Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for August 2021

Forum members advice and help on next research papers on the long-term impacts of Covid on you all.

MelanieSloan and the research team are currently writing the papers for the next stage of the studies that many of you kindly took part in and they need your...

MelanieSloan and the research team are currently writing the papers for the next...

Chanpreet_Walia

LUPUS UK•3 years ago

4 Replies

Sore on finger

Over the last week a blister like sore has appeared on my finger. At first I thought it was glass or a splinter but it spread over the course of the week....

Over the last week a blister like sore has appeared on my finger. At first I tho...

SamRigs

•3 years ago

26 Replies

Special Cutie Pic

Hello everyone Cutie pics is very special today as i am announcing that horsewhisper is the winner of the first Caption Competition . Her winning caption was...

Hello everyone Cutie pics is very special today as i am announcing that horsewhi...

misty14

•3 years ago

49 Replies

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Spotted Flycatcher update

Hello again friends, I’ve been keeping an eye on the flycatcher’s nest ever since discovering her nest and eggs in our ornamental bird feeder outside our shed....

Hello again friends, I’ve been keeping an eye on the flycatcher’s nest ever sinc...

Spotty-ewe

•3 years ago

53 Replies

wisdom tooth removal

Hi all so i recently suffered a massive lupus flare, with mouth ulcers which also flare up. This time i had severe jaw pain where i was literallty crying....

Hi all so i recently suffered a massive lupus flare, with mouth ulcers which al...

avionne

•3 years ago

14 Replies

What does this mean please

Hi All I had my appointment with a consultant yesterday. Was very rushed first time speaking to him so didnt have a chance to ask for more detail on this so...

Hi All I had my appointment with a consultant yesterday. Was very rushed first ...

Hidden

•3 years ago

7 Replies

Tortoise and the hare

Here she is, our family tortoise of 50 years and the vet says she’s at least 85. In hot weather she easily eats 3 lettuces and a pound of tomato’s a day along...

Here she is, our family tortoise of 50 years and the vet says she’s at least 85....

Hidden

•3 years ago

61 Replies

Reducing prednisolone

Have been on prednisolone plus immunosuppressants for over 6 years for sle, lupus profundus and nephritis more recently. Now have been on mycophenalate for...

Have been on prednisolone plus immunosuppressants for over 6 years for sle, lupu...

Andfiona

•3 years ago

12 Replies

Online survey about lupus diagnostic journey

Hi everyone, We've been contacted by Emily Laxton who is studying lupus diagnostic journeys as part of her postgraduate studies. If you are 18+, have a...

Hi everyone, We've been contacted by Emily Laxton who is studying lupus diagnost...

Paul_Howard

Partner•3 years ago

3 Replies

Muscle weakness

Hi all I'm new here! Understanding that no-one is a doctor I'm just looking for experiences. I've been struggling with very bad muscle weakness/stiffness the...

Hi all I'm new here! Understanding that no-one is a doctor I'm just looking for ...

Bahmum

•3 years ago

19 Replies

White spots on lungs

Hi all, it’s been a while. Since being off quarantine, it seems life has sped up and I’ve been overwhelmed by all of things to do. We’ve had alot of support...

Hi all, it’s been a while. Since being off quarantine, it seems life has sped up...

JennaShi

•3 years ago

10 Replies

Sickness and diarroah?

Hi. Has anyone experienced sickness and diarroah whilst having a flare please? Covid result negative today.

Hi. Has anyone experienced sickness and diarroah whilst having a flare please? C...

PositiveT

•3 years ago

8 Replies

Tested positive LFT do I stop meds?

Just tested positive on lateral flow and been for PCR - just after advice if anyone knows should I stop taking meds for 10 days? On mycophenolate,...

Just tested positive on lateral flow and been for PCR - just after advice if any...

Kelbol1

•3 years ago

10 Replies

Second Jab

Going for second jab today. Kinda nervous as I hear ppl get ill. It is phizer. Thx for your Listening! Titters

Going for second jab today. Kinda nervous as I hear ppl get ill. It is phizer. ...

MrsMarigold

•3 years ago

12 Replies

Love our forum

Just a note to say how much I love everyone on here. Even when there are disagreements we manage to disagree agreeably and support each other. I know the...

Just a note to say how much I love everyone on here. Even when there are disagre...

Insomniacette

•3 years ago

30 Replies

Opp update

Hi Folks as you know I went to see anaesthetist yesterday regarding my upcoming hysterectomy , he checked my neck and lungs to make sure they were ok and asked...

Hi Folks as you know I went to see anaesthetist yesterday regarding my upcoming ...

svfarmer

•3 years ago

90 Replies

Greetings from the Antipodes

It’s a pleasure to find such a supportive and caring community for lupus warriors. I’m new, and services in Australia are limited. My Mum had lupus, and I was...

