Posts - My Ovacome | HealthUnlocked

My Ovacome

17,746 members • 19,983 posts

All posts for June 2022

Looking for advice as to whether Avastin is the right option for my mum

Hi there, my mum was diagnosed with stage 4 HGS OC following debulking surgery in December 21. She is BRCA negative and has just completed 6 rounds of chemo...

Hi there, my mum was diagnosed with stage 4 HGS OC following debulking surgery i...

Pitchperfec

•2 years ago

25 Replies

Ca 125 recurrance

I am in stress 😞 my mom have OC 2017 stage 2b surgery and 6 chemo, till 2021 remission, 2021 may recurrance ca 125 220, get again same chemo ca was 24. After...

I am in stress 😞 my mom have OC 2017 stage 2b surgery and 6 chemo, till 2021 re...

Inguc_is

•2 years ago

3 Replies

My Ovacome forum guidelines

Hello All There have been some queries around where to find the forum guidelines/terms of use. The guidelines can be viewed on our website here:...

Hello All There have been some queries around where to find the forum guidelin...

TheOvacomeTeam

Partner•2 years ago

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Good news

Well happy tears here today had phone consult with oncologist today and after 2 rounds of chemo my CA125 has come down from just under 600 to 249 4 more chemos...

Well happy tears here today had phone consult with oncologist today and after 2 ...

Tezzaa66

•2 years ago

11 Replies

Affraid again

My mom have ovarian cancer now is her 2nd recurrance she get 3 chemo her CA 125 went down after 2 chemo from 300 to 116 is it ok? or not enough, after 3rd we...

My mom have ovarian cancer now is her 2nd recurrance she get 3 chemo her CA 125 ...

Inguc_is

•2 years ago

2 Replies

treatment

Hello ladies. has anyone with low grade stage 1c2 been offered any further treatment other than the total hysterectomy and debulking surgery. ?? thankyou.

Hello ladies. has anyone with low grade stage 1c2 been offered any further trea...

meaty

•2 years ago

14 Replies

Bowel adhesion blockage

I'm in Hospital for a bowel adhesion/ bowel blockage. Has anyone else had this? Apparently quite common for people who have had abdominal surgery. I had HGS OC...

I'm in Hospital for a bowel adhesion/ bowel blockage. Has anyone else had this? ...

anna_z

•2 years ago

9 Replies

Need advice re: Stomach pains and Acid Reflux after eating?

Hello ladies, I hope you are all keeping as well as possible. I wondered if anyone could give me some advice please? I had chemotherapy and de-bulking...

Hello ladies, I hope you are all keeping as well as possible. I wondered if an...

Doughnut21

•2 years ago

22 Replies

Covid boosters

Ive had an email from the Govt re Spring booster for clinically vulnerable. I had No.4 in in February, so is this no.5 or are they just behind with their...

Ive had an email from the Govt re Spring booster for clinically vulnerable. I h...

Rosebine2

•2 years ago

19 Replies

Anyone in UK had radiotherapy for pelvic lymph nodes

Hi has anyone had radiotherapy or cyber knife treatment on pelvic lymph nodes?

win_56

•2 years ago

12 Replies

Cyst on remaining ovary

Good morning ladies I hope everyone is well. My Daughter (31) was diagnosed in January with stage 1a mucinous ovarian cancer after having an 18 pound cyst...

Good morning ladies I hope everyone is well. My Daughter (31) was diagnosed in J...

Mellucy

•2 years ago

6 Replies

COC protocol

Has anyone or is anyone on the COC protocol? If so, can I have your opinion and thoughts on it and what supplements you take when. Thanks.

Has anyone or is anyone on the COC protocol? If so, can I have your opinion and ...

win_56

•2 years ago

4 Replies

Itching and burning

I'm taking 100mg Niraparib, started February with a couple of stop, starts re platelets. Was on 200mg at the start but had constant headaches so dosage was...

I'm taking 100mg Niraparib, started February with a couple of stop, starts re pl...

Davonian

•2 years ago

14 Replies

Treatment Options at 2nd recurrence.

Hello Ladies I do hope you are all keeping well. I am unfortunately facing another round of treatment for recurrence. I had my last carboplatin treatment in...

Hello Ladies I do hope you are all keeping well. I am unfortunately facing ano...

Meridian14

•2 years ago

11 Replies

Apology and Observation

Yesterday I posted some observations with respect to the NHS website. Today my post was removed because some members considered it and some of the follow-up...

Yesterday I posted some observations with respect to the NHS website. Today my p...

SASSY196

•2 years ago

54 Replies

Recurrence advice

Hi Ladies. I’m hoping to get some advice from you please. My mum was diagnosed with stage 3A in Jan 2019. She was clear and then diagnosed with her first...

Hi Ladies. I’m hoping to get some advice from you please. My mum was diagnosed ...

N-A-58

•2 years ago

11 Replies

How to manage Niraparib side effects

Hello lovely ladies. I wonder if anyone who is on Niraparib could share their experiences? I started taking 200 mg a day on 27th May, after having 5 chemos,...

