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My Ovacome

17,746 members • 19,983 posts

All posts for February 2024

Possible lung metastasis

hi everyone I am 10 years just gone since the start of my journey, usual operation and chemo in 2014. then recurrence in the bowel in 2018 with resection and...

hi everyone I am 10 years just gone since the start of my journey, usual opera...

•3 months ago

Nariparib migraines

Hi I’ve been taking 200g Nariparib since November. Before my OC diagnosis I suffered from migraines but they have got much much worse since I started taking...

Hi I’ve been taking 200g Nariparib since November. Before my OC diagnosis I suf...

•3 months ago

Chocolatemilk44

Went for 2nd maintenance and kidney numbers too high. Does this happen a lot?

Went for 2nd maintenance and kidney numbers too high. Does this happen a lot?

chocolatemilk44

•3 months ago

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Chocolatemilk44

Diagnosed with ovarian stage 4 in may. I have had 8 rounds of chemo with hysterectomy. Maintenance drug is avastin.

Diagnosed with ovarian stage 4 in may. I have had 8 rounds of chemo with hyste...

chocolatemilk44

•3 months ago

Cold cap advice?

Im a very lucky gal whose cancer was caught early (by accident) at stage 1c. I've had surgery and about to start chemo tomorrow. Carbopentin only. They booked...

Im a very lucky gal whose cancer was caught early (by accident) at stage 1c. I'v...

•3 months ago

starting on niraparib after frontline chemo

Hi ladies, I finished first line chemo in December and my oncologist has recommended I start taking Niraparib 200mg daily in one tablet for 3 years. I’m stage...

Hi ladies, I finished first line chemo in December and my oncologist has recomme...

•3 months ago

World Cancer Day

On World Cancer Day I just wanted to send loads of love to all you ladies, and also I know there are relatives of TS's on here too so sending love to you guys...

On World Cancer Day I just wanted to send loads of love to all you ladies, and a...

•3 months ago

Coping with chemo side effects

Hi all I'm diagnosed stage 4 clear cell ovarian cancer since 15 Dec 23 & currently struggling so much with chemo side effects & wondering how it has been for...

Hi all I'm diagnosed stage 4 clear cell ovarian cancer since 15 Dec 23 & current...

•3 months ago

Uninterested GPs

Hi everyone!! Has anyone else faced uninterested GPs and have managed to get help elsewhere? It's not just that they are completely dismissing my symptoms as...

Hi everyone!! Has anyone else faced uninterested GPs and have managed to get hel...

•3 months ago

gastritis?

did anyone develop gastritis during chemo that persisted afterwards? During second line my mum developed wave like abdominal cramps, trapped gas and a burning...

did anyone develop gastritis during chemo that persisted afterwards? During seco...

Worrieddaughter95

•3 months ago

What should I do - follow-ups not feeling thorough

Hi everyone, before I start my question I want to send out love to everyone on here and I really wish being well for everyone. I wish there wasn’t a load of...

Hi everyone, before I start my question I want to send out love to everyone on h...

•3 months ago

Brush Party Fundraiser for Ovacome

I am organising a fundraising eventto raise funds for Ovacome and thought this may be of interest to anyone living in or near to North Oxfordshire. Good Hare...

I am organising a fundraising eventto raise funds for Ovacome and thought this m...

•3 months ago

A recurring nightmare

6, 8, 12, 13, 22. Such small numbers. Quietly slithering up over the last few months. Bollocks! A scan next week. But it's beginning to sink in now...

6, 8, 12, 13, 22. Such small numbers. Quietly slithering up over the last fe...

•3 months ago

NEW online session - 6th February Our stories: having a hereditary increased risk of ovarian cancer

Good morning all, On the 6th February at 2:00pm, Ovacome will be hosting the next in the 'Our stories' series, where we are joined by member speakers who will...

Good morning all, On the 6th February at 2:00pm, Ovacome will be hosting the ne...

Partner•3 months ago

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Niraparib Time Line?

Hi ladies I am a bit confused re the length of time you are kept on PARP treatment and what happens when you stop. I have been on Niraparib for over two years...

Hi ladies I am a bit confused re the length of time you are kept on PARP treatm...

•3 months ago

What's on at Ovacome next week (week commencing 5 February 2024)?

Good afternoon everyone This is our weekly post to let you know about the different support groups, workshops and events taking place at Ovacome next week....

Good afternoon everyone This is our weekly post to let you know about the diffe...

Partner•3 months ago

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Platinum resistance

Hello, I'm stage 4 HGOC diagnosed Jan 2018. Had the usual surgery and chemo. Tried Parp Rubraca after recurrence and it didn't work reoccurred again last year,...

Hello, I'm stage 4 HGOC diagnosed Jan 2018. Had the usual surgery and chemo. Tri...

•3 months ago

CA 125 levels and ovarian cyst

Hello, I was hoping for a little advice . I am 42 and I starting visiting the GP in August as i was feeling v tired (I have 4 young children which may explain...

Hello, I was hoping for a little advice . I am 42 and I starting visiting the GP...

•3 months ago

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