It’s a pleasure to find such a supportive and caring community for lupus warrior...

Colonial-girl

•3 years ago

27 Replies

Useful tips

FLARE-UPS of autoimmune disease come and go throughout life, often triggered by stress, says Michelle Dossett, M.D., an integrative medicine specialist at UC...

FLARE-UPS of autoimmune disease come and go throughout life, often triggered by ...

Kevin53

•3 years ago

4 Replies

Busy bees

These two busy bees don’t stop all summer patiently planning ahead, Wonderful creatures 🐝

These two busy bees don’t stop all summer patiently planning ahead, Wonderful cr...

Hidden

•3 years ago

9 Replies

Lupus diagnosis?

I have tested negative for ANA but have a lot of lupus symptoms! Mainly headaches, joint pain, face rash - only on cheeks in butterfly shape (pic attached)...

I have tested negative for ANA but have a lot of lupus symptoms! Mainly headache...

Cloelouise

•3 years ago

5 Replies

Blood Test Results

Hello I am new on the site and wondered if anyone can help. The GP recently referred me to the hospital for tests for Sjogren's Syndrome. The hospital rejected...

Hello I am new on the site and wondered if anyone can help. The GP recently refe...

Tregarron

•3 years ago

2 Replies

Hydroxychloroquine

Instead of my normal prescription of Hydroxychloroquine my chemist has sent me Ipta brand tablets. Has any had these

Instead of my normal prescription of Hydroxychloroquine my chemist has sent me I...

bones-bones

•3 years ago

9 Replies

What percentage of Rheumatologists believe their patients and how many of their patients are seeing their second, third, fourth or more?

Hey everyone. Lovely to meet you all! This is my first post and I didn’t know quite where to start, so I thought I’d begin with a question I’ve been mulling...

Hey everyone. Lovely to meet you all! This is my first post and I didn’t know q...

Tattyasha

•3 years ago

125 Replies

Feel good photo

I thought I would share this of my grandson and hound sharing an ice cream as it made me smile watching their friendship grow. I don’t speak much on here but...

I thought I would share this of my grandson and hound sharing an ice cream as it...

NannyDonna

•3 years ago

19 Replies

driving with lupus

I was diagnosed with SLE in October 2017 and caught sepsis which led to a 4month coma, when I woke up I was paralysed neck down. thank God I have got them all...

I was diagnosed with SLE in October 2017 and caught sepsis which led to a 4month...

Sika2021

•3 years ago

6 Replies

It’s Monthly Mira Monday 🐶🐶🐶

Hi Folks hope all had a good weekend - this picture of Mira is her sat on my lap where she is happiest , she’s such an affectionate little thing, you would...

Hi Folks hope all had a good weekend - this picture of Mira is her sat on my lap...

svfarmer

•3 years ago

56 Replies

Caption Competition

Hello everyone, As Ive had such a lovely response to a caption competition and can't give a normal prize I've come up with a different one. I'll choose my...

Hello everyone, As Ive had such a lovely response to a caption competition and c...

misty14

•3 years ago

19 Replies

KNOW LUPUS Card Game

My friend Barbara in America, who was once a member of this forum, sent me this brilliant card game devised by the Lupus Foundation of America. I hope you all...

My friend Barbara in America, who was once a member of this forum, sent me this ...

Spotty-ewe

•3 years ago

23 Replies

Exercise and weight gain

I'd be grateful for advice. I've recently been diagnosed with lupus, but have had the symptoms and indeed many of the signs for at least 5 years. I've now got...

I'd be grateful for advice. I've recently been diagnosed with lupus, but have h...

Ophelia1

•3 years ago

9 Replies

Osteitis

Any one here been diagnosed with this?

donnabrain

•3 years ago

1 Reply

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for August 2021

Forum members advice and help on next research papers on the long-term impacts of Covid on you all.

Sore on finger

Special Cutie Pic

Spotted Flycatcher update

wisdom tooth removal

What does this mean please

Tortoise and the hare

Reducing prednisolone

Online survey about lupus diagnostic journey

Muscle weakness

White spots on lungs

Sickness and diarroah?

Tested positive LFT do I stop meds?

Second Jab

Love our forum

Opp update

Greetings from the Antipodes

Useful tips

Busy bees

Lupus diagnosis?

Blood Test Results

Hydroxychloroquine

What percentage of Rheumatologists believe their patients and how many of their patients are seeing their second, third, fourth or more?

Feel good photo

driving with lupus

It’s Monthly Mira Monday 🐶🐶🐶

Caption Competition

KNOW LUPUS Card Game

Exercise and weight gain

Osteitis

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