Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for June 2012

IGNORED!!!!!!!

I have epilepsy and am on gabapentin and lomotrogine and have to go for annual routine blood tests. 4 yrs ago, after having already suffered really bad facial...

I have epilepsy and am on gabapentin and lomotrogine and have to go for annual r...

sharonleane

•12 years ago

9 Replies

Heat and sun intolerance???

I have never managed to tolerate the sun and always results in a flare. But just lately if I get hot, and i'm only talking about 20 degrees here, within...

I have never managed to tolerate the sun and always results in a flare. But just...

tiredmum

•12 years ago

14 Replies

Chemicals = flare!?

Help required.. Having discovered from fellow bloggers yesterday that Titanium Dioxide MAY be the cause of my recent flare, I'd like to throw my net wide and...

Help required.. Having discovered from fellow bloggers yesterday that Titanium ...

Acorn1

•12 years ago

15 Replies

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many Diagnoses.

Hi,Lupus seems to be genetic.My Uncle,Cousin and i have been through the mill.It's this you have,try this med.It's that,try this med.test after test after year...

Hi,Lupus seems to be genetic.My Uncle,Cousin and i have been through the mill.It...

Pommiemommie

•12 years ago

3 Replies

What entails a "good day" and a "bad day" for you????

I have had lupus for 20 years and I feel like a heel asking this question... however, I have always powered through times where I feel exhausted. What does a...

I have had lupus for 20 years and I feel like a heel asking this question... how...

teacherwithlupus

•12 years ago

6 Replies

Teaching With Lupus

Hi there! New to blogging all together!! I have had Lupus for almost 20 years. I am 38. I have glomerulonephritis and the antiphospholipid antibody. I...

Hi there! New to blogging all together!! I have had Lupus for almost 20 years....

teacherwithlupus

•12 years ago

6 Replies

Long sleeved top's!!!

went to hospital this morning to meet a new consultant about my hip!!!! he seems really nice and he will let me know this week as to when I'll be having a new...

went to hospital this morning to meet a new consultant about my hip!!!! he seems...

Minimum

•12 years ago

1 Reply

DIAGNOSED WITH SLE AND RAYNAUDS PHENOMENON

hi all. i saw the specialist today and she diagnosed me with all of above. i had bloodwork done 4 months ago. i had severe pain in my hands, well now alot more...

hi all. i saw the specialist today and she diagnosed me with all of above. i had...

Hester

•12 years ago

10 Replies

Mum's work

My mum has been told many times that she shouldn't be working and in fact should be claiming disability. But being the strong and determined woman that she...

My mum has been told many times that she shouldn't be working and in fact should...

bethhunter1994

•12 years ago

1 Reply

Are there other medications for Lupus as i've been told to stop taking Plaquinel?

I also take azathrioprine & steroids

Lisa78

•12 years ago

6 Replies

How do I obtain a copy of the support letter from LupusUK?

havering

•12 years ago

5 Replies

Nitol?

Has anyone had their lupus flare triggered by Nitol Sleep Aid, or Fennel tea?? They're the only two things I did different last week and now I'm in a right...

Has anyone had their lupus flare triggered by Nitol Sleep Aid, or Fennel tea?? T...

Acorn1

•12 years ago

5 Replies

Recently diagnosed SLE and sjorgrens sydrome!! Help

I dont know much about sle, my doctor said keep out of the sun and take plaquenil and steroids, and come back in 3 months time!! That was it, i feel left out...

I dont know much about sle, my doctor said keep out of the sun and take plaqueni...

nannygrumps

•12 years ago

11 Replies

What symptoms to you call a flare?

My specialist told me a flare could be minor and hit for short period of time with symptoms as little as an extra ache - or as major as full blown attack on...

My specialist told me a flare could be minor and hit for short period of time wi...

BetsieBoo

•12 years ago

10 Replies

Do you find your mood gets really low just before/around a flare?

BetsieBoo

•12 years ago

3 Replies

"day without laughter is a day wasted"

Today I woke up in the worst mood ever! I couldnt get out of bed even if I wanted to. Even though I woke up at 8 I didn't make it down stairs untill 11.. I...

Today I woke up in the worst mood ever! I couldnt get out of bed even if I wante...

