Posts - My Ovacome | HealthUnlocked

My Ovacome

17,746 members • 19,983 posts

All posts for June 2019

Bevacizumab (Avastin) availability in Wales - your comments needed

Hello All We've been contacted by All Wales Therapeutics and Toxicology Centre (AWTTC), who are involved in considering treatment availability in Wales. They...

Hello All We've been contacted by All Wales Therapeutics and Toxicology Centre (...

OvacomeSupport

Partner•5 years ago

8 Replies

Caelyx

I am on monthly Caelyx and having had second one find myself completely wiped out. Having had several chemos in the past where I have quickly returned to...

I am on monthly Caelyx and having had second one find myself completely wiped ou...

Hudson88

•5 years ago

19 Replies

Folfiri and avastin chemotherapy

Hi. My wife was diagnosed with cancer in her splenic flexure transverse colon February 2018. She was operated on but her cancer had spread to her stomach,...

Hi. My wife was diagnosed with cancer in her splenic flexure transverse colon Fe...

Klorakas

•5 years ago

3 Replies

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It’s done!

The op is over....Thank goodness for that. They managed to get all of the cancer visible and removed my spleen and gall bladder. Recovery has been tough this...

The op is over....Thank goodness for that. They managed to get all of the cancer...

Lockygill

•5 years ago

35 Replies

RGCC test?

Has anyone done the RGCC test, I’ve been reading about it and wondered if it helped.

Has anyone done the RGCC test, I’ve been reading about it and wondered if it hel...

Flower2011

•5 years ago

6 Replies

New Research? PARG inhibitor PDD00017273

Hi all, Just wondering if anyone has heard of the new PARG inhibitor? Looks like new research which is likely to translate to human trials soon? Apologies if...

Hi all, Just wondering if anyone has heard of the new PARG inhibitor? Looks like...

RomanZ

•5 years ago

2 Replies

Update

Hi Ladies just an update ..... So after my first infusion of carbo/ Cyclophosphamide brought me four days in hospital ☹️ Due to blood in my urine, seen onc...

Hi Ladies just an update ..... So after my first infusion of carbo/ Cyclophospha...

Lorent

•5 years ago

10 Replies

Partial Bowel Blockage

Hello Ladies, I have been on a low residue diet for months, as soon as I try to eat high fibre (coleslaw latest culprit) I end up in difficulty, still able to...

Hello Ladies, I have been on a low residue diet for months, as soon as I try to...

Hidden

•5 years ago

27 Replies

CHRISTIE NHS Waiting times

Does anyone go to Christies Manchester for Chemo on the NHS and if so how long does it take for bloods then treatment etc, how long are you typically there for...

Does anyone go to Christies Manchester for Chemo on the NHS and if so how long d...

Flower2011

•5 years ago

6 Replies

Oncofocus

Anybody used Oncofocus to test DNA.

Annr5h

•5 years ago

2 Replies

UNEXPLAINED WEIGHT GAIN

Hello all. Hope you all feel better than I do. I'm so miserable. I'm still having Avastin every three weeks. I'm on prednisolone now 5mg. I'm a vegetarian and...

Hello all. Hope you all feel better than I do. I'm so miserable. I'm still havin...

TudorJayne1509

•5 years ago

9 Replies

Kidneys

Has anyone had kidney drain proceedure involving tubes to drain outside body

MsLizD

•5 years ago

11 Replies

Ultrasound results. How long?

Hi 👋 I’m new to the group and was wondering if anyone knows how long it takes for a Transvaginal Ultrasound result. It has been two weeks today and I have...

Hi 👋 I’m new to the group and was wondering if anyone knows how long it takes ...

Sparkle172030

•5 years ago

20 Replies

CA125 results

Please can anybody help !!!! I've had my CA125 results today my potassium level is 5.5 and a repeat blood test has been requested by my gp because of my...

Please can anybody help !!!! I've had my CA125 results today my potassium level ...

Hidden

•5 years ago

11 Replies

Thirsty! Does Niraparib give you an overwhelming Thirst?

Hi all, Yes, I too hope you are all as well as can possibly be. I am doing fantastically on Niraparib, with lots of energy and very little nausea. I am in my...

Hi all, Yes, I too hope you are all as well as can possibly be. I am doing fanta...

Lindaura

•5 years ago

12 Replies

feeling well!

Morning ladies! just wanted to ask for some advice!... mum had 4th chemo a week ago today and she’s not ill at all!!! I mean nothing?!!! Obviously this is...

Morning ladies! just wanted to ask for some advice!... mum had 4th chemo a week...

claireRoberts76

•5 years ago

5 Replies

Carbo/gemzer

Hi ladies, I’m starting carbo/gemzer this week for third line treatment in 2 years. Im having both on day 1 and just gemzer on day 8, then a week off. Just...

