I have epilepsy and am on gabapentin and lomotrogine and have to go for annual routine blood tests.
4 yrs ago, after having already suffered really bad facial rashes, i had a positive result to lupus. I saw only 1 specialist about this, who told me i did have Lupus and not to worry as there are things they can do. I wasnt told what it is, nor why i had got it, nor wether they would do something about it.
From that point on i saw a consultant about fibromyalgia and went for the diet and lifestyle chat.
THAT is all that was ever done and i have been left ever since. I have had the classic constant joint/muscle pain, constant tiredness, fits, i was sectioned 3x as i haloucinated .....all the time my plea of ....well, i have Lupus what do you expect...treat me for that...was ignored.
I am sick of the painfull hands and feet and even though you can clearly see my pain, My husband has told the world and his uncle that i am faking it, so all my family and friends think im lazy and good for nothing.
All i take is paracetamol and ibroprufine plus the odd cocodine tablet if i cant stand it any more, and they knock me right out like i have been given a general anasthetic,so i cant take them too often.
I am a horse trainer and riding instructor, so i do what i can,, but i feel i have no-one in life. no-one who understands !!!