My Beginning CA125 was 80,000 (you read that ri... - My Ovacome

My Ovacome

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My Beginning CA125 was 80,000 (you read that right!) - anyone else have one anywhere near that high? Luv to hear from you!

SolangeC profile image
9 Replies

High CA125

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SolangeC profile image
SolangeC
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9 Replies
Katmal-UK profile image
Katmal-UK

Wow, not heard of a reading THAT high!

Petrolhead profile image
Petrolhead

On the American forum Inspire there has been a thread on this. I believe one lady had a reading of 130,000.

Maybe worth looking on that forum if you want more replies.

Best wishes

Fay

Bostonmom profile image
Bostonmom

Mine was 14,392. I thought that was off the charts! Down to 10 now, Thank God! I'm praying yours is way down now!

Welshandproud profile image
Welshandproud

I thought my highest at 10,400 was high. Wow Solange. That's quite a number xxxc

grammeejill profile image
grammeejill

Dang. You win! Sorta if a reading is that high what is your diagnosis? Mine was 45 at the start of this so my bragging rights are that it was so low given that I am 3b.

Haeh profile image
Haeh

Hi! My first CA125 was 25,000+. March 2017. It was so high I couldn't get my head around it. If it had been 70 I would have been terrified that it was double what it should have been. Oncologist did ask that the next blood test be more exact, but never got one. Testing just stopped at 25,000!!!! I had no symptoms except for feeling tired. I was convinced it was my thyroid! Stage 4b.

Shorty864 profile image
Shorty864

Yes mine was 80,000 as well, now down to a 100 after 3 lots of chemo - good job the doctor did not tell at the time - probably would have died of shock and not of cancer!!

transf2856 profile image
transf2856

My CA125 was only 18 when I was diagnosed stage4!! Oncologist still does the test but she says that she considers 35 normal but if mine when to 35 thats double what it started at so I really don't understand how it all works.

Wow that is a massively high one !!!

Mine was 4000 which I though was high. Obviously not!! Xx