profile image
Sher78

Never had shingles so have no idea what it feels like. U'd b very lucky I think 2 find a GP who specialises in autoimmunity but u never know. If there's a locum or 1 fresh out of med school, that'd b u're best bet as things will b fresher in their minds & a lot of them feel they have something 2 prove so push that little bit more, but I'm only talking from personally experience. I've been lucky with a few GP's who have had a a little bit more knowledge about lupus than others, but unfortunately they never tend 2 hang around very long & bugger off 2 other surgeries :0( Keep pushing though & don't b fobbed off, I think sometimes getting a firm diagnosis is the hardest battle of all x

letslaugh63 profile image
letslaugh63 in reply toSher78

Yes I realise the hardest part is a really getting diagnosed by being on here.my app in April and not expecting to any more than I do now but I know it's a start (hopefully) x

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