Gharrison

•12 years ago

11 Replies

How do I obtain a Support letter from ? Christine

For use at an ESA appeal hearing

havering

•12 years ago

3 Replies

wearing a hat

first i want to thank you all - got lovely tops in M&S and Wmou wear on your head - a cap wats like hat whats it like finaly i cant tolerate anything...

first i want to thank you all - got lovely tops in M&S and Wmou wear on your hea...

ellie53

•12 years ago

2 Replies

Feeling down

I have been in pain for over a month, had a couple of cortisone Injections on Thursday and fluid taken off my knee! But shoulder is still painful and I am...

I have been in pain for over a month, had a couple of cortisone Injections on Th...

sam289

•12 years ago

6 Replies

what treatments can i use on my head so i don't look like my head as been in a bucket of oil,any good shampoos i can use. :)

steve52

•12 years ago

5 Replies

Hi, just wondering if anyone has a young child with Lupus at all and any advice. xx

Claregilchrist

•12 years ago

10 Replies

Do you feel really hot?

I have only ever had a problem with feeling cold in the past, as I have an underactive thyroid. But I've realised I don't get that anymore, I only ever get...

I have only ever had a problem with feeling cold in the past, as I have an under...

TeganSara

•12 years ago

6 Replies

woke with bad swelling around eye lids and under eyes now have a burning red rash on cheeks.

please can anyone tell me what it is as i don t suffer allergies my doc doesn t know and neither dose the rhumey but it comes on suddenly and my eyes look like...

please can anyone tell me what it is as i don t suffer allergies my doc doesn t ...

Hidden

•12 years ago

2 Replies

flare

can i ask what symptoms prompt them to think they are having a flare. i always presume for me it s the massive increase in fatigue-

can i ask what symptoms prompt them to think they are having a flare. i always p...

moss

•12 years ago

6 Replies

What does Malar rash feel like?

In the past I haven't suffered from a malar rash, but for about the last month I've noticed a redness on my nose and cheeks that comes and goes. I haven't been...

In the past I haven't suffered from a malar rash, but for about the last month I...

TeganSara

•12 years ago

8 Replies

Just get so angry at the smallest things..

I have noticed since I have started my med that the smallest things make me so angry! Today the dog knocked all my pills over and I had the biggest paddy...

I have noticed since I have started my med that the smallest things make me so ...

Gharrison

•12 years ago

18 Replies

esa

well i got some good news today about my eas they had me in the work related group and then i lost my benifit i appealed against it so had to fill in a form...

well i got some good news today about my eas they had me in the work related gro...

angieskye

•12 years ago

11 Replies

Hi, i am new to this, can anyone who has SLE and Fibromyalgia please get in touch.

I have Lupus and Fibromyalgia and would like to be able to talk to people who have SLE and or Fibromyalgia and share advice ETC

I have Lupus and Fibromyalgia and would like to be able to talk to people who ha...

sarahsolomon1957

•12 years ago

7 Replies

Pneumonia & immune suppresants?

Hi all,can anyone tell me if you should take your immune suppressants while you have a temperature or chest infection? My daughter has sle,and many more...

Hi all,can anyone tell me if you should take your immune suppressants while you ...

nanny4

•12 years ago

14 Replies

A BIG BIG THANKYOU

I would like to thank everyone who left a message for me on my first blog I have ever done., {not very good with computors} it has given me a lift, and I will...

I would like to thank everyone who left a message for me on my first blog I have...

biskwut

•12 years ago

2 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for June 2012

IGNORED!!!!!!!

Heat and sun intolerance???

Chemicals = flare!?

many Diagnoses.

What entails a "good day" and a "bad day" for you????

Teaching With Lupus

Long sleeved top's!!!

DIAGNOSED WITH SLE AND RAYNAUDS PHENOMENON

Mum's work

Are there other medications for Lupus as i've been told to stop taking Plaquinel?

How do I obtain a copy of the support letter from LupusUK?

Nitol?

Recently diagnosed SLE and sjorgrens sydrome!! Help

What symptoms to you call a flare?

Do you find your mood gets really low just before/around a flare?

"day without laughter is a day wasted"

How do I obtain a Support letter from ? Christine

wearing a hat

Feeling down

what treatments can i use on my head so i don't look like my head as been in a bucket of oil,any good shampoos i can use. :)

Hi, just wondering if anyone has a young child with Lupus at all and any advice. xx

Do you feel really hot?

woke with bad swelling around eye lids and under eyes now have a burning red rash on cheeks.

flare

What does Malar rash feel like?

Just get so angry at the smallest things..

esa

Hi, i am new to this, can anyone who has SLE and Fibromyalgia please get in touch.

Pneumonia & immune suppresants?

A BIG BIG THANKYOU

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