Hi ladies, I’m starting carbo/gemzer this week for third line treatment in 2 ye...

Elfed

•5 years ago

3 Replies

Bowel Obstruction - drastic surgery

Hello again everyone, I just wondered if anyone on here has had bowel obstruction surgery? My mum is currently at our local hospice after being told due to...

Hello again everyone, I just wondered if anyone on here has had bowel obstructi...

eh11g11

•5 years ago

14 Replies

Another stalker. Admin!

What's with all these guys following us lately? Here's a new one. Stevenfischer

What's with all these guys following us lately? Here's a new one. Stevenfische...

grammeejill

•5 years ago

11 Replies

fenbendazole

anyone familiar with this drug? Known for treating parasites in dogs. Has shown positive results for many, yet isn't approved by most hospitals and insurance...

anyone familiar with this drug? Known for treating parasites in dogs. Has shown ...

banjoman

•5 years ago

15 Replies

Beyond chemo?

My wife has been struggling with ovarian cancer for 5 years. Mayo clinic just informed us that they have no other options for her there, and good luck....

My wife has been struggling with ovarian cancer for 5 years. Mayo clinic just in...

banjoman

•5 years ago

15 Replies

Latest scan update

Hi ladies Got my latest scan results Wednesday. Very slight disease progression (lymph nodes grown by 2 and 3mm) CA125 up from 43 to 45. Onc happy to keep me...

Hi ladies Got my latest scan results Wednesday. Very slight disease progression ...

Hidden

•5 years ago

5 Replies

LGBT+ focus group

Dear All Some of our members who identify as LGBT+ have made us aware that we are not inclusive enough in our work. As a result we are running a focus group...

Dear All Some of our members who identify as LGBT+ have made us aware that we ...

OvacomeSupport

Partner•5 years ago

Be the first to reply

Another reprieve

Hi lovelies It’s been a while since I posted on here, again I’ve been busy living, working and being grateful. I write this post not to brag (I could never...

Hi lovelies It’s been a while since I posted on here, again I’ve been busy livi...

MH500

•5 years ago

39 Replies

LIFE and how I feel about it since diagnosis

Saw this and it struck a chord.....

Katmal-UK

•5 years ago

18 Replies

Niraparib stopped

Not posted a lot but read and follow everyone’s journey. And it keeps the demons from the door. Had ct scan yesterday and appointment with oncologist today....

Not posted a lot but read and follow everyone’s journey. And it keeps the demon...

Missmuffet32

•5 years ago

15 Replies

Reoccurrence Update

Just got back from the Royal London Hospital where I met my surgeon. Lovely man who has told me that although it is another major operation, he plans to try...

Just got back from the Royal London Hospital where I met my surgeon. Lovely man ...

Lockygill

•5 years ago

39 Replies

My Beginning CA125 was 80,000 (you read that right!) - anyone else have one anywhere near that high? Luv to hear from you!

High CA125

SolangeC

•5 years ago

9 Replies

Update on My Mom ❤️

My mom had her 8th of 8th infusion of taxol/Carbo today and I’m just hoping this really does the trick. She met with surgical oncologist today and he informed...

My mom had her 8th of 8th infusion of taxol/Carbo today and I’m just hoping this...

Lind58

•5 years ago

3 Replies

4 down 2 to go !

Hello ladies... hope you are all doing as well as can be.... Well we are 4 chemo’s down.. 2 to go! mum recovered brilliantly from operation in no time at all.....

Hello ladies... hope you are all doing as well as can be.... Well we are 4 chemo...

claireRoberts76

•5 years ago

24 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for June 2019

Bevacizumab (Avastin) availability in Wales - your comments needed

Caelyx

Folfiri and avastin chemotherapy

It’s done!

RGCC test?

New Research? PARG inhibitor PDD00017273

Update

Partial Bowel Blockage

CHRISTIE NHS Waiting times

Oncofocus

UNEXPLAINED WEIGHT GAIN

Kidneys

Ultrasound results. How long?

CA125 results

Thirsty! Does Niraparib give you an overwhelming Thirst?

feeling well!

Carbo/gemzer

Bowel Obstruction - drastic surgery

Another stalker. Admin!

fenbendazole

Beyond chemo?

Latest scan update

LGBT+ focus group

Another reprieve

LIFE and how I feel about it since diagnosis

Niraparib stopped

Reoccurrence Update

My Beginning CA125 was 80,000 (you read that right!) - anyone else have one anywhere near that high? Luv to hear from you!

Update on My Mom ❤️

4 down 2 to go !

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