flare

[moss]

can i ask what symptoms prompt them to think they are having a flare. i always presume for me it s the massive increase in fatigue-

[Hidden]

I have increased fatigue and joint pains xx

[bethsuejane]

Yes me too, fatigue, joint pains, increased facial redness and burning and generally feeling so ill I don't know what to do with myself!

Thankfully it's interspersed with good days more often as time goes on....18mths for me and when I look back at 2 yrs ago I realise how much better I am now.

wishing everyone a good week. x

[TeganSara]

The things that really stand out when I have a flare is I get a very sore throat and I lose my voice, I get lots of mouth ulcers and feel very tired and achy.

[moss]

awwwwwwwwwwwwwwwww- that s odd because that is something i have started to suffer from and my tongue goes orange/brown colour

[JSue]

i get mouth ulcers mainly on the sides of my tongue, sometimes nose ulcers (these are new for me - yuck), and extreme fatigue. I also almost always get a low grade fever. my upper arms ache (myalgia) and i get brain fog. joint pain increases but the other things are my real warning signs.

[ellie53]

yea think have flare up - back red rash eyes very sore bad cough as if losing voice upper arms feel like lead

what to do ? just stay in bedand take it easy -dont know what to do