Online survey about lupus diagnostic journey

[Paul_Howard]

Hi everyone,

We've been contacted by Emily Laxton who is studying lupus diagnostic journeys as part of her postgraduate studies.

If you are 18+, have a diagnosis of lupus and live in the UK, please take part in this survey.

angliaruskin.onlinesurveys....

[eekt]

Thanks Paul! There doesn't seem to be a way to save halfway, and some questions have space for free text, up to 700 characters long, so it could take a long time to complete.................so here are most of those! I certainly couldn't complete it at one go! 🤪 xxx

Please provide more details to how your symptoms impacted your pre-diagnosis life. For example did they impact your normal way of living in any way? Optional

Were you surprised by your diagnosis of SLE?

Were you ever misdiagnosed with another condition prior to your diagnosis of SLE?

Please specify what your misdiagnosis was and what implications (if any) that had on you and your diagnostic journey.

How important was having an official clinical diagnosis of SLE to you?

Please explain why you felt this way.

Did you feel supported and heard by your primary healthcare provider (e.g. your GP) during your diagnostic journey?

Did any of the following factors influence your working relationship with your GP (or other primary healthcare professionals) in your opinion? (no limit)

Reflecting on your diagnostic journey, what do you think could have been done to improve your experience or reduce the period of time it took? (no limit)

[chrisj]

Completed, thank you.

[djsema]

Completed ✅ thank you Paul