Hello lovely ladies. I wonder if anyone who is on Niraparib could share their e...

Jayniiee

•2 years ago

12 Replies

Hit another hurdle! Need some support from you lovely ladies!

Just got my kidney function blood test done and while I was at the hospital the consultant said she'd like to see me quickly as she was away on my 1st visit...

Just got my kidney function blood test done and while I was at the hospital the ...

Newbery3

•2 years ago

20 Replies

Deleted post

Dear All We received several reports from the community this morning regarding transphobic comments beneath a post on the forum. The post and replies have...

Dear All We received several reports from the community this morning regarding t...

TheOvacomeTeam

Partner•2 years ago

Thanks to you all for advice on headgear!

I've ordered a couple of the Deresina ones from Amazon to start. So grateful to you all, you are so kind. Fight the good fight!!

I've ordered a couple of the Deresina ones from Amazon to start. So grateful to...

ritabon

•2 years ago

4 Replies

Chemo head wear

Folks, I'm on weekly taxol now and am suffering hair loss/fall. Any good chemo headgear websites u recommend? Fight the good fight warrior women!

Folks, I'm on weekly taxol now and am suffering hair loss/fall. Any good chemo ...

ritabon

•2 years ago

30 Replies

Average Length of First Remission

Hello Fortunate Ones, How long did your remission last? Were you on a maintenance regimen during that time? I do know each of us are on our own path, I just...

Hello Fortunate Ones, How long did your remission last? Were you on a maintenanc...

Frags4

•2 years ago

11 Replies

Here we go again probably!

Hi ladies. I’ve been away from this sight again but check the posts periodically. I was diagnosed 3c in 2016, had fully optimal surgery and chemo and had 3 yrs...

Hi ladies. I’ve been away from this sight again but check the posts periodically...

MH500

•2 years ago

24 Replies

Surgery if now Platinum resistant?

Hello ladies, Im having a second relapse and because I recurred 5 months after second line; Carbo/Caelyx, I'm now classed as Platinum resistant. I was...

Hello ladies, Im having a second relapse and because I recurred 5 months after ...

Meridian14

•2 years ago

12 Replies

Chemo Brain Fog

Hello Ladies, I think I’ve started to have episodes of Chemo Brain front line ended 8 months ago started with little things left a burner on, mis-placed keys...

Hello Ladies, I think I’ve started to have episodes of Chemo Brain front line en...

Saintgermain

•2 years ago

23 Replies

Interval Debulking Surgery

Was was diagnosed with stage 3c ovarian cancer in Feb 2020 and I had primary debulking surgery followed by carbo/taxol chemotherapy every 3 weeks. I have been...

Was was diagnosed with stage 3c ovarian cancer in Feb 2020 and I had primary deb...

kadabra12

•2 years ago

2 Replies

New Podcast episode

A New “Living with Ovarian Cancer Podcast” episode is out today. I’m talking to Lexi who is an absolute powerhouse of energy and tirelessly raises awareness...

A New “Living with Ovarian Cancer Podcast” episode is out today. I’m talking t...

Levanah

•2 years ago

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Moving to Kent?

Hi everyone on a drizzly day. I wonder if anyone can help? I was diagnosed July 2018, stage 1a ,so only 3 then 6 monthly blood tests. I was operated under Guys...

Hi everyone on a drizzly day. I wonder if anyone can help? I was diagnosed July ...

Twink333

•2 years ago

13 Replies

Unsubscribe from one list

Hey everyone, My sister has subscribed me to another list on HealthUnlocked - the heart one - and I can't work out how to get off it but stay on Ovacome....

Hey everyone, My sister has subscribed me to another list on HealthUnlocked - th...

candyapplegrey

•2 years ago

2 Replies

Travel insurance for Cancer Patient’s

I am 6 months in remission from having stage 3 ovarian cancer after having a hysterectomy and 6 rounds of chemo. I am now taking Niraparib for the next two...

I am 6 months in remission from having stage 3 ovarian cancer after having a hys...

Jingles6

•2 years ago

13 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for June 2022

Looking for advice as to whether Avastin is the right option for my mum

Ca 125 recurrance

My Ovacome forum guidelines

Good news

Affraid again

treatment

Bowel adhesion blockage

Need advice re: Stomach pains and Acid Reflux after eating?

Covid boosters

Anyone in UK had radiotherapy for pelvic lymph nodes

Cyst on remaining ovary

COC protocol

Itching and burning

Treatment Options at 2nd recurrence.

Apology and Observation

Recurrence advice

How to manage Niraparib side effects

Hit another hurdle! Need some support from you lovely ladies!

Deleted post

Thanks to you all for advice on headgear!

Chemo head wear

Average Length of First Remission

Here we go again probably!

Surgery if now Platinum resistant?

Chemo Brain Fog

Interval Debulking Surgery

New Podcast episode

Moving to Kent?

Unsubscribe from one list

Travel insurance for Cancer Patient’s

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Which of these have you found helpful or would have liked to have been offered as part of your ovarian cancer care? (Please comment below)

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