A recurring nightmare : 6, 8, 12, 13, 22. Such... - My Ovacome

My Ovacome

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A recurring nightmare

DianaPrince_ profile image
17 Replies

6, 8, 12, 13, 22.

Such small numbers.

Quietly slithering up over the last few months.

Bollocks!

A scan next week.

But it's beginning to sink in now that it's back.

I had just got my life back to where I was living it again.

Making plans, having adventures.

Bollocks!

I'm mourning a little

Bargaining a lot.

So already completed two of the 7 stages of grief

I know what to expect this time around.

Which makes it easier.

I know I can get through it.

I just don't want to.

I wanted my cancer story to be over.

A chapter, and not a recurring storyline.

Bollocks!

Trying to stay present to take each minute as it comes

But have eaten 2 packets of biscuits since the consultant called me earlier.

Bollocks, bollocks, bollocks.

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DianaPrince_ profile image
DianaPrince_
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17 Replies
Lizz49 profile image
Lizz49

So sorry to read this Diana,

You may be wrong and your scan might be clear, there are ladies on here who have been in that situation and the numbers stay stable or drop again, there’s no rhyme or reason to it and only the scan will hopefully give an indication to what’s happening.

Having been in this situation I can only advise to plan some nice things this week, keep busy and occupied with lots of self care. If you don’t get the news you are hoping for stay strong in the knowledge that now more than ever, OC is very treatable with lots of maintenance options available to us now. I’m on letrozole and now living with low grade cancer, I’ve got my head round it and my aim now is long term stability. Other than the occasional wobble, I’m quite well and feel positive most days.

I’m sending hugs and hope to you, you’re not alone on here most of us know what you’re going through, and you’ll get through it Xx

Liz x

Ruebacelle profile image
Ruebacelle

I hear you.

patricia54053 profile image
patricia54053

Been in that same situation as you, go out and treat yourself to something, the worry about it coming back is always there, good luck with scan, ps. We're they nice chocolate biscuits👍🙂.

Katmal-UK profile image
Katmal-UK

Been there, done that twice, got the t shirts, used the same words, been NED 10.5 years this time albeit on a trial drug. Maybe it won’t be a recurrence, face it when you know for sure. In the meantime enjoy what you can. Big hugs x

Ffol profile image
Ffol

I hear you too ! Facing my third reoccurrence since I was diagnosed June ‘22, but we keep going. Sending you lots of hugs and enjoy the biscuits 😉

Fizzgirl profile image
Fizzgirl

I know the feeling well. I'm in same position hair back eyelashes and brows back, back to work and socialising normally without having to ask people to stay away if they've a cold and the numbers tell it all. My appt was cancelled due to Dr's strike delayed for 6 weeks now its gone up to 85 despite me telling them it was back. So yes bollocks bollocks bollocks and bollocks with knobs on. Take care xxxxx

Joanne59 profile image
Joanne59

At least you still have your sense of humour! Sending best wishes, good luck 😘

joanbaez profile image
joanbaez

I can so identify with your position , and Indeed sentiments ! I've been walking around saying that alot this week ! .I have low grade serous and had my major surgery 4 years ago . Been on letrozole since .It has now gone into my spleen . Came off Letrozole last week and started oral chemo Trametanib last week .

Totally agree with comments, plan good things. Keep lots of activities and interests going and start new things . Keep looking forward with positivity . You know the drill ,I'm just sorry for you, and for me , that we have got to rally and do it again .

Casamimosa profile image
Casamimosa

Hi, so sorry you going through this. I'm feeling bit like you

Waiting on a scan and bloods result

Getting strange pains and feelings

Bollocks!

Just getting life back/ making plans

Just want to enjoy this year and complete our plans.

It's our Golden wedding year and want to enjoy it without treatment hanging over us.

Bollocks

Fingers crossed for all of us feeling this way

We can get through it

We are strong

We are Teal sisters

Sending love ❤

Leniko profile image
Leniko

yes, it sucks. My OVCA came back after 6 years. I was disbelieving, then mad! I wanted to be a “one and done”. But we live in times of many treatment options and even though I’ve now had 3 recurrences since then, we keep knocking it back. I was diagnosed in 2008. Do your grieving, then give yourself a talking to that you’ll beat this! Positive attitude makes a difference. Sending hugs. 🙏

AnaJim profile image
AnaJim

It is really bollocks!! I am sorry you are going thought this uncertainty again. It is unfair, annoying, painful and bollocks.

Sending you my best wishes and hope for the future. You can do this!!

Anaxx

Pixiepurple profile image
Pixiepurple

Hi Diane,

So sorry your going through this, hope your scan is clear. Thank you for the smiles x

DianaPrince_ profile image
DianaPrince_

thanks for the support, it makes a difference x

Vegana profile image
Vegana

I had my PET scan on Friday, I’ll know on Monday If it’s back.

My CA125 went up to 115 over 3 months.

Let’s see what my bod is throwing at me this time

I’ll update

Go out and dance , best therapy ever

SopSinger profile image
SopSinger

Sending big hugs and hoping it's a blip. The lovely Sue Pirie on the Facebook group used to shout "Buggery bollocks" when things weren't going well.

FlowerRose profile image
FlowerRose

❤️❤️❤️

Talkingpicture profile image
Talkingpicture

Sorry to hear your bad news. 👎 but, absolutely love and respect your attitude. Its a setback it doesn't have to define you. You have got this you ballsy woman 😜

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